EMSTN (@EMSTN_HCC) profile picture

Offering clinical care, support and advice to people with sickle cell disorders and thalassemia across the East Midlands

Joined June 2020
Photo by EMSTN (@EMSTN_HCC)Photo by EMSTN (@EMSTN_HCC)Photo by EMSTN (@EMSTN_HCC)
Really pleased that the HIBISCUS study is now open within the EMSTN @Leic_hospital. The first intervention study for adults living locally with sickle cell for some time! @amy_haemDr @PanelNational
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Great afternoon celebrating the Welfare service for haemoglobinopathy patients living in Leicester @Leic_hospital @SairSunshine @jessica97821503
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Great to see everyone in person. Lots to learn and share!
And that's a wrap! Thanks to all who attended our first Pan-Midland Haemoglobinopathy Education day. An excellent opportunity to share knowledge, and to learn from our peers across the Midlands and further afield. @east_midsstn
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Very exciting opportunity to join our team and support our patients. Please share with anyone who might be interested. citizensadviceleicestershire…
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Very well deserved Mrs Parmar! @_ClareProctor @drkatehodgson
Was great to celebrate with our own wonderful Mrs Parmar as she received her Caring at its best award this morning from @RMitchell_NHS @EMSTN_HCC @GeorgeK81661083 #WeFocusOnWhatMattersMost #SickleCellAndThalassaemia
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What great news to wake up to on a sunny Tuesday morning! Let's hope its the start of many! bbc.co.uk/news/health-587913…
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Calling all of those involved in sickle cell care. Please find link below to share your comments @SickleCellUK sicklecellsociety.org/call-f…
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For anyone shielding, please see link below to access your vaccine!
Help us make sure that everyone who is eligible for the #COVID19 vaccine in LLR gets it – we have appointments available for the next 7 days across all priority groups. #GetTheJab leicestershospitals.nhs.uk/p…
Very Useful Source of information regarding Covid 19 Vaccinations to help staff answer patient questions vk.ovg.ox.ac.uk/vk/COVID19-F… #CovidVaccine #SupportingPatients #GettingTheRightInfo
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gov.uk/guidance/tier-4-stay-… Important information for all those who are advised to shield after the introduction of tier 4 for the East Midlands #StaySafe
Proud to have contributed to this important area of work!
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We have updated our website with some information on research opportunities. Please follow the link for more information. @east_midsstn emstn.org/blog-2/
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Last chance to complete and help to improve services for #SickleCell
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This year to celebrate #NationalThalassaemiaDay on Monday 19th October 2020, we have created a series of social media banners! In the UK #thalassaemia is under-represented and we need to change this! Pick those most suitable one and get posting! Let's flood social media!
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This Saturday on Amplify Sickle Cell Disease Voices we will be discussing the benefits of having Dedicated Support for Sickle Warriors and Access to Care. @DrOdame will be our expert panelist.Register in advance for this webinar: zoom.us/webinar/register/WN_… #AmplidySCDVoices – at Melbourne, Victoria
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If your child has #Coronavirus #symptoms you should notify the school, keep them home and self-isolate. Book a #test only for those with symptoms by going online or calling 119. Do NOT attend A&E or your GP practice as these are not test sites: nhs.uk/conditions/coronaviru…
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The national haemoglobinopathy registry is looking for patient representatives, we really want the registry to be what our patients need to empower them and improve funding and research into haemoglobinopathies and rare anaemia’s. Come join us !
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