In the near future, the FDA will be reviewing an investigational treatment called molgramostim for a rare and serious lung disease known as autoimmune pulmonary alveolar proteinosis (aPAP). Please consider signing the letter of support: engagehealth.com/survey/Take…
In the near future, the FDA will be reviewing an investigational treatment called molgramostim for a rare and serious lung disease known as autoimmune pulmonary alveolar proteinosis (aPAP).
Please consider signing the letter of support:
bit.ly/4iq1NwF
Engage Health Inc. retweeted
In the near future, the FDA will be reviewing an investigational treatment called molgramostim for a rare and serious lung disease known as autoimmune pulmonary alveolar proteinosis (aPAP).
Please consider signing the letter of support:
bit.ly/4iq1NwF
We're heading to the 2026 NORD Breakthrough Summit, and we'd love to meet you there.
If you're attending, reach out to our team to set up a time to connect!
In the near future, the FDA will be reviewing an investigational treatment called molgramostim for a rare and serious lung disease known as autoimmune pulmonary alveolar proteinosis (aPAP).
Please consider signing the letter of support:
bit.ly/4iq1NwF
Meet Jess Cella, our newest Rare Disease Difference Maker®!
Read Jessica’s inspiring story and learn how her efforts are making a difference: engagehealth.com/rare-diseas…
Engage Health was glad to attend MnTech Talent 2026!
As a Minnesota health research company, we love connecting with others shaping the future of innovation, technology, and healthcare.
Thank you to MnTech for bringing us together!
We’re proud to welcome the Buryk Family as our newest Rare Disease Difference Makers®!
Read their story and learn more about their impact: bit.ly/473xUvW
A great day of learning, connection, and conversation at the 4th Annual Minnesota Organoid Symposium!
Thank you to R&D Systems, the University of Minnesota, and Mayo Clinic for bringing the community together!
This week, Anne Melchior from our team at Engage Health® had the privilege of guest speaking in Dr. Reena Kartha's rare disease course at the University of Minnesota.
Thank you, Reena, for the meaningful conversation and for welcoming us into the classroom.
A excellent time at WORLDFair 2026! We’re grateful to Jeanine Jarnes for having Engage Health be part of this wonderful event.
The FDA has approved Fayuvi (UX111), the first-ever treatment for Sanfilippo syndrome (MPS III). We're proud and grateful to recognize Dr. Cara O'Neill of the Cure Sanfilippo Foundation, an Engage Health Rare Disease Difference Maker®, for her work toward this accomplishment.
A big thank you to our summer interns, Harper and Matthew!
We’re grateful for all the hard work, dedication, and contributions you brought to Engage Health® this summer. We truly appreciated having you both on the team!
Wishing you all the best as you head back to school!
Rare disease patients are scattered across the globe. For over 25 years, Engage Health® has connected them with the researchers, advocacy groups and healthcare organizations working to reach them.
Learn more about Engage Health and our EnCompass® database today!
Someone in your rare disease community is making a difference. Have you told them?
Nominate your Rare Disease Difference Maker and help us share their story 👉bit.ly/4bC6aBg
Learn how the team at Engage Health® can support your next research initiative:
engagehealth.com | [email protected]
The right connections make all the difference.
Have a recruitment or research initiative coming up? Let’s connect and see how the EnCompass® database can help.
[email protected] | (651) 994-0510
We’re proud to bring 25+ years of research experience, meaningful engagement, and actionable insights to the rare disease community. Have a research initiative on the horizon?
We’d love to connect [email protected] | (651) 994-0510
We presented findings from the CoRDs Research & Survey at the 4p- Support Group National Conference and Research Workshop, alongside members of the 4p- Medical Advisory Board, including Dr. Amy Calhoun, Dr. John Carey, Dr. Agatino Battaglia, Dr. Julian Nevado, and Dr. Karen Ho.






















