Ruby was taken by #rhabdomyosarcoma 2 weeks before her 7th birthday. She was amazing. We fundraise for better treatments and a cure. Over £245k raised so far.
Scotland, United Kingdom
Joined February 2020
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Thank you @thecourieruk for continuing to share Ruby’s story.
Research is key to improving outcomes for children with cancer🎗️
#ccam #rhabdomyosarcoma #childhoodcancerresearch
Perthshire family raise £245k for childhood cancer research in Ruby’s memory dlvr.it/TD9ltq
Ruby’s mum spoke to Laura Maxwell this morning on Good Morning Scotland.
Talking about Ruby, research and rhabdomyosarcoma.
You can listen via BBC Sounds from 08:42 - 08:47.
New research is key to changing the future for children like Ruby 🩷🦄
bbc.co.uk/sounds/play/m0022r…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
📢 The 1st spin-off project from the baseline review has been published!
The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇
onlinelibrary.wiley.com/doi/…
ALT The reforms project - project update banner
This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄
A lasting legacy for our girl. She would absolutely love it.
#teaminchture #bemoreruby
Thank you so much for a huge team effort in raising a massive £957 towards our .@BeMoreRuby1 bench. The pupils and staff enjoyed the fabulous baking everyone donated #TeamInchture 🌈 🦄
Be More Ruby day at @InchturePrimary!
So grateful to Ruby’s school for continuing to remember and celebrate her life 💗
More photos to come 😍
#teaminchture #bemoreruby
Remember! Raffle tickets will be on sale from 3pm in the playground today. All donations towards our .@BeMoreRuby1 bench 🦄 🌈 #TeamInchture
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS
And we even finished the day with some amazing cupcakes!!
It was a great day! Thanks so much for the cupcakes and marking Ruby’s birthday in such a lovely way 🩷
Happy birthday Ruby 🩷
You should be 11 today.
We should be celebrating with you.
Instead we are joining kindred spirits and clever minds to work on a resource to help children like you.
We miss you.
We love you 🩷💔
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
📢CAN YOU HELP?
We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: forms.gle/oYuozX5CrJ2jeiGz6
or email/DM us
Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄
We have some fantastic news just before Christmas!
The original systematic review as part of the REFoRMS project has just been published in the International Journal of Cancer!
This is a massive achievement for the team. Well done everyone involved! 😃
doi.org/10.1002/ijc.34808
Today on @theJeremyVine
Listen from 1:31:35 to hear Ruby’s mummy talk about anticipatory grief.
The life of a child forever changed by cancer is a life that creates grief, regardless of the outcome. So much more to say…
bbc.co.uk/sounds/play/m001sl…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC
Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma
alicesarc.org/arc/neive-warw…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories
Video credit: Shawry's Videos and Images #GoGold #CCAM #ChildhoodCancerAwarenessMonth #Covhour
We wish we lived nearer so we could visit this beautiful exhibition.
Thank you @PassTheSmileOrg for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display.
We wish Ruby was here to create more 💛🎗️
Our Art in the Park childhood cancer art exhibition is on display until 24th Sept
The woods near the Coventry Peace Orchard are so peaceful, it's a lovely space to display the art and stories
Video credit: Shawry's Videos and Images
#GoGold #CCAM
#ChildhoodCancerAwarenessMonth