Working to improve the healthcare of children with medical complexity and their families, and provide support for the professionals looking after them
Joined October 2019
- Tweets361
- Following103
- Followers350
- Likes58
The CoLab Partnership retweeted
TNC & @Col_Partnership session Thurs 24 April: @TheAPCP Respiratory Risk Identification Matrix for CYP with Neurological Impairment
Gain an overview from @ApcpResp of the Matrix and how it can be used as part of usual care and embedded into NHS practice
bacdis.org.uk/events/apcp-ma…
The CoLab Partnership retweeted
Great opportunity to work with @RHardingCSI and myself on an @NIHRresearch funded study on complexity of needs in children @RCPCHtweets @CSI_KCL @CYP_CSI #ppc @Col_Partnership kcl.ac.uk/jobs/097185-resear…
The CoLab Partnership retweeted
📣📣 UPCOMING EVENT - Palliative care for children and young people
Wednesday 6th November 2024, 13:00-16:30
Online and in-person @CSI_KCL
FREE to attend, register here: buytickets.at/facultyofnursi…
Fantastic programme 👇
The CoLab Partnership retweeted
Exciting opportunity to work with @RHardingCSI and myself on an @NIHRresearch @RCPCHtweets grant. Please share @Col_Partnership @Tog4ShortLives @TheAPPMuk @CSI_KCL @CYP_CSI #childhealth kcl.ac.uk/jobs/095043-resear…
The CoLab Partnership retweeted
Review
Managing menstruation for medically complex paediatric patients
Several options - weighing up benefit and risks
All about shared decision making
adc.bmj.com/content/early/20…
The CoLab Partnership retweeted
We’re pleased to share @newlifecharity’s new report, Fight For Our Future, which paints a bleak picture, revealing that only 2 in 5 families feel their child has all the equipment they need. We're urging our followers to read & share the report: newlife.support/fight-for-fu…
The CoLab Partnership retweeted
Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk
@BAPM_Official have released the draft Framework for Perinatal Palliative Care for consultation, important reading and a chance to give feedback to the authors
bapm.org/resources/palliativ…
The CoLab Partnership retweeted
To give you a few extra days over the Easter weekend, we have extended the deadline for abstract submission to 9am, Weds 3 April
Undergrad medical, AHP + nursing students & foundation drs selected to present their poster receive free registration
For info bacdis.org.uk/pages/abstract…
The CoLab Partnership retweeted
Parent presentation powerfully teaches how to better-manage children with medical complexity. Well done @Col_Partnership #RCPCH24
The CoLab Partnership retweeted
Please help us understand how to support breastfeeding infants and toddlers with palliative care needs. Thank you to Dr Laura Thomas for raising such an important subject for so many families. @Tog4ShortLives @Col_Partnership @FeedSleepBond @BACD_tweets @CommChildHealth
The CoLab Partnership retweeted
Deadline to apply to Round 3 of the BACD-Castang Fellowship Programme is this FRIDAY 1st MARCH! @BACD_Trainees @CommChildHealth @bacch_trainees @tweets_TNC @BPNA_org
@BPNATrainees @TheAPCP @RCOT_CYPF @RCSLT
@RCSLTResearch @Pen_CRU @RCPCHtweets @rcpch_trainees @Col_Partnership
BACD is pleased to announce Round 3 of the BACD-Castang Fellowship Programme which aims to identify, support, and develop childhood neurodisability research leaders.
Deadline to apply 1 March 2024 - full guidance and application form available at: bacdis.org.uk/pages/fellowsh… /1
The CoLab Partnership retweeted
Super excited to be at the @WellChild annual nurses meeting and meet some amazing people. Looking forward to sharing some thoughts on #HFE #Complexity later this afternoon @Col_Partnership @BCHCMICTEAM
The CoLab Partnership retweeted
animations for this study from the fantastic @NiftyFoxCreativ
For children/young people
vimeo.com/896747231
For parents and professionals
vimeo.com/896747139
@BDA_Dietitians @ESPGHANSociety @RCPCHtweets @Col_Partnership @Tog4ShortLives @NIHRresearch
Safety, resource use and nutritional content of home-blended diets in children who are gastrostomy fed
Home-blended diets associated with:
- living in less deprived areas
- lower burden of GI symptoms
Prospective cohort study YourTube 🇬🇧
@lornafraser10
adc.bmj.com/content/early/20…
The CoLab Partnership retweeted
Safety, resource use and nutritional content of home-blended diets in children who are gastrostomy fed
Home-blended diets associated with:
- living in less deprived areas
- lower burden of GI symptoms
Prospective cohort study YourTube 🇬🇧
@lornafraser10
adc.bmj.com/content/early/20…
The CoLab Partnership retweeted
🆕📢 We have found deep disparity in @NHSEngland funding for children who need hospice care. New report, based on FOI requests of all 42 integrated care boards, released today reveals. togetherforshortlives.org.uk…
The CoLab Partnership retweeted
BACD is pleased to announce Round 3 of the BACD-Castang Fellowship Programme which aims to identify, support, and develop childhood neurodisability research leaders.
Deadline to apply 1 March 2024 - full guidance and application form available at: bacdis.org.uk/pages/fellowsh… /1
The CoLab Partnership retweeted
Home-blended diets- a safe option for children who are gastrostomy-fed unless clinically contraindicated. Equality of access so important @NIHRresearch @KarenHorridge @BDA_Dietitians @ESPGHANSociety @RMBeattie50 onlinelibrary.wiley.com/doi/…
The CoLab Partnership retweeted
Friends and colleagues, do consider contributing to this consultation to help prioritise future research in palliative and end of life care. @mariecurieuk want to hear from family members, carers, health care professionals as well as patients... Thankyou.
📢 We're looking to hear from people with a serious life-limiting illness about the issues that are most important you, to help shape future research in palliative and end of life care.
Take our survey here 👉 bit.ly/3Oer250
ALT Text reads: How can palliative and end of life care be improved? Complete our survey to shape future research. Have your say. The Marie Curie logo is present top right.
The CoLab Partnership retweeted
Setting up a young person patient council in @LNWH_NHS
#TamiBenzaken from @Whamproject talking us through.. #ColabMAD @Col_Partnership
The CoLab Partnership retweeted
The problem:
#HannahZhu talking about what you can do as a staff member to support families #ColabMAD @Col_Partnership @Whamproject
Links all here..whamproject.co.uk
