Alice W (@AliceWTMatter) header
Alice W (@AliceWTMatter) profile picture

Alice W

@AliceWTMatter

Alice, what's the matter? #bcsm Blogger. ER+ #BC Dx 2012 #BRCA2 so BM(x). CHAT: #bccww Tues 9pmGMT. Pls support @bccww & @MetUpUkOrg & each other.

 UK
alicewhatsthematter.com
Joined April 2013
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182Media
Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)Photo by Alice W (@AliceWTMatter)
Replying to @abcdiagnosis @bccww
Still wrapping my head around that, and thank you for everything you both do. Xxx #bccww – at Bedford, England
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So incredibly sad @nirobe96 to see your post in threads about Jo Taylor - She was one of the first people I truly connected with on Twitter after dx and IRL she was both as fierce and as lovely as she seemed online. RIP Jo. #bccww
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Leah Hardy 🇺🇦 (@LeahFHardy) profile pictureLeah Hardy 🇺🇦@LeahFHardy3 Aug 2023
This is a piece I never wanted to write. dailymail.co.uk/femail/artic…
LEAH HARDY investigates the enduring misogyny in medicine

LEAH HARDY investigates the enduring misogyny in medicine

In September 2021, London-based Leah Hardy was diagnosed with a highly aggressive form of breast cancer that had already spread to the lymph nodes under her arm.

dailymail.com
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There was a lot I didn't have room to include. Like the barbarity of experiencing hysteroscopy without pain relief. Like the fact that I wasn't scanned to check the extent of my endometriosis before hysterectomy - which meant the op had to be abandoned DURING THE PROCEDURE!
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Secondaries On The 2nd We’ve shared the #IStandByThe31 campaign today so want you to know the signs & symptoms of #MetastaticBreastCancer Sharing our infographics to highlight awareness if you've had a primary #breastcancer diagnosis #2ndsOnThe2nd #BreastCancerAwarenessMonth
Image from METUPUK (@METUPUKorg)
Image from METUPUK (@METUPUKorg)
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Confessions of a non-compliant patient (and no, it's not because we lack electronic reminders, phone apps, flashing pillboxes, or any of your spiffy tech) myheartsisters.org/2014/02/1… via @HeartSisters
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Complications with any standard op have small % risk, explained you may die BUT you are TOLD about every poss issue - yet #secondarybreastcancer ~30% will get incurable BC with a median life expectancy 2-3 yrs but people don't know red flags see below buff.ly/3rtTLs9
Image from Jo Taylor BEM (@abcdiagnosis)
Image from Jo Taylor BEM (@abcdiagnosis)
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My recent MRI shows that my cancer grew by 45% during the months my treatment was delayed by COVID19-related resource deficits. Respectfully asking all #antivaxxers and #antimaskers not to troll me over this sad outcome.
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nhs-galleri.org 1. If you haven’t seen this - one to check out & quickly.
Detecting cancer early

Detecting cancer early

The NHS-Galleri trial is looking at if a blood test can help the NHS to find cancer early when used alongside existing cancer screening

nhs-galleri.org
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Have you caught the most recent episode of @BreakTheBigC yet? We hear from the brilliant @abcdiagnosis and her story of being #busylivingwithmets You can listen here anchor.fm/breaking-the-big-c… @METUPUKorg #breastcancerawarenessmonth #STAGE4NEEDSMORE #mbc #bccww #cancertwitter
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Link below to our #abcdretreat for primary #breastcancer and #secondarybreastcancer people for "motivation and #exercise through recovery and beyond" Check website details and email me if you want to apply for next year. Here's a short video buff.ly/3GWG9uC #BCCWW
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Replying to @wendyg4073 @ThanksCancer
I also got told I can’t have HRT due to my mum having oestrogen receptive breast cancer (and I’ve already had cancer too) but I went to a menopause clinic and was told the risks of being so oestrogen depleted actually outweigh the increase cancer risk & they gave me a gel to use.
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#abcdretreat is FULLY booked! See details of our #abcdretreat for primary #breastcancer & #secondarybreastcancer people for "motivation and #exercise through recovery & beyond" If you want to add your details to next year check the link below #BCCWW buff.ly/2ToJv69
Image from Jo Taylor BEM (@abcdiagnosis)
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Why are we doing this? See why we need to be patient advocates and have a voice buff.ly/3zm5uuP #SecondaryBreastCancer #bccww #BusyLivingWithMets #IAmThe31 #Stage4 #metastaticbreastcancer #advancedbreastcancer
Image from METUPUK (@METUPUKorg)
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Sharing this for anyone living with #Cancer #BreastCancer related oestoporosis: see here for a survey by the ROS #BCCWW - #BusyLivingWithMets ⁦@METUPUKorg⁩ U.K. based only. theros.org.uk/latest-news/20…
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Why do we talk so much about removing the healthy breast in a #brca carrier? Here's why - we're looking at a 2-3% risk of breast cancer PER YEAR in that healthy breast. #brca1 #brca2 #breastcancer #genetics #ASBrS21 #bcsm #bccww
Kristalyn Gallagher (@Dr_KGallagher) profile pictureKristalyn Gallagher@Dr_KGallagher30 Apr 2021
#ASBrS21 Dr Barbara Smith: NSM for prevention in BRCA carries is extremely safe and should be offered as a risk reduction strategy for these patients. @ASBrS
Image from Kristalyn Gallagher (@Dr_KGallagher)
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Lesson learned from @Liz_ORiordan : don't just talk about exercise at #survivorship visit, but BEFORE and DURING #chemo. Even modest exercise can substantially benefit the short and long term survivorship outcome. #ASBrS21 #ASBrS2021 @HemOncWomenDocs #BCSM #BCCWW
Image from Sangeetha Kolluri, DO, FACOS (@BreastTexas)
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The discrepancies between what patients reported and what doctors reported were huge. Unacceptable. I say, unethical as well. Thanks for spotlighting this study & its troubling results, @after20yrs. after20yrs.com/2021/01/14/ca… #bcsm #cancer

Cancer Treatment Side Effects: Are Doctors Listening?

A recent study compared what patients said about side effects they were experiencing from radiation treatment with what their doctors reported.

after20yrs.com
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Please see our useful website providing lots of information for primary #breastcancer and #secondarybreastcancer patients buff.ly/2Shmy0A #bccww #bcsm #BusyLivingWithMets #IAmThe31 #Stage4 #metastaticbreastcancer #advancedbreastcancer
Image from METUPUK (@METUPUKorg)
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Replying to @danielphutton
Here's a write up on it Danny, it was presented in December at #SABCS20 #MedRadJClub @bccww after20yrs.com/2021/01/14/ca…

Cancer Treatment Side Effects: Are Doctors Listening?

A recent study compared what patients said about side effects they were experiencing from radiation treatment with what their doctors reported.

after20yrs.com
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True, very true xx #bccww #dyingforacure – at North West, England
LibbyMBC (@LibbyMbc) profile pictureLibbyMBC@LibbyMbc11 Nov 2020
Replying to @LibbyMbc
Also some early stagers live in denial about the possibility of recurrence and don't want to be reminded of the possibility. However, if a cure or better treatments were found it would be so much better than denial. #dyingforacure #dyingforresearch #stage4needsmore
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