Group of clinicians, scientists and community members in response to the emergence of AFM as a disabling disease. Here to generate, share and tweet knowledge.
World
Joined December 2020
- Tweets98
- Following0
- Followers125
- Likes22
Acute Flaccid Myelitis Working Group retweeted
Our Acute Flaccid Myelitis (AFM) resource document compiles frequently used resources about AFM from across the AFM community.
Grow your knowledge about AFM today. View the full document and the resources within at: srna.ngo/afm-resoucesdoc
![[Image description: blue background with white words in the center that read, "Acute Flaccid Myelitis (AFM) Resources for Families and Clinicians." In the bottom left corner is the CDC logo. In the bottom right corner is the SRNA logo.]](https://pbs.twimg.com/media/FeTQOWtXwAACp2n.jpg?name=orig)
ALT [Image description: blue background with white words in the center that read, "Acute Flaccid Myelitis (AFM) Resources for Families and Clinicians." In the bottom left corner is the CDC logo. In the bottom right corner is the SRNA logo.]
Acute Flaccid Myelitis Working Group retweeted
Such a great exchange of information and ideas between the European and US Acute Flaccid Myelitis Working Groups @AFMWG. An honor and a privilege to return the favor 4yrs later and host Dr. @JelteHelfferich for a visit to CO @ChildrensCO_Pro to see our programs #EVD68 #thisisAFM
A great visit to UMC Groningen: impressed by all the work being done to better understand enteroviruses #EVD68 and acute flaccid myelitis #afm ...lots of opportunities for continued collaboration. A big thanks to our gracious hosts @bertniesters
Acute Flaccid Myelitis Working Group retweeted
MMWR: Enterovirus D68 has been circulating at high levels across the US this summer-fall causing asthma-like wheezing respiratory illness in children. Acute flaccid myelitis cases followed previous #EVD68 waves: be alert for pts presenting w limb weakness cdc.gov/mmwr/volumes/71/wr/m…
Acute Flaccid Myelitis Working Group retweeted
#Newpub in @JournalofNeuro1 by @CUPhysMed faculty @NHausMD on Enterovirus A71 causing meningoencephalitis and acute flaccid myelitis in a patient receiving rituximab.
Acute Flaccid Myelitis Working Group retweeted
JPeds: Timely, important description of challenges in recognition of acute flaccid myelitis. Only ~1/4 cases promptly diagnosed, ~3/4 with non-AFM initial dx leading to delayed AFM dx/tx @AFMWG jpeds.com/article/S0022-3476…
Acute Flaccid Myelitis Working Group retweeted
Recently I've heard from collaborators in the US & Europe that #Enterovirus #D68 #EVD68 cases are on the rise.
EV-D68 is what I worked on pre-pandemic, & hope to go back to.
A significant autumn 2022 wave has been a recent concern.
So what is D68 & what might this mean?
1/17
ALT From https://syndromictrends.com/ - doesn't break down between Rhino & Entero viruses, but does show a recent increase in them.
Acute Flaccid Myelitis Working Group retweeted
I’m chairing the session on #AFM research updates on 8/25. The lineup is awesome, very exciting research will be discussed: the latest on #EVD68 epidemiology visualization, disease mechanisms, diagnostics, treatments, and vaccines. Free to all, spread the word 📣📣
August 18th 1:00-3:40 PM EST.
AFM Diagnosis and Acute Management
jhjhm.zoom.us/webinar/regist…
August 25th 1:00-3:40 PM EST.
AFM Research Updates
jhjhm.zoom.us/webinar/regist…
September 8th 1:00-3:40 PM EST.
Management of long-term consequences of AFM
jhjhm.zoom.us/webinar/regist…
Acute Flaccid Myelitis Working Group retweeted
As AFM Awareness Month comes to an end, we want to remind everyone that there is power in togetherness and collective action. We at SRNA also advocate for other rare neuroimmune disorders that share similar symptoms. We are, indeed, stronger together.
Acute Flaccid Myelitis Working Group retweeted
3 first report of AFM from Chile – at Concepción, Chile
Acute Flaccid Myelitis Working Group retweeted
In this video I break down the first case of #polio in the US in nearly a decade youtu.be/P-5KGHzHTsI
Acute Flaccid Myelitis Working Group retweeted
For the information and resources needed to care for children and youth with AFM explore our course, Acute Flaccid Myelitis - What Pediatricians Should Know About Diagnosis, Treatment, and Care of Pediatric Patients. bit.ly/Ped-AFM
Acute Flaccid Myelitis Working Group retweeted
Lancet: A global collaborative review and consensus recommendations on the causes, clinical diagnosis & management of acute flaccid myelitis by the #AFM Working Group #thisisAFM #EVD68 #EVA71 thelancet.com/journals/lance…
Acute Flaccid Myelitis Working Group retweeted
A diagnosis of acute flaccid myelitis can be devastating. #AFM is an uncommon, but serious, paralytic condition that mostly affects children. Read stories of personal journeys with AFM. bit.ly/301Bcxy #NationalAFMDay
Acute Flaccid Myelitis Working Group retweeted
Another rise in #AcuteFlaccidMyelitis cases is anticipated this fall. Read what CDC and partners are doing to address gaps in knowledge about #AFM etiology and pathogenesis in @CDC_EIDjournal: bit.ly/30le1P0.
