@ChrisSnowCGY

Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames

weaksidestrong.org
Joined February 2017
  • Tweets722
  • Following186
  • Followers23.5K
112Media
On this day 81 years ago Lou Gehrig died. At age 37. Across @MLB he will be honored, a grim reminder that were he diagnosed today his fate would be the same. Please watch this. Share this. Participate. Challenge others. And visit weaksidestrong.org to give. #weaksidestrong
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I could say so many things about this moment but @SteveGleason says it best — this life ain’t easy, but it sure is awesome. ❤️
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Had breakfast at 3 yesterday morning, sh#t & showered at 330 to catch a 7am flight to Seattle. Got to hang with the Snows, our friends living this crazy wonderful Life. We got to see our kids shag balls in the home run derby! All possible bc of our friends at @MLB – at New Orleans, LA
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The most incredible couple days with the most incredible people. This disease is the worst; the people fighting it — those who have it, their caregivers and families and those who are working to help end it — are just the best. ❤️ #EndALS #SnowyStrong #TeamGleason #NoWhiteFlags
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Guy on the right inspired my career. Guy on the left inspires me every day. @SteveGleason @MLB #HRDerby #EndALS – at Seattle, WA
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Huge thanks to the @NHLFlames development staff and all of the players. Now, let’s go get our names on THE Cup! 👊 – at Calgary, Alberta
Calgary Flames
@NHLFlames8 Jul 2023
SNOWY CUP CHAMPIONS!

Snowy Cup Champions

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NHL Draft 2023 made for the guy in the middle. ❤️
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The @NHLFlames have hired @OHLRangers Video Coach and Senior Developer Hendrix Hanes in the role of Developer and Data Scientist. DETAILS 📰: bit.ly/3N4RDR9
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I did today what the doctor suggested 4 years ago on this day. Watched my son’s Little League playoff game. Listened to a podcast while lying in the sun. Worked on my laptop, Cut the grass. That is, I did what brings me joy. Year 4 living with #ALS cut that list down. A lot. 1/3
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I can no longer drink any liquids. Can’t bathe myself. Can’t dress myself. Can’t drive. Can’t speak above a whisper. And yet I’m as energized as ever and the healthiest I’ve been since last summer. I’ve come to view health and disability as two very different things. 2/3
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I may be diminished, but I am not sick, and I am not deterred. Into Year 5 I go. As we say in our family —Improvise and overcome. 👊
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Chris Snow retweeted
Ian Browne
@IanMBrowne2 Jun 2023
As MLB recognizes Lou Gehrig Day today, a look at the relationship formed between Chris Sale and ALS survivor Chris Snow. mlb.com/redsox/news/chris-sa…

ALS fighter's battle is personal for Chris Sale

To Red Sox ace Chris Sale, the mere mention of ALS (known as Lou Gehrig’s Disease) stops him in his tracks, because it takes him back to his childhood, when he lost his grandmother due to the...

mlb.com
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We get to watch our favorite baseball player on Lou Gehrig Day. Go Foothills Expos, go. ❤️⚾️ #LouGehrigDay #4ALS #SnowyStrong #EndALS
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Mikael and Frida in partnership with Alberta Apparel are proud to announce a donation of $19,500 to @ALS_AB! The funds raised will support the Equipment Loan Program, providing much-needed equipment free of charge to individuals and families living with and affected by ALS ❤️
Photo of Mikael and Frida Backlund presenting a cheque to the ALS Society Of Alberta

ALT Photo of Mikael and Frida Backlund presenting a cheque to the ALS Society Of Alberta

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Mikael and Frida Backlund have been long-time supporters of the ALS Society of Alberta, working with them on a variety of initiatives and they have been personally responsible for raising over $400,000 for the non-profit. @ChrisSnowCGY shares why this work is so important ❤️
Chris Snow's quote on Mikael and Frida Backlund's work with the ALS Society of Alberta

ALT Chris Snow's quote on Mikael and Frida Backlund's work with the ALS Society of Alberta

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The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen. If you have any questions or have not yet had testing, @synapticure is here for you. Visit Synapticure.com to learn more.
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4 years and 51 spinal injections later my experimental drug is no longer experimental. So grateful, proud & relieved to be a part of bringing the first-ever genetically targeted ALS drug to market. Thank you ⁦@US_FDA⁩ for giving hope to the hopeless. fda.gov/drugs/news-events-hu… – at Calgary, Alberta

FDA approves treatment of ALS associated with a mutation in the supero

FDA approved Qalsody (tofersen) to treat patients with amyotrophic lateral sclerosis (ALS) associated with a mutation in the superoxide dismutase 1 (SOD1) gene (SOD1-ALS). Qalsody is an antisense...

fda.gov
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Are you a skilled programmer with a creative mind, collaborative nature and a passion for hockey? If so, we’d encourage you to apply to join the @NHLFlames Hockey R&D team. recruiting.ultipro.ca/CAL500… – at Calgary, Alberta
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My favorite baseball player got new cleats today and promptly personalized them. ❤️⚾️ #4ALS #LouGehrigDay #SnowyStrong #EndALS
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In 2014, I gave up breathing for lent... I'm grateful for resurrecting technology like the ventilator that has allowed me to have glorious moments like this with our family. It ain't easy, but it's awesome. Live the adventure. Thanks Kyle! – at New Orleans, LA
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