Primary Biliary Cholangitis (PBC) patient & advocate, a rare disease zebra. @PBCers, @Wegohealth & @brkthrough_crew. 🗝PBC is like an iceberg, 90% unseen.
Oahu, Hawai'i
Joined November 2016
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Primary Biliary Cholangitis (PBC) (and PSC, AIH) is like an iceberg... what you don't see is what you need to worry about. #pbcers #pscpartners #AIH #patientworthy #liveradvocate #InvisibleDisease
April is National Donate Life Month. Ten of thousands of your fellow citizens need a transplant. Bee a donor and safe lives in a very meaningful way. #DonateLifeMonth #DonateLife #PBCers
Cathy Mumford retweeted
Asking all PBC patients to enroll in the PBC registry with CoRDS.
CoRDS has partnered with nearly 87 Partner and Advocacy Groups to host disease specific questionnaires in the CoRDS Registry. We asked them about their work with rare diseases and why #RareDiseaseDay is important to them. We'll be featuring their answers all month! #SanfordRare
Cathy Mumford retweeted
Despite the availability of therapies for the treatment of PBC, people living with the disease still have an unmet need for additional therapies. Learn more about seladelpar as an investigational therapy for PBC: cymabay.com/pipeline_seladel…
Cathy Mumford retweeted
#DiseaseoftheDay:
#AutoimmuneHepatitis (#AIH) is an inflammatory #rareliverdisease in which the immune system attacks healthy #liver cells. Though the # of new cases per year is 1-2 per 100,000, this incidence rate is slowly increasing. #RareAware
Cathy Mumford retweeted
#ICYMI from @Gut_BMJ: “Our findings suggest that the humoral response of [#liver #transplant] recipients is only slightly lower than expected compared with that of #COVID19 immunocompetent controls,” @BecchettiChiara #MedTwitter bit.ly/34dDm2k
Cathy Mumford retweeted
#HappeningNow: Thank you Professor Dave Jones, OBE, for sharing the current therapeutic approaches for #PrimaryBiliaryCholangitis during the EL-PFDD meeting on #PBC
ALT Screenshot of a webinar with an image of the speaker in the upper right corner. Text on the slide say: Goals of Treatment in PBC. As close to a normal length of life as possible. As close to a normal quality of life as possible. To be involved in decisions and treated with respect.
Cathy Mumford retweeted
#February is #RareLiverDiseases Month. There are >100 #liver diseases & #RareAware highlights the need to promote #awareness & #education about the diverse range of rare liver diseases.
Join the conversation by using #RareAware.
🔗Learn more: globalliver.org/rare
Cathy Mumford retweeted
Happy 25th Anniversary to the PBC Foundation! Amazing how Collette and Linie on opposite sides of the world decided PBC patients needed support and founded organizations! We are celebrating our 25th Dec. 1st. Both groups have enriched the lives of patients #PBC25
Cathy Mumford retweeted
There is no cure for PBC, but there are treatment options. How is PBC and its key symptoms treated? We break it down: hubs.ly/H0X39tc0
Cathy Mumford retweeted
So your patient’s liver surface is nodular. Do they have #cirrhosis?
they often don’t!
1️⃣many people with nodularity do NOT have F3/F4
2️⃣true even for people with lots of nodularity
This study used MRI and software to 📏nodularity
doi.org/10.1007/s00330-021-0… #LiverTwitter
There's so much to do, working collaborative is beneficial for all of us and most importantly for our PBC community.
#PBCaware Month #livertwitter @HUnivValdecilla @AEEHLiver @EASLedu @adiazgonzalezMD
@Marko_Korenjak @PBC_Canada
@PBCers @PBCers_Tina @EASLnews @PBCersLinie @pbcadvocate
💪Let's keep working! Together
#LiverCancerAwarnessMonth #PSC #EUCancerPlan #Endhep #NASH #NAFLD #Alcohol...
Cathy Mumford retweeted
Do you have Primary Biliary Cholangitis (#PBC) that is not responding to UDCA alone? We're testing a new investigational drug that adds the over-the-counter medication berberine to the standard UDCA drug (BUDCA). Visit hightidetrials.com/pronto-pb… to find out more.
Cathy Mumford retweeted
I dont always write a paper about managing the complications of ascites,
but when I do, I cite @VelezNephHepato
Many patients meeting criteria for hepatorenal syndrome were reclassified by #pocus, radically changing the treatment plan karger.com/Article/FullText/…
Cathy Mumford retweeted
We have two more days till #PBCinternationalDay Join us and our partners / supporters for #pbcaware campaign in this difficult times with #Covid19 let's don't forget #rareliverdiseas @PBCers @PBC_Canada @pbcadvocate @PBCersLinie @PBCers_Tina @pbcercarol #HealthForAll #livercancer
Cathy Mumford retweeted
We got lots of questions about #PBC Primary Biliary Cholangitis?
Most common questions are:
👉Is PBC caused by alcohol?
👉Is PBC contagious?
👉Self stigma?
#PBCaware #RareLiverDiseases @PBC_Canada @pbcadvocate
@PBCers @PBCersLinie @PBCers_Tina @pbcercarol @Marko_Korenjak
