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EMIF

@IMI_EMIF

Improving access to human health data enabling new insights into diseases and treatments #EMIF #RWE

Joined January 2016
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  • Followers229
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EFPIA@EFPIA8 Nov 2017
Thanks to the development of a mobile application, @IMI_EMIF identified 10 plasma proteins associated with disease severity & progression for #Alzheimer’s disease #CarryTheTorch bit.ly/2yuOINw
Image from EFPIA (@EFPIA)
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Closure of @IMI_EMIF - can we create an inclusive system with Digital literacy & Collaboration- it's already happening in Estonia #EMIF17
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How do we link all the data sets to avoid stagnant silos ? A new generation of rules and regulations and Infrastructure #EMIF17
We want to achieve "a Learning Healthcare System" @johanvanderlei #EMIF17
The illusion of a lot of data - but still silos to overcome - and you need LOCAL data - Johan van der Lei #EMIF17
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Johan van der Lei on harnessing health data - Netherlands style -#EMIF17
Lili Milani of the Estonian Genome Project - impressive Bio-banking from Estonia as an example for Europe #EMIF17
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Our Secretary General @NABedlington on patient-centred data and reported outcomes at the #emif17 #Tallinn
Image from European Patients' Forum (@eupatientsforum)
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Nicola Bedlington @eupatientsforum focuses on Patient reported outcome measures from the Patient Perspective #EMIF17
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Session 4 @IMI_EMIF - Harnessing Health Data for Managing Patient Benefit/Risk - what new Processes do we need ? #EMIF17
'Crap research remains crap research, independent of who funds it' Lembit Rägo #EMIF17
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Lembit Rägo and the CIOMS perspective - we all agree "the Rationale" but people are not rational #EMIF17
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Alison Bourke @QuintilesIMS What is it about data that makes sharing more complex #EMIF17
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Participants WANT to be re-contacted in Data sharing - Pieter Jelle Vasser #EMIF17
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Pieter Jelle Visser Health Data sharing in Alzheimer's - valid research question + Acknowledgement + funding #EMIF17
Great session 2 - but the question is how do we scale up from the great examples given - encouraging #EMIF17
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Danius Pavalkis discusses open access to patient health data for improved EU research. @IMI_EMIF #openinnovation #emif17
Image from Duane Schulthess (@DuaneSchulthess)
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"Lets support "Team Science" to promote research inputs from each country" Dainius Pavalkis #EMIF17
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"two and a half million European scientific publications per year" Dainius Pavalkis #EMIF17
Dainius Pavalkis - Open innovation, Open Science & Open to the world #EMIF17
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