Supporting people with Cri du Chat Syndrome and their families
United Kingdom
Joined January 2012
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We had an amazing family fun day @chesterzoo. The venue, food, staff, & weather, just top class! Thankyou.Great to see so many new families too.
Next event: Cotswold, October 7th.
#criduchat #cdcsg
The new "The Square" @chesterzoo looks amazing. What a venue to have our lunch buffet.
The first of many of our New Family Fun Days @chesterzoo.
Check in at the gate and follow these signs.
We have face painting, guest speakers, food, drink and a whole zoo to explore!
Thanks to the Zoo for making us feel so welcome
Public release of the letter sent to @david_duguid and @TheLordFarmer regarding Dept of Health and Social Care's stance on the needs of those with Down syndrome over every other genetic condition and/or learning disability in the Down Syndrome Act.
criduchat.org.uk/update-down…
Today, we have released a statement regarding the future of our organisation. This can be read on our website: criduchat.org.uk/
The committee is meeting today, in person, for the first time since before Covid.
We're mostly going to be discussing an interim report by Damien on the future, if any, on the future of this charity.
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Most ridiculous statement of the month goes to @DisabledJess who has single handedly ignored conditions such as Cri du Chat syndrome and Downs syndrome, which are infact, biological. Genetic conditions are central to biology and disease formation. Your activists need educating!
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Cri Du Chat Support Group retweeted
Great to catch up with the @CDCSGUK committee today. Covid has had a huge impact on the charity and its members. I am undertaking an in-depth review of our position, aims and direction. If you have any ideas of how to reinvigorate a small national charity please do get in touch.
Nov 2022: Statement regarding future of the charity. criduchat.org.uk/nov-2022-st…
Along with our coalition of charities, a joint statement has been released regarding the #DownSyndromeBill.
geneticalliance.org.uk/gauk-…
Please read, understand our stance, open your minds to views from both sides, share and help us to make this Act more inclusive for all.
Cri Du Chat Support Group retweeted
Lovely @CDCSGUK story...
Rebekah’s Garden is finally complete tavistock-today.co.uk/news/r… – at Fenny Compton, England
Our Chairman released his debut children's picture book, written in large print and illustrated in bold colours so that all can enjoy.
He's featured us in his dedication page to spread awareness of #CriduChat during our awareness week.
amazon.co.uk/dp/1399924605/r…
