We're Canada's first and only ALS patient-led nonprofit organization fighting to #EndALS forever. Join us! Charitable organization BN: 791367204 RR 0001
Canada #EndALS
Joined April 2020
- Tweets2.1K
- Following707
- Followers1.4K
- Likes10.8K
ALS Action Canada retweeted
An incredible collaborative effort = an amazing result!
If you missed the live event yesterday, please view the recording for the next couple of weeks at alssuperfund.ca @DevinCuddy @JimCuddy @FriedgeHNIC @DougMaclean @tsnjamesduthie @PR_NHL @NHLAlumni
#NHL #EndALS
ALS Action Canada retweeted
A huge thank you to everyone who joined us at the ALS Advocacy Reception in Ottawa! 🎉
We had 145 attendees, including the Honourable Minister of Health Mark Holland and hockey legends Wayne Gretzky and Darryl Sittler. Special thanks to ALS Caucus Chair Peter Fragiskatos.
Together, with SLA Quebec, ALS Canada, and the Canadian ALS Alliance, we will keep building on this momentum to transform the ALS landscape in Canada!💙
#ParliamentForALS #ALSAwareness #EndALS
ALS Action Canada retweeted
Yesterday, #NHLAlumni Mark Kirton spoke to Canada’s Parliament about his fight against ALS, as well as the importance of raising both awareness and funding to find a cure.
Joining him were @WayneGretzky, Darryl Sittler, Brendan Shanahan, Glenn Healy, Laurie Boschman, Colin Campbell, and countless other hockey and parliamentary supporters.
Stay tuned for the full story and how you can participate in Mark’s fight against ALS.
ALS Action Canada retweeted
Gretzky leads NHL icons in support of ALS fund, 'hero' Kirton ⤵️
nhl.com/news/nhl-community-h…
ALS Action Canada retweeted
⏰ The countdown is on! The ALS Advocacy Day is just a few days away. Don’t miss out—follow us to keep up with the latest news! #ALSCanada #ENDALS
ALS Action Canada retweeted
Suma Babu, MBBS, MPH, Co-Director of the Neurological Clinical Research Institute is presenting this morning at the 2024 NINDS Nonprofit Forum. Dr. Babu will discuss the National Academies of Medicine ALS Report Recommendations. #HealeyHope
ALS Action Canada retweeted
Great news for P.E.I. caregivers! The At Home Caregiver Benefit will provide up to $1,500/month. Call 1-800-371-8245 for eligibility. Financial support for caregivers is essential + key in our advocacy. #CdnCaregiving #CdnPoli #PEIHealthcare @markmclanepei
bit.ly/4ddN16K
ALS Action Canada retweeted
We’re excited to be at #ENCALS2024 to share more about our work in #ALS and learn from others who share our mission of one day ending the suffering caused by #neurodegenerativediseases. More details below.
ALS Action Canada retweeted
Thank you for the kind words but my focus is trying to make a difference for those ALS warriors & families that are suffering with this devastating disease called ALS & hoping for a cure. I will never stop battling. @DougMaclean @Ron_MacLean @JShannonhl @PR_NHL @NHLAlumni #ENDALS
This #ALSAwarenessMonth, we honor Mark Kirton, who reminds us, "ALS can strike anyone, at any time." His resilience drives our fight to #EndALS.
Learn about his journey and join the movement for a cure: alsactioncanada.org/als-stor…
#ALSActionCanada #ALSAdvocates
ALS Action Canada retweeted
As we observe Lou Gehrig Day, let's remember his resilience and raise awareness about ALS—a disease that affects countless lives. Join the movement for a cure! 💙
#ALSawareness #LouGehrigsDisease #FightALS #HopeForACure #ALSActionCanada
ALS Action Canada retweeted
The Awesome Lemonade Stand 🍋 is a perfect Positive Reflection presented by @KubyEnergy!
👀: rtrj.info/060324ALS
ALS Action Canada retweeted
Yesterday we felt it all: love, loss, joy and sadness. What a thing it is to be human. We miss you so, Chris. We keep going because that’s what you told us to do.
And how about those pitches? ❤️ mlbn-distro.mlb.com/20240602…
ALS Action Canada retweeted
We lost Rob Borrow today aged 41 and a great campaigner for our MND community . He was a famous rugby player with a young family . We all feel like having lost a friend . He raised the profile of MND immensely plus none stop fundraising .
ALS Action Canada retweeted
#HealeyALSPlatformTrial 2morow 4/11 @ 5pmEST: Join us 4 updates by @MeritCudkowicz, who'll be joined by #PlatformTrial Reg E Co-Lead Shafeeq Ladha, MD & several biostat's, to provide community update on Reg E's investigation of Trehalose by @seelostx. Reg: bit.ly/3KKsme2
ALS Action Canada retweeted
Top line results of the TUDCA-ALS trial are announced at tudca.eu/top-line-results-an….
The study did not meet the primary endpoint and there were also no significant differences observed across secondary endpoints at 18 months. Full results will likely be presented at ENCALS 2024.
ALS Action Canada retweeted
Join forces with us and all Canadian NHL teams in supporting the ALS Super Fund! Led by ex-NHL player Mark Kirton, tonight's 50/50 draw is making a difference for those battling ALS. 💙
BUY NOW | canucks.com/5050
FIND OUT MORE | alssuperfund.ca/
ALS Action Canada retweeted
Thank you Vancouver Canucks who will be supporting our ALS Super Fund during Saturday nights Game 50-50 raffle. Impressive how the 7 NHL Canadian teams
have banded together to support finding a cure for ALS @DougMaclean @Ron_MacLean @NHLAlumni #endals @Canucks #nhl @JShannonhl
The #Canucks and the @Canucksforkids Fund announced today that proceeds from the 50/50 jackpot on Saturday, March 23rd will support the ALS Super Fund to continue the fight to end ALS.
DETAILS | vancanucks.co/3VujKiw
ALS Action Canada retweeted
The Canucks are raising money at tomorrow nights game to support the ALS Action Canada Superfund! This is part of an initiative by all 7 Canadian teams to support the fight against ALS! The proceeds of the 50/50 draw will go to support the ALS community in BC. @ALSAction @ALS_BC
ALS Action Canada retweeted
Grateful to have had the chance to discuss how new technologies, a better understanding of the underlying drivers of motor neuron cell death and the development of a #biomarker driven approach is leading to real progress in treatments of #ALS at #adpd2024 .
ALS Action Canada retweeted
This decision by @NICEComms is utterly wrong and is likely to deny a life-saving treatment for people with SOD1 #ALS #MND that is already approved in Europe and the US. A terrible, wrong-headed decision that must be changed.
@DHSCgovuk @mndassoc @MNDoddie5 @MNDScotland
Last week, we heard disappointing news that the National Institute for Health & Care Excellence confirmed its decision to appraise tofersen through the Single Technology Appraisal route.
We join @MNDScotland & @MNDoddie5 in our statement which outlines the implications below👇