
Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
United States
Joined December 2024
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Join PBC Awareness, NFP, in recognizing World Liver Day on Sunday, April 19th! Organizations worldwide will show their commitment to raising awareness of liver health and patient care.
#worldliverday #liverhealth #PBCAwareness
Here's the four stages of Primary biliary cholangitis (PBC)
#liverhealth
#PBCAwareness
via @Healthline
healthline.com/health/primar… – at San Juan Antiguo, Puerto Rico
If you would like to become a volunteer and assist us in our mission to raise awareness of PBC and support the PBC community, please fill out the form in the link below.
#PrimaryBiliaryCholangitis #PBCCommunity
form.jotform.com/26098408514…
Approximately 130,000 Americans are living with Primary Biliary Cholangitis, a rare autoimmune liver disease. Your generous donation is essential to advancing our mission. app.teamfi.works/fundraiser/…
#PrimaryBiliaryCholangitis #patienteducation #liverhealth
Join an Ipsen sponsored PBC webinar on April 28th!
Join Ipsen for an informative PBC webinar:
cloud.us-patient.ipsen.com/W…
#PBChealth
#liverhealth
Our next PBC Warrior interview features Tom Zimmerman from New York. He is a recently diagnosed PBC patient and is actively involved in the PBC Awareness community. #PBCawareness #PBCWarriors
youtu.be/10Mc_9FM9MI
This symptom is often overshadowed by fatigue and pruritus, but it can cause stress in many PBC patients. Roughly 25%-50% of newly diagnosed patients report experiencing this symptom. If you are able to decipher the anagram, comment your guess below!
#pbchealth
Today, on April 1st, we observe the National Day of Hope. For the thousands living with PBC, hope looks different than it does for most.
“We must accept finite disappointment, but never lose infinite hope.” Dr. Martin Luther King Jr.
#PBCAwareness #NationalDayOfHope #Hope4PBC
Today is the final deadline for the PBC Survey! If you want a chance to win an Amazon gift card and lend your voice, here is your opportunity!
Click on the link below to submit your thoughts!
forms.gle/frSTJKNLVBaxbNot7
#PBCawareness
#PBCPatientToolKit
#PBCSurvey
PBC and PSC pscsupport.org.uk/psc-and-ot… via @PSCSupportUK
#PrimaryBiliaryCholangitis
#Liverdisease
#AutoimmuneAwarenessMonth – at Orland Park, IL
Far too many of our followers have never met other PBC patients or caregivers. It's time to change that! Drop your name and location in the comments, and let's strengthen our community connections!
#PBCCommunity
#youarenotalone
#strongertogether
We are 1-week away from the survey deadline, and your chance of winning a $50 Amazon gift card! The link closes on March 30th, and the winner will be announced on March 31st!
#survey #SurveyCommunity #pbchealth
forms.gle/6SQWUpX5QaCxM1X58
It can be very difficult to manage a rare disease and stay positive. Many people suffer emotionally because they lack the tools necessary to have a positive outlook. Here are seven ways to consider.
everydayhealth.com/liver-dis…
#pbchealthjourney
#PBCawareness
#pbcliverhealth
An Irish blessing for St. Patrick's Day: “May you live as long as you want, and never want as long as you live.” — Irish Blessing #StPatricksDay2026 #PBCCommunity #PBCawareness
Learning new medical terminology and how it relates to PBC health can be overwhelming. Don't feel discouraged or ashamed to ask questions.
For more information on alkaline phosphatase, click on the link below:
ubiehealth.com/doctors-note/…
#PBChealth
#PrimaryBiliaryCholangitits
According to the NIH, between 15-20% of patients with Primary Biliary Cholangitis (PBC) are male. If you are a male PBC patient, your story is important. Comment below if you would like to contribute to our efforts to highlight the experiences of male PBC patients.
#PBCvoices
Many PBC patients have asked about the proper diet for their diagnosis. Below are general dietary tips that can be incorporated into their diet to improve health.
#healthtips #pbchealth #pbchealthtips
youtu.be/h8xChX8u_x8?si=TLTk…
The challenges faced by people living with Primary Biliary Cholangitis (#PBC) exist year-round. Learn more about this rare disease from Dr. @NancyReau and @GileadSciences.
#LiverHealth
#PBCAwareness
For more information visit:
youtu.be/QlX97sg9cck?si=0MYV…















