The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.
Brussels
Joined June 2016
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EU-PFF retweeted
The #ERSCongress is the once-a-year occasion when the world's respiratory experts present and discuss the latest advances in respiratory medicine.
Register for the early-bird discount: bit.ly/3Uc5cTE
EU-PFF retweeted
NEW #LungHealth filter is available on Instagram! 🫁
Our policy is to #KeepBreathing, what’s yours?
Now you can show your support and join us in calling for #lunghealth in Europe for all.
How? 🎥Follow, shoot, share!
More info: instagram.com/p/C50GBfEss5U/
EU-PFF retweeted
Great quote by @FarrSue01 in @thetimes today: It’s time to move on from the paternalistic, and often dangerous, ‘doctor knows best’ to a more equal relationship where the patients with lived experience and the doctors with learnt experience work more collaboratively.#StopPF
EU-PFF retweeted
Webinar on Pulmonary Hypertension associated with #ProgressivePulmonaryFibrosis with Dr Lucilla Piccari and Dr David Keily. All welcome 23 October 1900 CET #CurePF
Please join us for our next webinar on Oct 23 on “#PulmonaryHypertension associated with interstitial lung disease (#PH-#ILD) - current & future treatments” with @LucillaPiccari, Prof David Kiely, Hall Skaara & @ActionPFsteve Registration is now open: us06web.zoom.us/webinar/regi… #PF
EU-PFF retweeted
Join experts at the joint @EU_IPFF & @EuropePHA webinar on #PH #ILD on October 23rd - open to all
@ErnLung @ild_inn @EuropeanLung #pulmonaryfibrosis #RareDisease #pulmonaryhypertension
Please join us for our next webinar on Oct 23 on “#PulmonaryHypertension associated with interstitial lung disease (#PH-#ILD) - current & future treatments” with @LucillaPiccari, Prof David Kiely, Hall Skaara & @ActionPFsteve Registration is now open: us06web.zoom.us/webinar/regi… #PF
EU-PFF retweeted
On #WorldLungDay we remind that
🧩 EU policies impacting #LungHealth are fragmented
🩺 #RespiratoryCare is not a health priority despite the burden
🫁 And yet we all need to #KeepBreathing
Let’s change this together!
👉🏻 Breathevision.eu
EU-PFF retweeted
On average, 1 in 8 of all deaths in the EU are a direct result of #respiratory diseases.
That’s why the @EuroLungHealth Group works for increased action at European level.
#KeepBreathing and improve #LungHealth for all.
👉🏻 Breathevision.eu
#WorldLungDay
EU-PFF retweeted
🫁📣 Today is #WorldLungDay, the day the European Lung Health Group presents our #KeepBreathing campaign.
🎯Our goal? Improved policies to address #LungHealth and tackle #RespiratoryDisease prevalence, cost, and burden in Europe by 2030.
👉🏻 Breathevision.eu
EU-PFF retweeted
Do not miss the second part!!!One more initiative from our Society.
@ers_ild @EuroRespSoc @Montanidavid @KarenMoor2
Part 2 of the drugs and lungs – liaisons dangereuses webinar series: Interstitial lung diseases - inflammation, fibrosis and oedema is to take place on 4 September at 6pm CEST
Register: channel.ersnet.org/media-101…
EU-PFF retweeted
Meet the scientist behind the research 🔬
🫁 Hear Dr Richard Allen talk about his groundbreaking research into the role of genetics in IPF.
💻 Dr Allen's talk is available in an online webinar on 7 September, 4-5pm (BST)
Find out more and register ⬇️
actionpf.org/news/meet-the-s…
ALT A photo of Dr Richard Allen with the APF logo in the top right corner
EU-PFF retweeted
📣 3 days left until #TakeTheActiveOption begins!
There is still time to raise money to support lung health initiatives worldwide by taking on a physical challenge that suits you.
Join us now:
europeanlungfoundation.enthu…
EU-PFF retweeted
Looking forward to a weekend of learning as Patient Organisations from Central & Eastern Europe & beyond gather in Bulgaria to discuss #pulmonaryfibrosis & #LungHealth as #PFMonth begins
EU-PFF retweeted
Great to see @EU_IPFF president Steve Jones building on our many years of partnership with @EuropePHA & the #pulmonaryhypertension patient community @ErnLung @EuropeanLung
Delighted to represent @EU_IPFF at the IMPACHT conference on Pulmonary Hypertension and talk on patient involvement in research with Hall Skaara @EuropePHA. So important for patient organisations to work together!
EU-PFF retweeted
Great day of discussions and presentations at the 2nd IRC Summit in Lisbon - happy to be there representing the @EU_IPFF as the IRC manifesto is launched - full details on international-respiratory-co…
EU-PFF retweeted
ELF PAG member Liam Galvin from @EU_IPFF co-chairing this session about improving detection of lung conditions.
EU-PFF retweeted
Day 3 of #WAOG2023 kicks off with
"Immunological Approaches & Methods in ILDs" Inc excellent 1st session by Dr. Jelle Miedema from @ErasmusMC and @ErnLung member
EU-PFF retweeted
Thought provoking clinical session on QoL, technology,PRO tools,PROMs & the future of patient care at today's #WASOG2023 - many thanks to the great speakers & lively questioners #pulmonaryfibrosis
EU-PFF retweeted
Registration Alert - as interest & excitement around the @EuroRespSoc Congress goes up, so will the price - Early Bird ending!!! Looking forward to being part of the @EU_IPFF delegation in #Milano
🚨 Two weeks to go until early-bird registration for the #ERSCongress ends!
Join us as the world’s respiratory experts come together to present and discuss the latest scientific and clinical advances in respiratory medicine: ersnet.org/congress-and-even…
EU-PFF retweeted
Day 2 of #WASOG2023 gets off to an early start with opening remarks by @EU_IPFF Scientific Advisory Board member Prof. Bruno Crestani #Sarcoidosis #pulmonaryfibrosis
EU-PFF retweeted
Many thanks to the patient advocates, scientific advisory board members, sponsors & partnering organisations who joined our @EU_IPFF General Assembly - a great three days of intense discussions & learning on #pulmonaryfibrosis @REMAP_ILD #policy and the future of #CurePF
