@EpilepsyRUK & @Autistica Fellowship funded study exploring the neural markers of emerging autism in infants with epilepsy. @KingsCollegeLon @KingsIoPPN
Joined January 2021
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BEE_Study retweeted
Mark your calendars, it's Purple Day on the March 26th! Join us in raising awareness for epilepsy by:
💜 Wearing purple
💜 Baking purple treats
💜Test your knowledge with a quiz night
💜 Hold a raffle
💜 Host a coffee and chat morning
BEE_Study retweeted
*DAY 7* - Join our #UnderstandMyEpilepsy campaign to support children living with epilepsy in school. Add your name to our manifesto and be part of the change: supporter.youngepilepsy.org.…
BEE_Study retweeted
Exciting week for our EDiTS Team who are currently in Birmingham for the Seattle Club Conference.💡 Charlotte is one of the keynote speakers, where she will be sharing what the early development of TSC and epilepsy can tell us about later developmental outcomes! 🧠🌱#TSCresearch
Day 1 #SeattleClub2023 Conference (Thurs), we look forward to welcoming keynote speaker @CharlotteRTye Senior Lecturer @Kingspsychol & Fellow @EpilepsyRUK @Autistica – delivering keynote presentation: '#Epilepsy & #neurodevelopmental conditions: what can the #EarlyYears tell us?'
BEE_Study retweeted
📢 The Early Development in Tuberous Sclerosis (EDiTS) Team are still recruiting families of 3-5 year old children for our study of behaviour and development! 👥🧠 Scan the QR code below if you are interested! edits-study.org/preschool-ph…
BEE_Study retweeted
Check out the @BEEStudy_: Brain development in Early Epilepsy (BEE) Study! 👇
The UK study aims to track the development of babies 👶 with #epilepsy, in order to understand features that might predict later outcomes. Find out more, here! 👇
epilepsysparks.com/research-… #autism
BEE_Study retweeted
🗣 It's Global TSC Awareness Day 2023 and Mental Health Awareness Week 2023. Around the globe, activities will cover the 1 million people with TSC and the 1 billion with mental health challenges.
🤝 All this week we're highlighting TSC and it's impact on mental health.
BEE_Study retweeted
The @BEEStudy_ is inviting families with infants under 10 months of age with focal seizures and/or infantile spasms to take part in research on development and behaviour in early-onset epilepsy. Find out more here: bit.ly/3Zxcyk6
#EpilepsyResearch
BEE_Study retweeted
It's International #EpilepsyDay! On the #ERUKResearchBlog this month, we’re looking at how collaborations across borders – in research and in policy – will one day help our global epilepsy community live without seizures: epilepsyresearch.org.uk/our-…
BEE_Study retweeted
Check out our new video about the Preschool phase of the Early Development in Tuberous Sclerosis (EDiTS) Study! We're recruiting families of children aged 3-5 years to participate in the study and help us learn more about behaviour and development👤🧠 youtu.be/GdxkQbnpZzA
BEE_Study retweeted
📢 Do you have a child aged 3-5 years and would like to contribute to behaviour & development research? Check out the Early Development in Tuberous Sclerosis (EDiTS) Study! For more information about how you can get involved check out our website: edits-study.org/preschool-ph…
BEE_Study retweeted
These reflections from one of the parents who took part in the BEE-PP project show why the lived experiences of affected families must be integrated into our research.
💻We asked a parent from the BEE-PP focus group to complete a blog post describing their experience of taking part in the study, and reflecting on the outputs generated by the project.🐝 Check it out in more detail here: beestudy.co.uk/findings
BEE_Study retweeted
⬇️⬇️ Check out the parent blog post from our Infant Epilepsy Parent Priorities project below! #BEEStudy #PPI
💻We asked a parent from the BEE-PP focus group to complete a blog post describing their experience of taking part in the study, and reflecting on the outputs generated by the project.🐝 Check it out in more detail here: beestudy.co.uk/findings
BEE_Study retweeted
A great video put together by the @BEEStudy_ team describing the lived experiences of families with children with early-onset epilepsy. Such important work! Watch the full video via the link below.
📢Want to know more about our BEE-PP project? This video shows the importance of understanding the experiences of families with children with epilepsy, and what parents/caregivers would like future research to prioritise.🐝
Watch the full thing here at: beestudy.co.uk/findings
BEE_Study retweeted
Great to see this important work highlighting the research priorities of parents and carers of children with early-onset epilepsy- check out the full video ⬇️
📢Want to know more about our BEE-PP project? This video shows the importance of understanding the experiences of families with children with epilepsy, and what parents/caregivers would like future research to prioritise.🐝
Watch the full thing here at: beestudy.co.uk/findings
BEE_Study retweeted
Challenge yourself to make a difference this March!
Move purple for Purple Day and help children and young people with epilepsy to live life to the fullest! 💜
BEE_Study retweeted
Our charity is dedicated to epilepsy awareness
Talk to us, we're here to listen & support 💜
Find out more or use our free resources
Visit 🌐thevoiceforepilepsy.co.uk
Or email 📧 [email protected]
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#epilepsy #epilepsyawareness #epilepsywarrior #epilepsycharity
BEE_Study retweeted
Dr @CharlotteRTye provides today’s Top 5 Research Roundtable presentation, as selected by journalist @andypeaps. Dr Tye's research is investigating what early development can tell us about the link between epilepsy and autism.
Full presentation here: youtu.be/gqd-6uGOmXM?t=619
BEE_Study retweeted
This week on #SeizingLife Dr. Renée Shellhaas of @MottChildren and a panel of experts provide everything you should know about infantile spasms from diagnosis to treatment options.
Watch now: bit.ly/3pi0DH1
@umneurosciences, @UMichChildNeuro, @MottDocs,
BEE_Study retweeted
Applications for our exciting postdoc position on the @BEEStudy_ close tomorrow Nov 10th (midnight) - get in touch with any questions!
🚨Postdoc alert🚨
Interested in the overlap between epilepsy & autism? Join the @BEEStudy_ tracking brain development of infants with epilepsy to identify predictors of behavioural outcomes. Deadline Nov 10th.
Pls RT & get in touch with any questions!
jobs.kcl.ac.uk/gb/en/job/035…