Meet the faces of the #chronicallychill #Podcast ๐๏ธ!
@alove_1980 @LingMendoza00 @LordBeeBrain @jazmen829 @bigjazz_724
Check out their bios on the official site (link in bio)
Chronically Ch(ill)๐๏ธ retweeted
What people donโt realize is that even prolonged use of mobility aids can disable you further (not the way the Ableds think).
Like Iโve been displaying signs of arthritis in my hands and shoulders since I was 25 because I started using crutches at 5.
Chronically Ch(ill)๐๏ธ retweeted
If you canโt even spell my illness or give me a quick summary of what it is you DEFINITELY shouldnโt be giving me advice about it.
Chronically Ch(ill)๐๏ธ retweeted
Things you shouldnโt say to someone who has chronic illness.
"People your age don't get that sickโ
"It can't really be that badโ
โYou are just being dramaticโ
โIf you just stopped thinking about it, it would go awayโ
What else do you hate hearing?
Chronically Ch(ill)๐๏ธ retweeted
One can still be disabled but not qualify for disability benefits. #EpilepsyAwarenessMonth #NEAM
Chronically Ch(ill)๐๏ธ retweeted
Proud of myself for not letting this drag me into a depressive state. I'm too antsy to go back to bed, though.
Chronically Ch(ill)๐๏ธ retweeted
Just a reminder that disabled people need rides to go grocery shopping, doctorโs offices, to the bar, to the cafeโnot just to cast a ballot that impacts you.
Due to recent events, the members of the Chronically Ch(ill) Podcast will be taking an undisclosed sabbatical to regroup.
We promise we won't be gone for too long!
Until then, everyone be safe and be blessed! ๐
Chronically Ch(ill)๐๏ธ retweeted
Today is International LGS Awareness Dayโข! ๐
Join us as we shine a light on #LennoxGastautSyndrome (LGS), a rare and severe form of #Epilepsy. By spreading awareness, we can support families affected by LGS and work towards better treatments and understanding.
#NeuroTwitter
From our very own, Jeanie ๐๐๐
#EpilepsyAwarenessMonth
#EpilepsyAwareness
#ChronicIllness
#Seizures
#Epilepsy
#ChronicallyChill #Podcast
It has now been 16 yrs since being diagnosed with #epilepsy. Being diagnosed later in life was a shock and also a challenge I wasnโt ready for. I love being able to help others learn more about epilepsy because Iโm still learning as well. #EpilepsyAwarenessMonth ๐โจ๐ช๐พ#letsdothis
youtu.be/8bCG8vfc-EE?si=B4PHโฆ
Episode 3 of The Chronically Ch(ill) Podcast is here!
โMe, My(self-advocacy), and Iโ can be watched now on YouTube!
Hope you enjoy! ๐๐ฃ๏ธ๐๏ธ
10 more minutes to go! ๐
Hey, everyone!
Chronically Ch(ill) Episode 2 drops Friday, 12am EST!
Catch the premiere here: youtu.be/9yao2BeM7-E?si=i80Fโฆ๐๐ฃ๏ธ๐๏ธ
Hey, everyone!
Chronically Ch(ill) Episode 2 drops Friday, 12am EST!
Catch the premiere here: youtu.be/9yao2BeM7-E?si=i80Fโฆ๐๐ฃ๏ธ๐๏ธ
WE'RE LIVE!!!
youtu.be/oHctycTAoQs?si=YIfoโฆ
Chronically Ch(ill)๐๏ธ retweeted
โI think the most frustrating part of living with fatigue, is that people donโt get it..But my body doesnโt work like that, sleeping does not give me energy back, I donโt wake up with full energy again": buff.ly/3TnIh6z by @bloomingmindxx #ChronicFatigue #InvisibleIllness
Chronically Ch(ill)๐๏ธ retweeted
.Our volunteer Dave, recently had a video telemetry stay at the Clinical Neurophysiology Department, Royal Infirmary in Edinburgh. He kept a diary of his experiences.
You can read part one of his diary on our website: buff.ly/3Yqi8r7
#VideoTelemetry #EEG #Epilepsy
Chronically Ch(ill)๐๏ธ retweeted
A number of HCWs responded to my post about masking and said they WOULD mask but have been instructed not to because it scares the patients.
This is why we need good public health information. We need people to understand that someone in a mask is NOT a threat.
Chronically Ch(ill)๐๏ธ retweeted
โผ๏ธโผ๏ธโผ๏ธโผ๏ธ
This is so important to know! Please do not assume we are OK just because we appear so. Until we are fully coherent and responding to you, WE ARE NOT! #epilepsyawareness

















