🔅 Reliable endometriosis facts, research, and awareness 🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary.
West Midlands, England
Joined April 2018
- Tweets539
- Following499
- Followers788
- Likes2.6K
EndoEdition retweeted
I spoke with the amazing @AnitaNnekaJones about her long journey with endometriosis as says she was ‘gaslit by doctors for 14 years’
independent.co.uk/life-style…
EndoEdition retweeted
waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is
EndoEdition retweeted
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
EndoEdition retweeted
So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians.
If you are interested please drop a message to email on poster or scan the QR code 🎗️
EndoEdition retweeted
"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds."
@Richard56 discusses the healing power of being listened to
bmj.com/content/385/bmj.q135…
EndoEdition retweeted
A life well lived. Rest Jahmby🕊️
Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊
For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.
EndoEdition retweeted
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
EndoEdition retweeted
BREAKING NEWS
Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔
Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning.
Rest In Peace🕊️
EndoEdition retweeted
Research Opportunity👇👇
This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis.
Those living with either or both conditions are invited to take part at: forms.office.com/pages/respo…
#UniversityOfLiverpool #TEPEAstudy
Do you have #endometriosis or #adenomyosis? You are invited to take part in research on treatments for endometriosis and adenomyosis, conducted by the #UniversityofLiverpool. This is an online questionnaire that will take 15 minutes to complete: forms.office.com/e/1QY213rJP… #TEPEA
EndoEdition retweeted
We're tackling healthcare disparities for people of color % the delayed diagnosis of endometriosis
Despite widely cited statistics, they don't accurately represent communities of color. Rejected for funding, we're pursuing this research voluntarily, committed to inclusion
👇🏾
EndoEdition retweeted
BBC #Panorama shows outsourcing NHS operations to private hospitals costs lives. I've signed @We_OwnIt's petition asking @wesstreeting and @VictoriaAtkins to invest in the NHS instead. Take 1 minute to add your name. weownit.org.uk/act-now/end-p…
#ToriesCostLives
EndoEdition retweeted
Over and over physicians are wanting to rip out the ovaries, normal ovaries to stop endometriosis. Simply does not work
Via #EndoGirlsBlog @KateBoyce #Endometriosis creates its own oestrogen. Suppressing the ovaries does not suppress the disease. Even if symptoms are managed, endo can continue to progress until expertly excised. *Education is the key to better treatment.
instagram.com/p/B9SXLPng2oS/
EndoEdition retweeted
He tried with all his heart, driven by his compassion for the suffering he witnessed first hand in his first wife, his patients, he felt no one should have to live like that, and we have the skill to improve their quality of life.
EndoEdition retweeted
Endometriosis affects countless women & early detection is the key to preventing severe complications. Endometriosis is a sneaky condition that often goes undiagnosed until it reaches advanced stages.
EndoEdition retweeted
“No one should go through even 6 months of pain, let alone the nearly decade long delay in diagnosis.”
EndoEdition retweeted
Medical textbooks don’t mention menstruation - or give scant coverage of menstrual physiology. No wonder medical clinicians know little about menstrual difficulties or don’t take menstruators seriously. Great talk by Sally King #SMCR23 @MenstruationOrg
EndoEdition retweeted
Someone please help me understand how a MacArthur fellow and MIT scientist WHO STUDIES ENDO doesn’t know that there’s a difference between the cells of the endometrium and #endometriosis. How is this happening? npr.org/sections/health-shot… @nancynursez637 @EndoResCenter @EndoWhat
EndoEdition retweeted
Thank you @NPR for featuring “Below The Belt”. 🧡
Read the full article here: npr.org/sections/health-shot…
#npr #belowthebelt #endometriosis
