Clinicians, scientists, laboratory experts, and patient representatives are gathering in Barcelona, Spain, for the first ERS Alpha-1 Antitrypsin Conference! The two-day meeting provides a forum to share new findings, exchange expertise, and explore future directions in Alpha-1 research and care. #ERSAlpha12026

What should you know about Alpha-1 and liver health? Hear from Dr. Teckman at the Kansas City A1F Education Day on Saturday, November 7th, as he presents "Alpha-1 Liver Disease." Don't miss this opportunity to learn more and connect with the Alpha-1 community! Register today: alpha1.org/event/kansas-city…

What could gene editing mean for the future of Alpha-1? In “A New Hope for Gene Editing,” author Gary Sernovitz shares his personal connection to Alpha-1 and explores research into base editing, an approach being studied to correct the underlying genetic mutation. Read about the science and its potential for the Alpha-1 community: alpha1.org/a-new-hope-for-ge…

A1F is proud to exhibit at the American College of Chest Physicians (CHEST) meeting in Phoenix, AZ, October 19th–21st. We’re joining leaders from around the world to explore the latest advances in pulmonary, critical care, and sleep medicine and raise #Alpha1Awareness! #CHEST2026

Living with Alpha-1 can affect more than your physical health. An Alpha-1 diagnosis can also bring emotional challenges for individuals and their loved ones. Mental health is an important part of overall well-being, and finding the right support can make a difference. Explore mental health resources, coping tools, and ways to connect with support through A1F: alpha1.org/mental-health/

Take the next step in understanding your lung health at the Kansas City A1F Education Day on Saturday, November 7th! Hear from Dr. Riley as he presents "Alpha-1 and My Lungs: Understanding Monitoring, Treatment, and Next Steps." Gain valuable insights into managing lung health and navigating life with Alpha-1. Register today: alpha1.org/event/kansas-city…

Every mile tells a story of determination, resilience, and commitment to the Alpha-1 community. During A1F Riding for a Reason 2026, riders, volunteers, families, and supporters gathered on Cape Cod for Escape to the Cape to raise awareness and critical funds to advance Alpha-1 research and the search for a cure. From meaningful tributes to shared accomplishments, the weekend celebrated a community united by a common purpose and its strength and dedication. Read more about this year's event and the people who made it possible: alpha1.org/a1f-riding-for-a-…

A1F Clinical Resource Centers (CRCs) from across the country recently came together at the A1F Leadership and Scientific Summit to share knowledge, discuss the latest in Alpha-1 research and care, and strengthen collaboration across the A1F CRC network. These centers provide access to healthcare professionals with expertise in Alpha-1 and serve as an important resource for patients and families. Find your local A1F CRC and connect with an Alpha-1 specialist near you: alpha1.org/find-an-alpha-1-s…

What are researchers discovering about Alpha-1? A1F’s September 2026 PubMed Articles feature recently published research from A1F-funded researchers, covering topics ranging from lung function and bronchiectasis to mental health, genetics, and more. Take a closer look at the latest findings and the research expanding our understanding of Alpha-1: alpha1.org/september-2026-pu…

Progress in Alpha-1 depends on collaboration across research, healthcare, and patient support. At the 2026 A1F Leadership and Scientific Summit in Miami, researchers, clinicians, A1F Support Group Leaders, and organizational leadership gathered to exchange ideas, share emerging research, and explore opportunities to improve Alpha-1 detection, care, and treatment. From the A1F CRC Forum to the Investigators’ Meeting and Support Group Leader training, the weekend highlighted the collective efforts helping move the Alpha-1 community closer to better treatments and a cure. Read more about the summit and its key discussions: alpha1.org/a1f-leadership-an…

Your plasma could support a therapy that someone with Alpha-1 depends on. During International Plasma Awareness Week, consider donating plasma to help make these essential therapies possible for patients who rely on them. Every donation counts. Learn more and find a donation center near you: pptaglobal.org/donate #IPAW2026

When advocates share their stories, they help bring Alpha-1 priorities to policymakers' attention. On September 15th, 30 A1F advocates met with House and Senate offices on Capitol Hill in more than 70 meetings to build support for the John W. Walsh Alpha-1 Home Infusion Act and the SOAR Act. Read more about their efforts and A1F advocacy in action: alpha1.org/a1f-advocacy-in-a…

Behind every plasma-derived therapy are hundreds of generous donors. A person with Alpha-1 needs about 900 plasma donations each year to receive treatment. This International Plasma Awareness Week, help us spread the word about the importance of plasma donation and its impact on the Alpha-1 community. #IPAW2026

International Plasma Awareness Week begins today! Dr. Mary Ryan will bring the Alpha-1 perspective to "More Than Medicine: What Plasma Makes Possible for Patients" today at 10 am ET. Hear from Dr. Ryan and other patients and experts about what plasma and plasma-derived therapies make possible for those who rely on them. Watch live on YouTube at youtube.com/GivePlasma and learn more at plasmaweek.org. #IPAW2026

Understanding the genetic differences behind Alpha-1 can help shape the future of research, diagnosis, and treatment. At the 30th Gordon L. Snider Critical Issues Workshop in Barcelona, A1F convened researchers, healthcare professionals, patient leaders, and industry partners worldwide to explore a clearer, more consistent framework for classifying SERPINA1/AAT variants. Read more about the discussions and their potential impact on the Alpha-1 community: alpha1.org/a1f-hosts-30th-gl…

Kick off International Plasma Awareness Week, October 5–9, with “More Than Medicine: What Plasma Makes Possible for Patients” on October 5th at 10 am ET! The webinar will feature Dr. Mary Ryan, an Alpha-1 patient and member of the A1F Fred C. Walsh Speaker Bureau, alongside other patients and experts sharing their perspectives on the important role plasma and plasma-derived therapies play for people living with rare and chronic conditions, including Alpha-1 Antitrypsin Deficiency (Alpha-1). Watch live on YouTube at youtube.com/GivePlasma and learn more at plasmaweek.org. #IPAW2026

Today, on World Oxygen Day, we’re highlighting the importance of access to supplemental oxygen for people who depend on it, including members of the Alpha-1 community. A1F continues to advocate for the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S. 1406), bipartisan legislation focused on improving access to supplemental oxygen and strengthening protections for those who rely on it. Make your voice heard by contacting your members of Congress and urging them to support the SOAR Act: mstr.app/aa36fb24-0a8a-4f1f-…

Stay informed and connected with the latest from A1F. Subscribe to receive updates on Alpha-1 research, educational resources, upcoming events, community news, and opportunities to get involved, delivered directly to your inbox. Sign up today and choose the updates that matter most to you: alpha1.org/subscribe/

Have questions about Alpha-1? The A1F Patient Information Line is here to help, providing trusted information, resources, and support for patients, families, and caregivers. Call 1-877-228-7321 to speak with a knowledgeable team member and get the answers you need. Learn more: alpha1.org/patient-informati…

Alpha-1 comes with terminology that may be unfamiliar or difficult to understand. The A1F Glossary of Terms provides clear definitions for commonly used words and phrases related to Alpha-1, helping patients, families, and caregivers better understand the information they encounter throughout their journey. Explore the glossary and expand your Alpha-1 knowledge: alpha1.org/alpha-1-glossary-…