PhD Psychometrician & advocate: lung cancer + patient-focused research. Views=my own. Director Patient FoRCe @LUNGevity 🇦🇺 in the 🇺🇸 who ❤️s travel! She/her
Tarpon Springs, FL
Joined January 2013
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Our paper reviewing f/up PRO data collection after treatment ends to learn about data quality. @NMahendraratnam @Jankim1222 @vishalbmd @EGHorod @pkluetz authors.elsevier.com/a/1dIJ-… #patientreportedoutcomes #clinicaltrials
Bellinda King-Kallimanis retweeted
🎥@BellKingKal of @LUNGevity discusses enhancing informed consent in #LungCancer clinical trials. Collaborative efforts aim to create patient-friendly pamphlets for better understanding:
➡️ow.ly/M06y50PP6Nt⬅️
#WCLC23 #CTSM
Bellinda King-Kallimanis retweeted
Impact of treatment for lung cancer is cumulative. People who have received 2 or more treatments report more #financialtoxicity and decreased ability to function as our Dr Upal Basu-Roy describes at #WCLC23 #lcsm
Bellinda King-Kallimanis retweeted
“Words matter is not a catchphrase but a truth for the lung cancer community”. @jillfeldman4 gives a critical talk on how we can all reduce stigma associated with lung cancer and it’s pretty easy to do 🙌 and promotes compassion and kindness #WCLC23 #patientcentric
Bellinda King-Kallimanis retweeted
Dr. @pompili_cecilia and I were delighted to chair a fantastic session on Precision Language with a phenomenal line up of speakers - @esinghimd, @BellKingKal, @jillfeldman4 & Andrew Ciupek from GO2, followed by an excellent discussion by @DrLFeldman1. Words matter! @IASLC #WCLC23
Bellinda King-Kallimanis retweeted
Our very own Dr @BellKingKal discusses what types of information patients prioritize in clinical trial informed consent forms. A one size doesn’t fit all ##wclc23 @IASLC
Sharing a friend’s fundraiser for an important cause, the leukaemia and lymphoma society! Donate and you might also get a lovely handmade gift 😌
I am participating in this fundraiser for @LLSusa
They have #LightTheNight events to raise funds for blood cancer research and support pts. Check my page on how to donate and get one of my signature lantern pouches and/or one of a kind lantern quilt !!!
pages.lls.org/ltn/nc/Triangl…
Bellinda King-Kallimanis retweeted
Upcoming webinar - Finding the Right Dose: Using Patient-Reported Data in Early Phase Clinical Trials. @JFreemanDaily will lead the discussion & Q&A, following panel presentations by @BellKingKal, Anne Loeser, @JaniceTNBCmets & Lee Jones: bit.ly/STARSdosewebinar #LCSM
Looking forward to this discussion with some amazing patient advocates @LeeJonesMBA, @AnnePCDI @JaniceTNBCmets - this is such an important and evolving topic. #pfdd
Join us for the webinar: Finding the Right Dose: Using Patient-Reported Data in Early Phase Clinical Trials. @JFreemanDaily will lead the discussion & Q&A, following panel presentations by @BellKingKal, Anne Loeser, @JaniceTNBCmets & Lee Jones: bit.ly/STARSdosewebinar #LCSM
Wonderful to work with patient advocates like @itsnot_pink and a fantastic group of stakeholders to look at collection and use of PRO data after treatment ends in cancer clinical trials #patientfocuseddrugdevelopmemt
Perspectives on Patient-Reported Outcome Data After Treatment Discontinuation in Cancer Clinical Trials
Thank you, @BellKingKal, for your leadership in getting this published. It was wonderful being part of it!
sciencedirect.com/science/ar…
Bellinda King-Kallimanis retweeted
Do you like herring? It’s a ubiquitous food around the Baltic Sea, including the beautiful northern German town of Lubeck. I love the inventive ways people enjoy herring here!
#visitgermany #germanytourism #FeelGoodGermany #gntbsummit2023 #Lubeck #germany
Bellinda King-Kallimanis retweeted
Lubeck became a UNESCO World Heritage Site in 1987. It’s historic center is lined with canals & features impressive gothic brick architecture. Barbara Schwartz discusses this charming destination, along with the Baltic Sea resort town of Travemunde.
#gntbsummit23 #visitgermany
Bellinda King-Kallimanis retweeted
This👇 is a 'real-world' problem!
Outcomes of people w/#EGFRm #lungcancer treated 1st line osi, BUT would NOT be FLAURA eligible
This is why we need #RWD - strict trial eligibility criteria = lack of generalizability
bit.ly/3OOeGSX
#ASCO23 @EGFRResisters @OncoAlert
Bellinda King-Kallimanis retweeted
Messinia is one of the most underrated archeological sites in Greece. It’s vast grounds feature a grand theatre and impressive temples, surrounded by idyllic mountains. I loved the delicious lunch at Ithomi, with an incredible view overlooking the site! #tbexpeloponnese #Greece
Yesterday the @NHCouncil held a meeting to discuss a topic that is so important: patient engagement in the digital health era. FDA Commissioner @DrCaliff_FDA discussed how we need an effective regulatory scheme to guide digital technology. #spes2023 @TheWRP4LC #lcsm
I also took with me a ribbon from the White Ribbon Project to raise awareness of the reality that anyone with lungs can get lung cancer and that we need to do more for our community in the digital space. @TheWRP4LC #lcsm
Bellinda King-Kallimanis retweeted
Cigna uses an automated system that allows “medical directors” (doctors employed by @Cigna) to deny a claim in 1.2 seconds without opening the patient’s file.
Please read this, share it, and help us (metaphorically) burn these companies to the ground.
Doctors at a major US insurance company deny tens of thousands of claims a month without even looking at patients’ files.
“We literally click & submit,” a former Cigna doctor told @ProPublica & @Capitol_Forum. “It takes all of 10 seconds to do 50 at a time.”
The inside story 🧵
Bellinda King-Kallimanis retweeted
No one deserves #lungcancer. Irrespective of their smoking history.
The shame of any smoking history can stop so many with lung cancer from advocating & sharing their story. Admire Terri Ann Di Julio. You are not alone.
terrianndijulio.com/post/the…
#lcsm #AnyoneCanGetLungCancer
Bellinda King-Kallimanis retweeted
🤷🏻♀️Wondering what instruments to use to evaluate physical and psychological effects of cancer? Patient experiences with cancer care?
👉This consensus-based @PhenXToolkit can help. #survonc
@RTI_Intl @BellKingKal @BellizziKeith @drew_galligan
Now out in @JNCI_Now! A new report from @DrN_CancerPCP et al introduces the #Cancer Outcomes and #Survivorship domain in the #PhenX Toolkit of validated measures for Phenotypes and eXposures used in #cancer #survivorship research
Read more here: bit.ly/40A6XeG
So proud 😍❤️😍
Excited to receive a bronze medal in the Landscape & Nature Photography category at the 31st North American Travel Journalists Association awards! Congrats to the other winners! “Golden Birdwatching Sunset on Lake Kerkini, Greece” #31stNATJAawards #VisitEurope #thermaltravels
