SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors.
Bethesda, MD
Joined April 2009
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Five days. New science. Big questions. Unforgettable moments. 🇪🇸
ESMO 2026 (@myESMO) in Madrid brought the global oncology community together — and OncoDaily was at the heart of the conversation.
🔬 From OncoDaily Grand Rounds: Sarcoma and Bladder Cancer Editions to thought-provoking discussions at Big Questions and Who Owns the Message?, we connected experts, advocates, and industry leaders to explore the future of cancer care.
🌙 Madrid Midnight by OncoDaily brought together more than 400 guests for an unforgettable celebration of friendship and connection.
🎤 Throughout the congress, our team captured the latest science, interviewed leading voices, and shared the stories shaping oncology worldwide.
With special thanks to our partners and supporters:
Sarcoma Edition: Agenus (@Agenus_Bio) (Enhanced Partner), Deciphera Pharmaceuticals (@Deciphera) (Educational Grantor), PharmaMar (@PhrmMar)(Foundational Partner), and Sarcoma Foundation of America (@CureSarcoma) (Strategic Patient Advocacy Partner).
Bladder Cancer Edition: Supported by an independent medical education grant from Astellas (@AstellasUS) and Pfizer (@pfizer) via the Pfizer–Astellas Alliance.
To everyone who joined us, supported our events, and helped make this week possible — thank you!
🎬 Relive OncoDaily at ESMO 2026.
Thank you, Madrid. See you in Barcelona!
Our 2027 Research Grant Cycle applications close tomorrow.
These grants support innovative and impactful research projects focused on basic, translational, pre-clinical, and clinical research on the etiology, pathogenesis, diagnosis, and treatment of human sarcomas.
SFA encourages applications in ALL areas of sarcoma research from U.S. and international applicants.
The total award amount is $75,000 for one year, July 1, 2027, to June 30, 2028.
For more information, please visit: buff.ly/Ze5rzcz
#Sarcoma #CureSarcoma #SarcomaResearch #SarcomaResearchFunding
Navigating a sarcoma diagnosis as a teen or young adult comes with unique challenges, and finding the right support can make a difference.
Join us next week for the first Live With the Experts education session in our two-part AYA sarcoma series, featuring expert insights and a patient perspective on navigating care, making treatment decisions, managing emotional well-being, and finding peer support.
Register: buff.ly/C6sGDtm
#Sarcoma #CureSarcoma #AYASarcoma #SarcomaEducation #SarcomaSupport
What does it take to show that a treatment works for people with a rare disease?
A petition submitted by the Haystack Project asks the FDA to consider evidence in the context of the disease and treatment being studied.
SFA’s experience illustrates why this matters. We submitted a letter to the FDA and participated in a meeting with a drug developer and the FDA about a potential approval pathway for a treatment being studied in two related sarcoma subtypes.
SFA provided sarcoma-specific expertise, focusing on whether the proposed study design offered an appropriate comparison and whether the outcomes measured would show meaningful benefits for patients. FDA representatives referenced SFA’s letter during the meeting.
In a recent Haystack Project case study, SFA CEO Brandi Felser shared how this experience shows the important role patient organizations can play in shaping how rare disease treatments are studied and evaluated.
Learn more: buff.ly/XkC0FYs
#Sarcoma #CureSarc #SarcomaAdvocacy
SFA is proud to serve as the Strategic Patient Advocacy Partner for the OncoDaily Grand Rounds at ESMO 2026: Sarcoma Edition.
Pan Pantziarka, our Director of Europe Strategy and Engagement, will represent SFA in bringing patient perspectives into scientific discussions to help advance more patient-centered sarcoma care.
🔔 Only a Few Days Until OncoDaily Grand Rounds at @myESMO 2026: Sarcoma Edition
🎗️If sarcoma is your field of interest, don’t miss this opportunity to connect with world-renowned experts, exchange clinical insights, and discuss advances in sarcoma care.
🎙️ Co-Chairs Professor @RobinL_Jones and Professor @BrotoJavier
🎙️ Featured Faculty Professor @ManuPalmerini, Professor Antoine Italiano, and Pan Pantziarka, representing the Sarcoma Foundation of America, our strategic patient advocacy partner.
📅 October 23, 2026
🕑 1:30–4:00 PM
🍴 1:30–2:00 PM
📍 Novotel Madrid Feria and Airport, Madrid, Spain
🎟️ Register now to secure your seat!
oncodaily.com/grand-rounds-e…
We look forward to seeing you in Madrid! 🇪🇸
The event is supported by @PhrmMar as a Foundational Partner, @Agenus_Bio as Enhanced Partner and the @CureSarcoma as Strategic Patient Advocacy Partner.
Join us on October 29th for another Live With the Experts education session exploring fluorescence-guided surgery in sarcoma, including how the technique works, its potential applications, and the research evaluating its use.
The discussion will cover how fluorescent dyes and special cameras help surgeons visualize tumors during surgery; the potential benefits and limitations of this approach; and the SarcoSIGHT clinical trial, including eligibility, where participation is available, and what participation involves. Our speakers will also discuss future directions, including emerging targeted imaging agents.
Register: buff.ly/jFM1OfG
#Sarcoma #CureSarcoma #SarcomaEducation
Our 2027 Research Grant Cycle is open!
This program funds innovative research to improve therapies and provide better outcomes for people facing sarcoma.
SFA encourages applications in ALL areas of sarcoma research from both U.S. and international applicants. Researchers are invited to submit Letters of Intent (LOIs) for proposals in pre-clinical, translational, and clinical research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas.
LOIs due November 6, 2026.
For more information, please visit: buff.ly/LY3rEcy
#Sarcoma #CureSarcoma #SarcomaResearch
For Michael and Shelley Kennan, supporting the sarcoma community is a meaningful way to support their family.
Through the Scott Lively Memorial Golf Tournament, their support has helped fund multiple $75,000 research grants, investing in work to develop better treatments for people with sarcoma.
We’re so grateful to Michael and Shelley for their continued generosity and commitment to the sarcoma community.
#Sarcoma #SupportSarcomaResearch #CureSarcoma
October is National Estate Planning Awareness Month, a time to think about the legacy you want to leave behind.
A planned gift to SFA can help support sarcoma research, provide resources for patients and families, and help create a better future for those impacted by sarcoma.
Your plans today can help shape a better tomorrow.
Learn more about planned giving: buff.ly/rQ66mpi
#Sarcoma #CureSarcoma #NationalEstatePlanningAwarenessMonth
Thank you to everyone who joined us for the 24th Annual Stand Up to Sarcoma Gala and helped make the evening so amazing.
We’re grateful for our incredible honorees and for the patients, survivors, care partners, families, and supporters who came together to advance SFA’s mission and support a future with better outcomes for people affected by sarcoma.
Relive some of the evening’s special moments and view photos: buff.ly/U7mG48F
#Sarcoma #CureSarcoma #StandUptoSarcomaGala
"It was on our second date in the summer of 2020 that I heard Meghan say the word “sarcoma” for the first time. Since then, I’ve had the privilege of watching her navigate treatment, ring the bell toward healing, celebrate career promotions, and continue to show the same resilience she has carried throughout her 10-year journey with fibromyxoid sarcoma on the dura of her brain. As an asthmatic and someone who never considered myself the greatest athlete, when you watch someone you love fight so courageously, you decide you’d run to the end of the world for them. I have run over 500 miles and completed five half marathons in support of those and their families dealing with cancer, especially those who find themselves as the 1% of the 1%. Meg has been there for me at the finish line of every race I’ve run and this summer, I got to wait for her at the finish line down the aisle as we became husband and wife. The money raised on behalf of the Sarcoma Foundation of America will help strengthen and lengthen lives, and that’s why I’ll continue to lace up. Meg, you’re my hero." - Shaun Nerney, RTCS New Jersey
#Sarcoma #CureSarcoma #RTCS #RTCSNewJersey
Join us on October 29th for another Live With the Experts education session exploring fluorescence-guided surgery in sarcoma, including how the technique works, its potential applications, and the research evaluating its use.
The discussion will cover how fluorescent dyes and special cameras help surgeons visualize tumors during surgery; the potential benefits and limitations of this approach; and the SarcoSIGHT clinical trial, including eligibility, where participation is available, and what participation involves. Our speakers will also discuss future directions, including emerging targeted imaging agents.
Register: buff.ly/IYk6ycL
#Sarcoma #CureSarcoma #SarcomaEducation
Thank you to our 2026 Stand Up to Sarcoma Gala sponsors for helping make tonight possible. Your support helps advance sarcoma research and provide meaningful resources for patients, survivors, care partners, and families.
We are grateful for your partnership, your commitment to our mission, and your support of the sarcoma community.
There’s still time to support the gala. Learn more: buff.ly/s9pqe8C
#Sarcoma #CureSarcoma #StandUptoSarcomaGala
The Stand Up to Sarcoma Gala Silent Auction is officially LIVE now through October 6! You don’t have to attend the gala to participate.
Every bid helps support sarcoma research, advocacy, and patient support. Explore exclusive experiences and unique items, find something you love, and place your bid!
Browse the auction and place your bids: buff.ly/H8xhC5y
The 2026 season of Race to Cure Sarcoma is wrapping up, but there’s still time to be part of the movement.
Bring your family, friends, and community together to support people affected by sarcoma around the world. Every step helps fund critical sarcoma research and brings us closer to better treatments and outcomes.
Find your race and register today: buff.ly/GFeiMXs
#Sarcoma #CureSarcoma #RacetoCureSarcoma
The 2026 Stand Up to Sarcoma Gala is October 6 in New York City! We’re proud to celebrate this year’s honorees, whose leadership, dedication, and contributions are making a difference for people affected by sarcoma.
SFA’s international awards are our highest honors, recognizing those advancing better treatments and outcomes for people with sarcoma.
Join us in celebrating our honorees or show your support for the gala: buff.ly/s9pqe8C
#Sarcoma #CureSarcoma #StandUptoSarcomaGala
This Childhood Cancer Awareness Month, we’re recognizing the researchers and providers whose work is rooted in something deeply personal: giving young patients more possibilities for their future.
From supporting a child through treatment to pursuing discoveries that could change what comes next, their dedication makes a lasting difference in the sarcoma community.
Support the work helping shape a brighter future. Donate today: buff.ly/qZrE6oC
#CureSarcoma #Sarcoma #ChildhoodCancerAwarenessMonth
Thank you to our 2026 Stand Up to Sarcoma Gala sponsors!
Your support helps advance research and provide resources for patients, survivors, caregivers, and families affected by sarcoma. We are grateful for your partnership, your commitment to our mission, and your support of the sarcoma community.
There’s still time to support the Gala and help make an impact. Learn more: buff.ly/iXcVi5x
#Sarcoma #CureSarcoma #StandUptoSarcomaGala
Sarcoma is not one disease. It includes many subtypes, each with its own characteristics, treatment considerations, and research needs. Each month, we’ll highlight a different subtype, exploring who it affects, signs and symptoms, diagnosis and treatment, research, and more.
We’re kicking things off with Ewing sarcoma.
Learn more about Ewing sarcoma and other sarcoma subtypes: buff.ly/NICiO4S
Watch our Live with the Experts education session on Ewing Sarcoma: buff.ly/xGF45gC
#Sarcoma #EwingSarcoma #SarcomaEducation #CureSarcoma
Join us next week for our next Live with the Experts session on clinical trial access for children with cancer.
We’ll explore why pediatric patients, especially those with rare cancers like sarcoma, have fewer trial options and what’s being done to expand access. We’ll also share practical guidance for families looking for clinical trials.
Register today: buff.ly/2DDQ3UL
#Sarcoma #CureSarcoma #SarcomaEducation #LiveWiththeExperts #ChildhoodCancerAwarenessMonth
