HSconnect.org - HS Connect

Helping spread National HS Awareness on GMA3? That's kinda chic of @ucb_usa to do! Thank you for supporting our community in such an amazing way! We could not do this work without your support!! #FindUS #HSConnect #UCB #HidradenitisSuppurativa #LivingWithHS

From feeling unseen to seeing our community on the BIG screens! 💜📺 Thank you, @ucb_usa for amplifying HS awareness and patient voices. Every step toward visibility reminds our community that their stories matter! #FindUS #HSConnect #HidradenitisSuppurativa #UCB

Thank you, @Novartis, for helping our HS patients find community & normalizing the conversation around living with Hidradenitis Suppurativa. From living in shame to being able to #FindUS on the BIG screens with your support! #FindUS #HSConnect #Novartis #HidradenitisSuppurativa

Today is the DAY!!!!! You can Find US bringing HS Awareness on National Television! Watch GMA3 at 1 pm ET | 12 pm CT/PT! #HSConnect #LivingWithHS #HidradenitisSuppurativa #FindUsOnGMA3

Hidradenitis Suppurativa is a complex condition, and new information presents itself often. Here's what you need to know- HS Connect approved! #HSConnect #FindUSOnGMA #HidradenitisSuppurativa

Last week was full of empowering moments. Meeting other warriors for the first time & finding genuine support on your HS journey. Nothing is more special; check it out! 💜 Thank you to our sponsors for making it possible! @novartis @incyte @ucb_usa @hsforg @avalo @navigatormeds

The HS Connect website has been undergoing major changes! From navigating your treatment journey to the NEW Connect the Dots tool! Check them out at HSConnect.org #HSConnect #HSAdvocacy #LivingWithHS #PatientJourney

Our team is growing, and so is our global reach! 🌎💜 As our HS community continues to grow worldwide, we're excited to welcome Jillian Hinskton as our new Director, Global Affairs & Strategic Partnerships. Welcome Jillian! #hsconnect #hsconnectglobal #hidradenitissuppurativa

The swag bags understood the assignment! 💜👏🏽 Huge shoutout to Dimora for donating bandages for our HS event and helping us celebrate our warriors in true HS fashion. Thank you for being part of the magic! ✨ #HSConnect #HidradenitisSuppurativa #EmpowerHS26

Did you know HSConnect has 9 monthly support groups? 💜 There’s nothing like connecting with warriors who just GET IT! Find your people at HSConnect.org and discover your fit. We see you, we get you, we got you. 🫶🏽 #HSConnect #LivingWithHS

Join us virtually this week for our Annual Empower HS Conference! Get ready for HS education, HS connections, and community! 🎟️ Save your spot using the link below! zurl.co/MufGN #hidradenitissuppurativa #hsconnect #EmpowerHS

September was one for the books! It's crazy how much we get done in such a short time! Shoutout to my team for all the work they put in for the community! Let's rocktober!! #MonthlyRecap #HSConnect #LivingWithHS #HidradenitisSuppurativa

Living with HS means juggling a lot... Symptoms that don't stay in one place and a healthcare system that can make even basic care feel like a fight. We built two new tools to make both a little easier, and they're live now on our website! hsconnect.org/connecting-the…

Let's fill the comments with YOUR voices. 💜 Complete this sentence: "Living with HS has taught me ______." There's no right answer. Whatever your answer is, we want to hear it. 👇🏽 Finish the sentence. #HSConnect #HSCommunity #HidradenitisSuppurativa #HSWarrior

🩺 Save this for your next dermatology appointment! Going to an appointment can sometimes feel overwhelming especially when you have a million questions and suddenly forget all of them once you're in the room. 😅 Save this post and bring it with you to your next appointment. 💜

We are officially 25 days away from one of the most empowering events of the year! Empower HS!! Warriors come to connect, learn, and have fun for 2 days. Please join us virtually on October 16 & 17th! Check out our full event breakdown at HSConnect.org/empower

HS Connect University is LIT! 🔥📚 Our new series, “A Peek Into HSCU,” breaks down medical terms to build health literacy and help warriors advocate for themselves. First up: systemic inflammation. Do you know what it means? 👀 #HSConnect #HSCU #LivingWithHS

A confused mind says no. Clinical trials can come with misconceptions, but research helps bring more treatment options to our community. Curious? Learn more at hsconnect.org. No medical advice, just info to help you make informed care decisions.

Meet our #EmpowerHS 2026 Host, Cydney Carter (@socialcydd)! 💜 Mom, wife, advocate & creative, Cydney brings so much to the HS community—and we can’t wait for her to bring that energy to Empower! Not registered? There are still virtual spots open! hsconnect.org/empower/

Public Service Announcement!! No, seriously, we partnered with @incyte to create a PSA about HS! This will air on television and streaming services to bring much-needed awareness to Hidradenitis Suppurativa. youtu.be/cRlPsl7IbZY?si=Gn9N… #LivingWithHS #HS #PSA #Incyte