Online media source providing articles, a Special Needs Resource Directory, current news, & blog for families of children & adults w/ #disabilities. #EPconnect
United States
Joined October 2009
- Tweets4K
- Following716
- Followers1.3K
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eParent retweeted
#RareDisease @PPALSorg @SanfordCoRDS @EparentConnect @ComplexChildMag @rarediseasefilmfestival Guess who is coming to New York City in May 2020? Got a #rarediseasefilm ? Submit it to Disorder: The Rare Disease Film Festival on @filmfreeway filmfreeway.com/DisorderTheR…
eParent retweeted
#RareDisease #rarecancer @SanfordCoRDS @teaminspire @EparentConnect #oncology #PancreaticCancer Action Network Invites Applications for 2020 Translational Research Grants | RFPs | PND fw.to/oOfYJkK
eParent retweeted
#RareDisease Thanks Kim & Julie @OHFTweet for inviting me to #oxalosis #hyperoxaluria conference. Fabulous community, great info & committed docs, HCPs & researchers! Happy 30th Anniversary! @EparentConnect @teaminspire @PPALSorg @_OurOdyssey_
eParent retweeted
"This award is for every kid who is watching tonight who has a disability, who has a limitation or a challenge, who has been waiting to see themselves represented in this arena," Ali Stroker just made history by at the Tony Awards 💛 cbsn.ws/2MD527n
eParent retweeted
#RareDisease #chronicillness @PPALSorg @SanfordCoRDS @EparentConnect @teaminspire Thanks @tunaturns & @Srotberg15 for invitation to be on @_OurOdyssey_ Advisory Board. Is an honor to journey with this extraordinary PAO devoted to young adults ages 18-35 ourodyssey.org/
eParent retweeted
#RareDisease @EparentConnect @teaminspire @FabryOrg #FabryDisease Fabry Support & Information Group hosting patient meeting June 15 at 12 noon to 4 pm at the Renaissance Woodbridge hotel in Iselin NJ. Dr Heather Lau will present "Neurological Update". RSVP to [email protected]
eParent retweeted
@PPALS @Srotberg15 @SanfordCoRDS Listening to Seth Rotberg discuss his #HuntingtonsDisease journey at Sanford Great Plain #RareDisease Summit. Thanks Seth for sharing your family's story!!! @teaminspire @EparentConnect
eParent retweeted
@EparentConnect Special Needs Resource Directory directory ranges from products and services to government programs and scholarships: eparent.com/special-needs-re…
eParent retweeted
@PPALSorg #raredisease @EparentConnect @teaminspire @SanfordCoRDS On day 2 of Sanford/PPALS course! 4 lectures happening for Industry & #PatientAdvocacyOrganizations on relevant topics. Amazing networking and conversations happening! Sioux Falls is the place to be!
eParent retweeted
eparent.com/healthcare-2/sen…
A great article about sensory processing from friends @EparentConnect
eParent retweeted
On Mar 25, join us for a FREE webinar as we discuss different ways to plan meaningful days for teens & adults with intellectual & developmental disabilities. Keshet participants Estella Levin, Jonathan Weissbrot & Zahava Auerbach will join to discuss their experiences.
eParent retweeted
Divorce, Custody, and ASD eparent.com/features-3/divor… via @EparentConnect
eParent retweeted
“Could My Child Have Autism?” Ten Signs of Possible Autism-Related Delays in 6- to 12-Month-Old Children eparent.com/special-needs/au… via @EparentConnect
eParent retweeted
@PPALSorg @SanfordCoRDS @teaminspire @EparentConnect Am looking forward to tonight's event. Thank you @EveryLifeOrg for inviting me to participate. Here with my dazzle of zebras
eParent retweeted
#raredisease @teaminspire @PPALSorg @SanfordCoRDS @EparentConnect One can never get too much information about #clinicaltrials. Check out Inspire's webinar on Diversity in Clinical Trials register.gotowebinar.com/reg…
eParent retweeted
Organizing an Inclusive Birthday Party
eparent.com/features-3/organ… via @EparentConnect
#inclusive #child #birthdaylove
eParent retweeted
#raredisease @teaminspire @Srotberg15 @EparentConnect @PPALSorg #HuntingtonsDisease Have you read Seth's latest article about educating #rarediseaseresearchers ? Well here you go corp.inspire.com/blog/find-a…
eParent retweeted
@PPALSorg @EparentConnect @teaminspire #rarediseases Looking for a way to increase awareness of a #RareDisease? Participating in a #rarediseasepatientregistry is a great way to do it! Check out @SanfordCoRDS as they do a fabulous job of helping the #rarediseasecommunity
It's often so hard to paint a picture of the progression of #rare conditions due to the often very low patient numbers. #Registries and natural history studies look to put the pieces together over time - @SanfordCoRDS works with PAGs to design registries for free!
eParent retweeted
Informative article.
"Is It Common For Children With #Autism To Have Sleep Disturbances?" For #children with #specialneeds, the number increases dramatically with upwards of 80% experiencing some type of #sleepproblems. #EPcoonect #insomnia
>> bit.ly/2FR99HG
eParent retweeted
Another stunning film from Dan Habib @UNHIOD Intelligent Lives @IntelligenceDoc explores another facet of the disability community from @EparentConnect eparent.com/special-needs/in…