@BFureman

Change the outcome. @EpilepsyFdn Chief Outcomes Officer. Former NINDS. PennState Neuroscience. CedarCrest Genetic Eng. #EpilepsyLHS #EpilepsyEquity

 Maryland, USA
epilepsy.com
Joined March 2019
  • Tweets29
  • Following118
  • Followers141
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Want to help make epilepsy.com an even more useful resource for people with #epilepsy? Sign up for the chance to participate in a 45-min virtual usability testing session. All selected participants will get a $20 Visa gift card. Sign up here: bit.ly/2TF2rOy
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Sleep problems are common in #Dravet with > 75% of parents reporting issues. This year we’ve added sleep medicine to our comprehensive clinic! 💤 ⁦@curedravet⁩ Genetic Epilepsy program expands with sleep specialist and neuropharmacist | The Arcuate arcuate.org/genetic-epilepsy…
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#EpilepsyLHS will be there, ready to learn, ready to teach, ready for CHANGE! #LNCC #HealthierTogether
Learning Health Networks@LearningNetwrks27 Jan 2021
Learning Health Networks will gather virtually tmr to collaborate, share seamlessly & steal shamelessly from each other as we work to be #HealthierTogether If you're joining us, use #LNCC, or follow our feed Thurs & Fri for highlights! @IROCNow @ImproveCareNow @NPCQIC @sps4kids
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Neurologists say direct causality has not been proven between neurologic complications & the #COVID19 #vaccine. They say the benefits of the vaccine outweigh the small potential risks for #GuillainBarrésyndrome, #Bellspalsy or other #neurologic disorders.bit.ly/3bQFWMX
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If you’re a medical professional that would like to make a positive change for #AfricanAmericans w/epilepsy, we hope you will join @efkentuckiana via Zoom on this Friday, January 15th from 4:00 p.m. – 5:00 p.m. EST Register here: efky.org/epilepsyequity.html
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Don't forget to join us tonight at 7 p.m. ET for a Facebook Live on the COVID-19 Vaccine with answers from experts in infectious disease and epilepsy. Bring your questions! Cannot attend? The recording will be in the "videos" section on our Facebook page after the event.
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brandy fureman retweeted
CURE Epilepsy@CureEpilepsy10 Jan 2021
Patient participation in epilepsy clinical trials is essential to create new safe and effective therapies. Dr. Darcy Krueger of Cincinnati Childrens Medical Center provides a detailed explanation of how patients can get involved on the new #SeizingLife. cureepilepsy.org/seizing-lif…

Epilepsy Drug Development: How Patients Can Make An Impact

We explore the importance of clinical trial participation with Dr. Darcy Krueger.

cureepilepsy.org
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brandy fureman retweeted
Sonya Dumanis@SoDumanis8 Jan 2021
Have a novel #solution for #epilepsy challenges? Need #investment? Submissions now open @EpilepsyFdn. Go to epilepsy.com/sharktank to learn more
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Partners Against Mortality in Epilepsy (#PAME) hosts a free webinar Dec 7th @ 2:30pm ET for advocates, researchers, clinicians, families. View program & watch at pameonline.org/2020. It will also be streamed via FB Live on the @AmEpilepsySoc FB page. Pls RT! #epilepsy #SUDEP
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Free advice 😌
LGS Foundation@LGS_Foundation7 Dec 2020
#AES2020 Session on Career Pathways: Research starts now! Look at this line up! @TracyDixonSalaz @BFureman @daveauerbach @Fkalume1 @Joaquinlugo17 #JessicaRoland @Go3than #LaurenHarteHargrove @HowardNeuroLab #BoasLevi #JacyWagnon #JoyKeller #JenniferBrummet
brandy fureman retweeted
Sonya Dumanis@SoDumanis17 Jun 2020
Hot off the presses - read the @EpilepsyFdn #research quarterly June 2020 Edition featuring @dannydidorg and more: bit.ly/3fqF7cu
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Tracking testing capacity may be just as important as tracking cases.
Scott Gottlieb, MD 🇺🇸
@ScottGottliebMD10 Mar 2020
Analysts at @AEI have started a tool @COVID2019tests to track total #coronavirus testing capacity on a per-patient per-day basis in U.S. Follow @COVID2019tests for regular updates as new labs are able to expand capacity. Email [email protected] with additions and updates.
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Having a great day with my Rare Epilepsy Network partners at the #WalktoEndEpilepsy in DC!
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I'm supporting Walk to End Epilepsy 2019 - DC! do.nr/z63rl via @DonorDrive
Double-blind, randomized, placebo-controlled study of trofinetide in pediatric Rett syndrome n.neurology.org/cgi/content/…
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brandy fureman retweeted
Sonya Dumanis@SoDumanis27 Mar 2019
New #epilepsy #research newsletter from @EpilepsyFdn is out! Learn about new therapies and opportunities: bit.ly/2YiFG0a #EpilepsySoutions #EndEpilepsy
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The Epilepsy Innovation Institute (Ei2) is leading an effort to better understand an individual's brain network with the My Brain Map initiative. This "Google Map" for a person's brain can help improve diagnosis and care. More about My Brain Map: bit.ly/2qA2pp6
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Be part of the team creating an Epilepsy Learning Healthcare System! Learn more from @alisonkukla
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