Chronically Ch(ill)๐ŸŽ™๏ธ (@ChronicallyChll) header
Chronically Ch(ill)๐ŸŽ™๏ธ (@ChronicallyChll) profile picture

Official Twitter Account for the Chronically Ch(ill) Podcast ๐ŸŽ™๏ธ

United States
Joined September 2024
Meet the faces of the #chronicallychill #Podcast ๐ŸŽ™๏ธ! @alove_1980 @LingMendoza00 @LordBeeBrain @jazmen829 @bigjazz_724 Check out their bios on the official site (link in bio)
7
2
11
1,364
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
What people donโ€™t realize is that even prolonged use of mobility aids can disable you further (not the way the Ableds think). Like Iโ€™ve been displaying signs of arthritis in my hands and shoulders since I was 25 because I started using crutches at 5.
43
611
50
7,674
226,391
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
If you canโ€™t even spell my illness or give me a quick summary of what it is you DEFINITELY shouldnโ€™t be giving me advice about it.
7
35
6
240
3,891
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
Things you shouldnโ€™t say to someone who has chronic illness. "People your age don't get that sickโ€ "It can't really be that badโ€ โ€œYou are just being dramaticโ€ โ€œIf you just stopped thinking about it, it would go awayโ€ What else do you hate hearing?
147
111
14
660
22,312
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
One can still be disabled but not qualify for disability benefits. #EpilepsyAwarenessMonth #NEAM
2
17
3
62
1,506
Proud of myself for not letting this drag me into a depressive state. I'm too antsy to go back to bed, though.
1
7
125
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
Just a reminder that disabled people need rides to go grocery shopping, doctorโ€™s offices, to the bar, to the cafeโ€”not just to cast a ballot that impacts you.
18
3,928
39
18,568
377,306
Due to recent events, the members of the Chronically Ch(ill) Podcast will be taking an undisclosed sabbatical to regroup. We promise we won't be gone for too long! Until then, everyone be safe and be blessed! ๐Ÿ™
3
5
119
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
Today is International LGS Awareness Dayโ„ข! ๐Ÿ’œ Join us as we shine a light on #LennoxGastautSyndrome (LGS), a rare and severe form of #Epilepsy. By spreading awareness, we can support families affected by LGS and work towards better treatments and understanding. #NeuroTwitter
10
1
23
1,548
It has now been 16 yrs since being diagnosed with #epilepsy. Being diagnosed later in life was a shock and also a challenge I wasnโ€™t ready for. I love being able to help others learn more about epilepsy because Iโ€™m still learning as well. #EpilepsyAwarenessMonth ๐Ÿ’œโœจ๐Ÿ’ช๐Ÿพ#letsdothis
2
8
128
youtu.be/8bCG8vfc-EE?si=B4PHโ€ฆ Episode 3 of The Chronically Ch(ill) Podcast is here! โ€œMe, My(self-advocacy), and Iโ€ can be watched now on YouTube! Hope you enjoy! ๐Ÿ’œ๐Ÿ—ฃ๏ธ๐ŸŽ™๏ธ
2
1
4
128
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
โ€œI think the most frustrating part of living with fatigue, is that people donโ€™t get it..But my body doesnโ€™t work like that, sleeping does not give me energy back, I donโ€™t wake up with full energy again": buff.ly/3TnIh6z by @bloomingmindxx #ChronicFatigue #InvisibleIllness
1
3
16
272
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
.Our volunteer Dave, recently had a video telemetry stay at the Clinical Neurophysiology Department, Royal Infirmary in Edinburgh. He kept a diary of his experiences. You can read part one of his diary on our website: buff.ly/3Yqi8r7 #VideoTelemetry #EEG #Epilepsy
4
2
18
1,985
Chronically Ch(ill)๐ŸŽ™๏ธ retweeted
A number of HCWs responded to my post about masking and said they WOULD mask but have been instructed not to because it scares the patients. This is why we need good public health information. We need people to understand that someone in a mask is NOT a threat.
132
511
41
2,469
85,575
โ€ผ๏ธโ€ผ๏ธโ€ผ๏ธโ€ผ๏ธ This is so important to know! Please do not assume we are OK just because we appear so. Until we are fully coherent and responding to you, WE ARE NOT! #epilepsyawareness
5
16
362