#MEAction Network (@MEActNet) header
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A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://xitter.gq/t.co/JhhNZoFYJi

Global
Joined May 2014
Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)Photo by #MEAction Network (@MEActNet)
MEAction is launching its largest #MillionsMissing campaign yet – “Pace to the Capitol!” For the next 7 months, MEAction is bringing ME out of the shadows and into public places across America as we pace to the U.S. Capitol! meaction.net/pace-to-the-cap… youtube.com/shorts/yrA7DgC6y…
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#MEAction Network retweeted
Join us in celebrating Lucinda Bateman, MD! 💙 BHC’s founder will receive the Governor’s Career Humanitarian Leadership Award at Utah Philanthropy Day on Nov. 12, honoring her lifelong service. utahphilanthropyday.org/hono… Share your congratulations below!
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We can’t Race, but we can Pace. Join us in DC, organize in your community, or show up from home – or participate in all of them Register today to help change policy, culture & research funding for ME & Long COVID. meaction.net/pace-to-the-cap… #PaceToTheCapitol #MillionsMissing
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We are working with The Library of Congress’ NLS to educate 95 state & local libraries about ME/CFS & Long COVID. NLS will create a hand-out that explains how our community can access their services. Join our event with NLS on Dec. 2 at 2pm ET. meaction.net/post/meaction-c…
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This #NationalFamilyCaregiversMonth, MEAction & Caregiver Wisdom joined together to focus on caregivers. Have you wondered how you can help a caregiver in your life? As a #caregiver, have you struggled to share how people can help you? We can help! ow.ly/qFOg5103Y1J
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THIS FRIDAY! Join our free Gentle Movement & Rest class on Nov. 6 at 2 PM EST/ 7 pm GMT. meaction.net/event-details/m… This class is designed specifically for #pwME & is hosted virtually. We are thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga,
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Wow! Our 1st state action in our #PaceToTheCapitol is in the books! Way to go, MEAction North Carolina! @MEActionNC organized our first Pace to the Capitol event with a focus on protecting Medicaid for North Carolinians with ME/CFS and Long COVID! meaction.net/post/pace-to-th…
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Are you voting today? Remember to take the election protection hotline with you: 866-OUR VOTE. We hope we have helped prepare you to vote through our participation in the nonpartisan #DisabilityVotingRightsWeek with @AAPD! #DisabilityVote #CripTheVote #RevUp #pwME
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The RECOVER-Treating Long COVID (TLC) Hybrid Workshop is coming up this week- November 4th and 5th. Registration is still available online and there is a final agenda. ow.ly/gMJ951039k9 What are most interested in? #LongCovid #pwME #MyalgicEncephalomyelitis
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#MEAction Network retweeted
PEOPLE near who can get to RALEIGH, NC. REMINDER: Tomorrow is @MEActNet PACE to the Capitol Campaign.
Join #MEAction NC in Raleigh on November 3, 2026! #MEAction North Carolina is joining the national Pace to the Capitol campaign. You're invited to join us! On Tuesday, Nov. 3 we're gathering at the North Carolina State Capitol in Raleigh to raise awareness of ME/CFS. 🧵
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It's #MedicaidMonday! On Oct. 29, a federal judge ruled that CMS exceeded its authority when it added an extra hurdle to Medicaid’s “medically frail” exemption. The fight isn’t over, but happy to have a win to share! Join us! meaction.net/post/a-medicaid… #pwME #Medicaid
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#MEAction Network retweeted
We will call on our representatives to take action. We'll set up a symbolic bed and hand out flyers to raise awareness of ME/CFS and make visible  the millions of lives disrupted by this disease. Details: 🗓️ Tuesday, November 3, 2026 ⏰ 12:00–1:00 PM meaction.net/pace-to-the-cap…
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#MEAction Network retweeted
Join #MEAction NC in Raleigh on November 3, 2026! #MEAction North Carolina is joining the national Pace to the Capitol campaign. You're invited to join us! On Tuesday, Nov. 3 we're gathering at the North Carolina State Capitol in Raleigh to raise awareness of ME/CFS. 🧵
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Join us today at 3 pm ET! Denise Lopez-Majano and the caregivers joining her bring many years of experience and hard-earned wisdom. #caregiver #pwME #MECFS #MyalgicEncephalomyelitis
We are just 2 days away from kicking off #NationalFamilyCaregiversMonth! We will be starting with a roundtable discussion with long-time caregivers facilitated by Denise Lopez- Majano on Nov. 1st at 3:00 pm ET: “Things We Caregivers Wish We Had Known.” meaction.net/event-details/t…
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#MEAction Network retweeted
Replying to @MEActNet
@MEActNet Caregiver Discussions, Nov. 1 & 15 12 pm PT: Online conversations on caregiving lessons and strengthening relationships through chronic illness, w/ Denise Lopez-Majano & Kim Moy. meaction.net/post/join-our-c…
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Your vote is sacred - NOT SCARY! Let's use it! Early voting is still available in some states! Each state has different processes but we have gathered resources for you to make it easier to carry out your voting plan! ow.ly/yRZ15102CvG #DisabilityVote #CripTheVote #pwME
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We are just 2 days away from kicking off #NationalFamilyCaregiversMonth! We will be starting with a roundtable discussion with long-time caregivers facilitated by Denise Lopez- Majano on Nov. 1st at 3:00 pm ET: “Things We Caregivers Wish We Had Known.” meaction.net/event-details/t…
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Join our free Gentle Movement & Rest class Friday, Nov. 6th at 2 PM EST/ 7 pm GMT. meaction.net/event-details/m… This 30 minute class is designed specifically for #pwME and will be hosted virtually. We are glad to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga.
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Hundreds of people have already registered for our #PaceToTheCapitol campaign. This is a huge moment for the ME community & we are so glad you are a part of it! There are many ways that you can get involved during the campaign from now until May 12th. ow.ly/Brxw5102a5K
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Ready for some spooky fun? You're invited to our Halloween art workshop TOMORROW - Oct 29th at 12 pm ET- online & free to join! Orion Romero will be hosting! Check out the article for lots of spoonie-friendly fun inc. a dramatic reading by @corywysz! meaction.net/post/halloween-…
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This November, for National Family Caregivers Month, we’re joining forces with @PlzSolveCFS, @OpenMedF and @BatemanHorne to highlight resources, events, and community support for caregivers. Together, we’re stronger, and united in care. Follow and share using #UnitedForME
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