Dedicated to enhancing the quality of life for people with inherited bleeding disorders through advocacy, education, connection and support.
Phoenix, AZ
Joined April 2022
- Tweets34
- Following50
- Followers27
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Learning as a community. Great turn out for last night’s Hemophilia A-Z Takeda HELLO Talk in Tucson.
March is #BleedingDisordersAwarenessMonth. Did you know that about 3 million people nationwide are affected by bleeding disorders (according to the CDC)?
Flashback Friday in Honor of Goat Yoga Month. Remembering that one time our staff started their morning with these cute little creatures at the National Hemophilia Foundation Chapter Leadership Summit.
FORE!
Support Arizona Bleeding Disorders at the WM Phoenix Open!
Birdies For Charity is a fundraising program designed to allow AZBD to generate contributions for our organization based on the number of birdies made by PGA TOUR players during the Open.
Scan the QR code below!
Honored to be featured in the latest issue of the Hemophilia Federation of America's Dateline Federation Magazine. Thank you for highlighting the work we do! ow.ly/5oGZ50MGPQ1
Hello February! Mark those calendars. Here's what's happening with Arizona Bleeding Disorders this month.
Visit arizonahemophilia.org for all the details on these events and more.
Hot off the Press! Check out the latest issue of GET INFUSED - A quarterly newsletter for the Arizona Bleeding Disorder Community.
English: ow.ly/BKs550MqXuU
Spanish: ow.ly/Bw4J50MqXuW
We're just 3 weeks away from our Annual Desert Classic Golf Tournament! Get your team registered today while foursomes are still available! arizonahemophilia.org/golf-t…
#charitygolftournament #azgolf #troonnorth #hemophiliaawareness #bleedingdisorders #arizonanonprofit
Arizona Bleeding Disorders retweeted
📣 Calling all 7-18-year-olds! We would love to send you to the "Getting in the Game Junior National Championships" in Phoenix, AZ, Oct 27-30! To apply, submit an essay that YOU write about why you love golf ⛳ or baseball ⚾ to [email protected] or fax 212-520-8501 DUE AUG 12!!
The Desert Classic Charity Golf Tournament benefitting Arizona Bleeding Disorders is back. We're hosting this lively event at Troon North Golf Club on September 14, 2022. We’re actively looking for golf sponsors & teams to support this fundraiser.
arizonahemophilia.org/golf-t…
Arizona Bleeding Disorders retweeted
🐠 🌊 🛶 Calling all young adults, ages 18-35! Join us for Gen IX Leadership: A unique outdoor experience from October 26-30 in San Diego, CA! ☀️
Apply now! (August 31 deadline): hemob.org/upcoming-events/ge…
#genixleadership #hemobevents #leadership
Application deadline approaching ---> Applications close August 1, 2022.
We're partnering with BioMatrix to provide educational #scholarships for students in the #bleedingdisorders communit. 🎓 hemophiliafed.org/scholarshi…. #hemophiliafed #learn #education
Arizona Bleeding Disorders retweeted
Don't let the possibility of $1,000 to further your #career slip through your fingers! The deadline to apply for HFA's Job Readiness Grant is Aug 5. Tell us how you'd use this grant in the comments below & apply today: hemophiliafed.org/news-stori…. #hemophiliafed
Bleeding disorders present unique problems for women & girls because they can impact reproductive health and quality of life, but many women & girls don’t know about them. Take the Better You Know risk assessment to determine if you may be at risk: bit.ly/3sedXOM.
Happy International Yoga Day! Stretch your body, relax your mind and get your yoga on! Learn more about the benefits of yoga specifically for those with bleeding disorders. bit.ly/3zR9iH7
#internationalyogaday
Tune in LIVE this afternoon to see @AZBleeding community member Dylan B. perform in the finale from Nashville! We can't wait to cheer him on!
🎶 We are thrilled to share the grand finale of The Beats Music Performance!! We will be live TODAY from 3pm-6pm CDT on our Facebook page: facebook.com/HemophiliaB
We hope you'll watch with us!
#thebeatsmusic #hemobevents #hemophiliab
Pinch-runner rule instituted to aid Phoenix player with hemophilia (source: spectrumlocalnews) spectrumlocalnews.com/nys/ce… #hemophilia #livingwithhemophilia #bleedingdisorders
FDA Accepts CSL Behring’s Biologics License Application for Etranacogene Dezaparvovec for Priority Review : If approved, etranacogene dezaparvovec would be the first gene therapy option for people living with hemophilia B cslbehring.com/newsroom/2022…
Volunteers needed for Camp HONOR! Be a camp counselor and give back to the bleeding disorder community. Once you experience the magic of Camp HONOR you'll want to volunteer again and again! Learn more about volunteering here: arizonahemophilia.org/camp-p… #bleedingdisorders #hemophilia
Arizona Bleeding Disorders retweeted
Since @CMSGov did not take steps to restrict the use of copay accumulator adjustors in the final 2023 #NBPP, action by #Congress is needed to protect patients. We urge lawmakers to pass HELP Copays Act #HR5801 which seeks to make #AllCopaysCount. Share: p2a.co/S2gjch8
