Kidney Warrior, Advocate & Wellness Ambassador at the Rogosin Institute
New York, NY
Joined December 2016
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Proud to have been invited to join Drs. Blosser, Murakami and Portuguese to provide the patient perspective on this important topic. authors.elsevier.com/a/1h61t… @blosserc @nymurakami @AJPortuguese @fredhutch @UWMedicine @CICTonline #transplant #nephrology #onconephrology
Cecilia Santana retweeted
Kidney patients deserve stable, reliable access to care.
In a new letter to the editor, DPC Patient Ambassador Kelda Cubit shares why Congress must restore protections for dialysis patients.
Read her story and learn how you can take action: dialysispatients.org/news/lt…
#PatientVoices #KidneyAdvocacy #PassRESTOREAct #CareWithoutBarriers #KidneyCommunity
Cecilia Santana retweeted
Registration is now open for the second webinar in our summer series! This one is on home dialysis. See the flyer and register at tinyurl.com/HomeDWebinar.
Cecilia Santana retweeted
🧪 Could a simple urine test help doctors better understand and monitor diabetic kidney disease?
New research suggests that urine biomarkers may offer a noninvasive way to assess kidney health in people with diabetes — a potential game-changer for early detection and treatment.
🔗 Read more: healio.com/news/nephrology/2…
What do you think — is this a step toward more personalized, patient-friendly care? Let us know in the comments!
Cecilia Santana retweeted
🎉 The House passed legislation to ban discrimination in organ transplantation against people with physical or intellectual disabilities. The Charlotte Woodward Organ Transplant Discrimination Prevention Act will ensure no one will be denied a place on the waitlist solely because of his or her disability.
Senators: Take action now. unos.org/wp-content/uploads/…
Cecilia Santana retweeted
Care partners—whether family or friends—are the quiet champions who help manage medications, attend appointments, offer emotional support, and walk beside patients every step of the way. But how can care partners find the support they need too? bit.ly/459UfV1
Please be aware... #HighBloodPressure can lead to #kidneydisease. Stay well! 💚
🩺 National Hypertension Awareness Week is a critical reminder:
High blood pressure often has no symptoms, but it can silently damage your body, including your kidneys.
For dialysis patients, the connection goes both ways—kidney disease can make it harder to control blood pressure, creating a dangerous cycle.
That's why it's so crucial for dialysis patients to regularly monitor and manage their blood pressure as part of their care. Awareness can save lives.
Cecilia Santana retweeted
The ALPINE1 Study is currently recruiting! If you’ve been told by your doctor that your kidneys are not working well and that you have high blood creatinine levels and increased protein levels in your urine, you may be eligible. Learn more: bit.ly/ALPINE1Study
Cecilia Santana retweeted
Did you know Gout Awareness Day is May 22? 🗓️
Join us for a special HealthLine webinar hosted in partnership with our allies at @GoutAlliance that will bring attention to how high uric acid levels and gout can signal underlying kidney disease.
Register: bit.ly/43tD6YJ
Happy #NationalNursesWeek! Keep up the wonderful work you do for your #kidney patients at Rogosin❕️💚
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Cecilia Santana retweeted
Pls help me find a kidney donor. I am listed with 2 hospitals, UIHEALTH CHICAGO 312-355-9820 Anita Pakrasi & Hackensack Univ Med Ctr, Hackensack, NJ. My coordinator in NJ is Toni & can be reached at 551-996-2608.Pls fill out the donor form & indicate donor for Christine Hernandez
👏🏼👏🏼👏🏼
You don’t want to miss this. Apply for a Home Dialysis University Scholarship:
📍 Chicago: Sept 14–16
💻 Virtual series through June 2026
🧠 Expert-led, case-based learning
🤝 Connect with peers + mentors
✅ For 2nd or 3rd year nephrology fellows
🔗 bit.ly/ASNhdu
Cecilia Santana retweeted
May kidneys frozen for transplantation be in our future.
Hats off to everyone working to make it happen.
nytimes.com/2025/04/14/healt…
