Help4HD

Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.

Resources for end-of-life planning are coming to #Help4HDTV! Listen as Leah & Jamie discuss this part of the #HD toolkit TOMORROW at 9am PST! #Help4HD #HuntingtonsDisease #endoflife facebook.com/help4hd/reels/

Exciting news for the #HD community: Skyhawk Therapeutics has dosed the first US participants in the global FALCON-HD study, evaluating SKY-0515 as a potential new treatment. Recruitment ongoing at 40+ sites worldwide! #HDResearch help4hd.org/post/skyhawk-the…

Sign up **WITH AN ADDRESS** to enter the drawing for giveaways on the app: digitalgrowthfirm.adalo.com/… On Saturday: Click session, Click giveaway at the bottom, Click the "Participate" button #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

THIS SATURDAY! 💙💜💙Don't miss these sessions designed with your questions in mind! Join this FREE #Virtual #HD education event ~ Tune in at 7:45am PST! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease Details: help4hd.org/events

Get your invite! Listen on #Help4HDLive for details on this "#HD Family Thanksgiving" with DJ, Jessica, & Katie! Tune in TOMORROW at 1pm PST! #HDCommunity #HDFamily #huntingtonsdisease spreaker.com/podcast/help-4-…

Dr. Kendra Anderson is joining the HIPE! These Q&As are brought to the community for #HD families to bring their authentic questions! Don't miss out this weekend! #Help4HDHIPE2026 #FacingtheUnknownwithHope Full Schedule: facebook.com/share/p/1FCXxkp…

Your package is on the way! Use 💜💙 #Help4HDSwag 💙💜 to share your unboxing with us!!! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

Meet us online for an update with Dr. Kevin Sloan, ALN-HTT02 Program Lead from Alnylam Pharmaceuticals! Tune in on Facebook or through the app Saturday at 7:45am PST for #HD education! #Help4HDHIPE2026 #FacingtheUnknownwithHope facebook.com/share/p/1FCXxkp…

"uniQure Announces FDA Acceptance and Priority Review of the Biologics License Application for ifezuntirgene inilparvovec for the Treatment of #HuntingtonsDisease" Check out the full press release on the Huntington's Post! #HDResearch help4hd.org/post/uniqure-ann…

Meet us online for an update with Kevin Sloan from Alnylam Pharmaceuticals! Remember to tune in on Facebook or through the app Saturday at 7:45am PST for a day of #HD education! #Help4HDHIPE2026 #FacingtheUnknownwithHope Schedule: facebook.com/share/p/1FCXxkp…

We are so excited to get together with everyone TOMORROW! Join us on Zoom at our #MondayMixer to enjoy the company of other #HD community members. Reach out to [email protected] for more details. See you there!

CONNECT on Saturday at #Help4HDHIPE2026! This talk on INVEST-HD #ClinicalTrial with #neurologist Dr. Sara Berman representing Novartis is one of the many exciting sessions for the weekend! #FacingtheUnknownwithHope #HD Full schedule: facebook.com/share/p/19g7S5W…

REGEN4HD! At Virtual #Help4HDHIPE2026, founding Co-Editor in Chief of the Journal of #HuntingtonsDisease, Dr. Leslie Thompson shares about this stem cell based #ClinicalTrial. Don't miss this free event! #FacingtheUnknownwithHope help4hd.org/events

Dr. Stuart Red, uniQure Principal Medical Science Liaison joins us November 7th! Learn more about gene therapy candidate: AMT-130 at Help 4 HD Virtual HIPE!#Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease help4hd.org/events

"By wearing a medallion, members have access to a 24-hour hotline number that can be called by First Responders, enabling them to assist individuals in times of crisis..." ~Medallion Program (#Arizona) #Help4HD Resource Database: digitalgrowthfirm.adalo.com/…

Hear about these easy checklists to go through for your #HD family! Listen on #Help4HDTV as Jamie explains some examples of these tools you can implement to help make your safe space jut a little bit safer! #HuntingtonsDisease facebook.com/share/v/1D88Aet…

Part 2! Check out the 2nd part of Lauren's interview with Susanna Smith of Genetic Frontiers! #Help4HDLive #HuntingtonsDisease digitalgrowthfirm.adalo.com/…

Your #Help4HDTV host is bringing social worker Jamie Holloway to the show this week to demonstrate the #HD Safety Toolkit made especially for HD families! #Help4HD #HuntingtonsDisease #resources Listen 9am PST tomorrow: facebook.com/help4hd/reels/

NEXT SATURDAY! Listen in as Apexa Patel joins Virtual HIPE presenting Teva Total Support Patient #Support Program! We can't wait to see you there! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease #Register: help4hd.org/events

Uncover the facts of #HDResearch on Saturday Nov 7th! Dr. Martha Nance, Director at Hennepin #HealthCare #HD Center of Excellence, addresses questions on current #ClinicalTrials at #Help4HDHIPE2026!#FacingtheUnknownwithHope Register: help4hd.org/events