Award Winning Patient Advocate | Rare & Autoimmune Diseases | Data & Analytics Consultant | Science | #IBD #Hypophosphatasia Views are my own
Mississippi, USA
Joined August 2011
- Tweets12.4K
- Following884
- Followers3.2K
- Likes20.9K
Aaron Blocker retweeted
Maybe it’s because of my cardiac arrest, but I don’t understand why patients get upset when I say their symptoms are due to aging. 95% of what I diagnose is because we get old. I always bring it up as delicately as possible, but like do you know how lucky you are? I see patients in their 80s and think, “man I hope I get there one day.” So many things in this world can kill you. You’ve beaten the odds. Honestly, congratulations, you’re old.
Aaron Blocker retweeted
True privilege to moderate our panel discussion last night @DirtyHabitDC ! Special thanks to Sumona, Ugo, Melodie & Danielle for providing tips and speaking TRUTH !
Thank you to the organizing teams and @DCharabaty for having me 🙏🏾
#DDW2024
Aaron Blocker retweeted
#GITwitter! Please go and hear the recommendations! This is a way to be a wonderful advocate for your pregnant patients with #IBD and their babies. #DDW2024
If you’re at #DDW2024, check out the Helmsley-supported @PIANOIBD study presenting preliminary results from the first global consensus conference on pregnancy and inflammatory bowel disease.
A multidisciplinary team will prepare evidence-based recommendations surrounding all aspects of pregnancy in patients with IBD: from fertility, to pregnancy and delivery, to infant outcomes.
The session will be held on Sunday, May 19 at 10AM in Ballroom B, session #3210.
Aaron Blocker retweeted
Conner is one of my true heroes. He a 7th grader with Duchenne muscular dystrophy, a degenerative disease. He comes to my office each year to talk about funding treatments and cures and he’s the bravest friggin kid I know.
Aaron Blocker retweeted
PR pro tip (as a former PR/Comms pro): Before reaching out to a journalist/writer/blogger, know your facts and actually read the story before you berate someone for no reason. Being aggressive and wrong isn't a good look.
Aaron Blocker retweeted
Meet @aaronblocker_ - an ultra-rare disease & Crohn’s patient advocate 🦓
Every story counts in #raredisease research & we mean it when we say we want to hear from YOU!
Join us today at TheInsighters.com to share your story with those at the forefront of healthcare 💡
Aaron Blocker retweeted
Join us for the IBD Insider: Patient Updates from the Crohn's & Colitis Congress happening on February 27th at 8pm EST! Link in bio for registration!
@AaronBlocker_
@CrohnsColitisFn
#CCCongress24 #crohnsandcolitisfoundation #aga #crohns #crohnsdisease #uc #ulcerativecolitis #ibd
Aaron Blocker retweeted
It's day 2 of #CCCongress24 and we are about to kick things off with the keynote address! Stay tuned for live updates here and on our Instagram and Threads (@ crohnscolitisfoundation). You can also follow along with our patient reporters @LetsTalkIBD and @AaronBlocker_.
Aaron Blocker retweeted
🎙️🖐️Check check! We are 30 minutes away from officially kicking off #CCCongress24. Follow along for live updates here as well as our Threads and Instagram (@ crohnscolitisfoundation). Our patient reporters @AaronBlocker_ and @LetsTalkIBD will be sharing live updates as well!
Aaron Blocker retweeted
📍Pediatric IBD: Leading Care for Children
The first block of sessions is about to start! @AaronBlocker_ will be sharing updates from the pediatric session while @LetsTalkIBD covers IBD A to Z. #CCCongress24 – at Paradise, NV
Aaron Blocker retweeted
The Healio Patient Voice nominees are:
@ibdesis
@DCPatient, @GlobalLiver
@JohannahRuddy, @TuesdayNightIBS
@Colon_Survivor, @BlueHats4colons
@AaronBlocker_
@CeliacBeast
Aaron Blocker retweeted
Our patient advocates did a great job on #AGAAdvocacy Day! Thank you, @AaronBlocker_, @kimberlymhooks, @aboutIBD, @kmancera_ and Molly for sharing your stories and educating lawmakers about barriers to care GI patients face.
Some photos from AGA Advocacy Day on the Hill last week! Met my own local House Representative while advocating for Step Therapy and Prior Authorization reform Bills with Dr. Altayar & with my other amazing patient advocacy friends. #AGAAdvocacyDay #IBD #StepTherapy #PriorAuth
Aaron Blocker retweeted
Key for people who avoid NSAIDs!
Acetaminophen use during pregnancy has been well studied. Find out what the experts are saying about its use during pregnancy in our no-cost Fact Sheet. mothertobaby.org/fact-sheets…
Aaron Blocker retweeted
@AaronBlocker_ is an amazing advocate for the diseases that he lives with. Check out his new YouTube channel below.
Recently decided to start a YouTube channel to dive deeper into longer form videos to talk about IBD, Hypophosphatasia, living with both and anything in between. Check out my first video. #IBD #Hypophosphatasia #HPP #RareDisease
youtu.be/JRAtAlI4U2w
Aaron Blocker retweeted
Collaborating with @blackingastro, the Patient Voice noms are
@DCPatient @GlobalLiver
@Colon_Survivor @BlueHats4Colons
@AaronBlocker_
@JohannahRuddy @TuesdayNightIBS
@IBDesis @SouthAsianIBD
Erica Dermer, Celiac and the Beast
#HealioInnovators vote here: bit.ly/44wG5xG
Aaron Blocker retweeted
Wonderful group of nominees in Patient Voice Award category. Congrats to all nominees!! @CeliacBeast @AaronBlocker_ @JohannahRuddy @ibdesis @BlueHats4colons Donna Cryer from @GlobalLiver. Thanks @HealioGastro & @blackingastro for the continued support of patient advocacy #ACG2023
ACG's #ACG2023 Media Partner @HealioGastro will again host the #DisruptiveInnovators Awards on Oct. 22 in Vancouver!
✅Follow @HealioGastro today for all the nominees
🗳️VOTE thru 8/21 via Survey Monkey surveymonkey.com/r/VKL6CYJ
Thanks Dr. @EdwardLoftus2 & Healio Team! #GItwitter
Aaron Blocker retweeted
I was so proud of myself for losing my baby weight after my 2nd kid (pre-Crohn's diagnosis), that I just ignored how horrifically sick I was for years. Looking back, I hate how caught up in the diet-culture pressure I was. I LOVED being that skinny. Everything about it was wrong.
I have dealt with body image issues related to weight fluctuations due to #IBD from prednisone use, moon face to then being so skinny where people called me lanky or always commented on how I was too skinny. #MondayNightIBD #BodyImage