Phyllis (@Groz_P) header
Phyllis (@Groz_P) profile picture

DCIS 1995 ➡️ metastatic breast cancer 2008, 2 clinical trials LEE011,SRN,2 ports,2SIRT,Lymphedema,edema,paracentesis,0 tx &0 trials left (ineligible) #MBCKills

boston area
Joined July 2012
Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)
Sharing my piece "Reflections on the Boston Marathon from a Breast Cancer Oncologist (or Why I Just Don't Quit)" nwh.org/media/file/TheOncolo… … … … @newtonwellesley @mamadocsrunthis @HemOncWomenDocs #BostonMarathon2018 #Keepshowingup #CarpeDiem
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To have this much influence and this many resources at your disposal, yet still ineffectively utilizing it and benefiting only part of the affected population...its just plain sad @SusanGKomen #pinkisnotacure #fundresearch xitter.gq/METUPorg/status/100183…
We are holding @SusanGKomen accountable on how they use donations. #Stage4needsMore
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Hey @BCBSLA you decided not to cover the TACE liver treatment my radiation oncologist is recommending because he has seen it work for other patients in a position similar to mine. You won’t cover it because it’s ‘investigational’ but isn’t that how science advances?
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Phyllis retweeted
You just have to wonder why one of the largest breast cancer non-profits does not understand the sexualization of #breastcancer is not cool with anyone. What about the 30% who detected BC early & it came back to kill them? You should be ashamed @SusanGKomen & @AdCouncil #bcsm xitter.gq/susangkomen/status/999…
We are proud to announce Komen and @AdCouncil’s new campaign, Know Your Girls! Follow along at @_KnowYourGirls & head to KnowYourGirls.org to learn more about breast health & #breastcancer risk. #KnowYourGirls xitter.gq/_knowyourgirls/status/…
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Hey @BCBSLA why are you denying me the TACE liver treatment I need to stay alive? You say it’s investigational and won’t cover it. To me it is life extending. Obviously your profits are more important than my life.
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Check out #ShareAStoryInOneTweet You’ll need this with you:
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In the spirit of @actupny -- die-in at Living Beyond Breast Cancer calling for action around metastatic breast cancer #LBBCmetsconf #bcsm xitter.gq/METUPorg/status/987812…
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Every single member of the House of Representatives is up for election in 2018. Here’s a list of the members who voted for the #GOPTaxScam #TaxScamBill #VoteThemOut
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So my #sbcinfographic I created in 2015 will be taken over by 2 chairites who won't be giving me any credit for it whatsoever (apart from in one of their "good practise" report) But yes I'm an "inspiration" Tell that to my kids when I'm dead...
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Phyllis retweeted
Money is power & drug companies keep patient advocate groups & non-profits silent on drug cost by giving them a lot of it. xitter.gq/abcdiagnosis/status/92…
I have been trying to find this slide @vinayprasad82 @pash22 I think theres a lot that needs discussing here re patient groups and HCPs ....
“Mass shootings are scary and impossible to predict. Except for this one big thing that’s a really good predictor.” youtube.com/watch?v=iBuKbe40…
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Joan, it’s hard to respect your work when it specifically excludes women with MBC and rejects our need for research on metastasis.
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Amazing! Congrats to Dr David Ryan and Dr Lecia Sequist! xitter.gq/mghcancercenter/status…
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If you too are disappointed in Sen @BillCassidy #GrahamCassidy let them know it - call (202) 224-3121
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Phyllis retweeted
Clinical trials look at new ways to treat disease but many Stage IV pts are excluded from participation d/t previous treatments, brain mets. xitter.gq/JoPeKim/status/8952498…
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I'm an oncologist having surgery to remove pancreatic cancer. No one is immune from disease; bad luck should bankrupt no one. #skinnyrepeal
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The #BCSM community is mourning the death of @regrounding. Much love to her family @JohnRubiner
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