Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.
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Mark your calendars!
📅 July 1–3, 2027
📍 Orlando, FL
Join patients, families, caregivers, advocates, and healthcare allies affected by rare, protein-spilling kidney diseases for an opportunity to learn and connect.
Visit nephcure.org/get-involved/ev… to learn more!
Breaking news for the adult IgA nephropathy (IgAN) community! NephCure celebrates another landmark milestone for the rare kidney disease (RKD) community following the U.S. FDA accelerated approval of ULTOMIRIS® (ravulizumab-cwvz). Click to read more: nephcure.org/the-fda-grants-…
Join us for Community Day in Houston, a free, in-person gathering for patients, caregivers, and families affected by rare kidney disease. Visit NephCure.org to register today!
Thank you to our generous sponsors for supporting NephCure Community Days!
Click here to register: us06web.zoom.us/webinar/regi…
Thank you to our generous sponsors for supporting Membranous Nephropathy Awareness Day: Climb Bio and Merida Biosciences
Join us today for our FREE MN Patient Meet & Greet at **4:00 p.m. PT / 7:00 p.m. ET! Click here to register: us06web.zoom.us/webinar/regi…
Thank you to our generous sponsors for supporting Membranous Nephropathy Awareness Day: Climb Bio and Merida Biosciences
Thank you, Jennifer, for courageously sharing what it's like to be the mom of a young child living with a rare kidney disease. Your honesty, strength, and hope help others feel seen, understood, and less alone.
We are proud to highlight Dr. Kirk Campbell! Dr. Campbell is the C. Mahlon Kline Professor of Medicine and Chief of the Renal-Electrolyte and Hypertension Division at the University of Pennsylvania Perelman School of Medicine.
Thank you, Sean, for sharing your story and for using your voice!
NephCure's Rare Kidneys on the Hill Day would not be possible without the support of our sponsors: Travere Therapeutics, Vertex Pharmaceuticals, Novartis, Otsuka Pharmaceutica and Keenova
Your voice matters! 💚
It only takes 5 minutes to urge your elected representatives to support H.R. 1518 and help make a difference for the rare kidney disease community.
Click here to take action: nephcure.quorum.us/campaign/…
#RareKidneyDisease #NephCure #Advocacy #KidneyHealth
Happening NOW: Dozens of NephCure advocates are on Capitol Hill meeting with members of the House and Senate to champion H.R. 1518, the New Era of Preventing End-Stage Kidney Disease Act.
#NephCureHillDay2026 #rarekidneydisease
WE’RE ON CAPITOL HILL! 💚
Get involved: nephcure.quorum.us/campaign/…
This event would not be possible without the support of our sponsors: Travere, Vertex, Novartis, Otsuka and Keenova
WE’RE ON CAPITOL HILL! 💚
Rare Kidneys on the Hill Day is an opportunity for advocates to raise awareness about rare kidney disease to their members of Congress.
Thank you to our support of our sponsors: Travere, Vertex, Novartis, Otsuka and Keenova
Today, the FDA granted full approval to FABHALTA (iptacopan) for IgA nephropathy (IgAN). Read Novartis' press release to learn more: novartis.com/news/media-rele…
Breaking news for the Canadian based IgA nephropathy (IgAN) community! Atrasentan (VANRAFIA) has been approved in Canada as a treatment for adults living with IgAN. Click to learn more: novartis.com/ca-en/news/medi…
Call your representatives and urge them to support H.R. 1518!
Click here: nephcure.quorum.us/campaign/…
Big news for the IgAN community! Click here to read the full article: nephcure.org/fda-grants-acce…
Whether you are new to NephCure or a longtime community member, join a Community Day near you! To register, visit: nephcure.org/get-involved/ev…
The New Era Act is moving in Congress—and patient voices are needed now. Travel assistance is now available for Rare Kidneys On The Hill Day.
Apply & register 👉 nephcure.org/get-involved/ev…
