GenomicExperienceProject (@GenExProject) header
GenomicExperienceProject (@GenExProject) profile picture

A research study interested in how people make meaning of genomic information, goal is improving care & decision making re: hereditary illness. PI @frommarlaine

Seattle, WA
Joined June 2019
Our study page is live! kpwashingtonresearch.org/get… Stay tuned for information about upcoming Tweetchats on this topic.
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“It was the first time I would be staring cancer face on and saying NO.”
A few months ago I underwent a preventative mastectomy and had both my breasts removed to reduce my risk of breast cancer. #BreastCancerprevention #previvor mypointofheu.com/blog/wearin…
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Important breakthrough in understanding #brca #brca1!
A paper in Nature reports new ways that the BRCA1 gene functions, which could help researchers in the understanding of the development of ovarian and breast cancers. go.nature.com/2YEur1H
Previvors and people with HBOC- what hashtags do you use to talk about your medical decision making? #HBOC #previvor
Launching a new study about how people make sense of genetic predispositions to cancer as they think about preserving fertility and building a family. We would love to learn from you. #bcsm #gyncsm #gencsm #brca #hboc #brca1 #brca2 #previvor #hereditarycancer #lynchsyndrome
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Excited to launch this new study! The Genomic Experience Project is focused on how people make meaning of genomic information. The goal is to improve care and decision making for people with hereditary illness.