Intractable is a UK registered charity, set up to help families with medical cannabis prescription costs for loved ones suffering from Intractable Epilepsy.
United Kingdom
Joined June 2022
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Intractable Epilepsy retweeted
Researchers at Glasgow Caledonian University are developing a wearable headset to help predict epileptic seizures. The AI-powered device analyses brain and heart activity and has shown encouraging results in early tests. Click here to read more: bit.ly/3Nc4Uv2
Intractable Epilepsy retweeted
Today, we’re proud to spotlight @IntractableUK , our GreenShield Award recipient, and to honour the parents whose courage changed the course of UK medical cannabis history.
Nearly seven years after the law changed, too many families are still forced to privately fund life-saving cannabis medicines — often at enormous personal cost. #Intractable exists because those families refused to accept that injustice in silence.
Led by parents, powered by compassion, and sustained by tireless advocacy, Intractable continues to stand beside families navigating a system that still doesn’t meet their children’s needs.
This work saves lives.
And it’s far from finished.
We’re honoured to recognise Intractable — and to stand with every family they support.
#endourpain @End_Our_Pain
cannabissciencetraining.com/…
Intractable Epilepsy retweeted
Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition.
#InternationalEpilepsyDay #Epilepsy #EpilepsyDay #allontheboard – at London, England
Intractable Epilepsy retweeted
Yesterday we had the pleasure of meeting Baroness @MeacherMolly to explain our continued battle five years after the law was amended to allow children with treatment resistant #epilepsy to be prescribed medicinal #cannabis. We are very grateful of her support. #ForgottenChildren
We, at End Our Pain, are very grateful to Baroness @MeacherMolly for attending our event yesterday and speaking with affected families and individuals. We are even more grateful to her for raising the issues families face in the House of Lords. #forgottenchildren #medicalcannabis
Intractable Epilepsy retweeted
🌟 Thank you to all who attended the End Our Pain event! Special thanks to sponsors, collaborators, and inspiring individuals. Together, we can #EndOurPain. 💚🌿 #Gratitude #EventRecap #ThankYou
Intractable Epilepsy retweeted
Big shoutout to @amylsharpe from @DailyMirror for her exceptional coverage of yesterdays event, highlighting the challenges faced by patients of all ages. Together, let's unite for change and find relief for those affected. 💪 mirror.co.uk/news/uk-news/de…
Intractable Epilepsy retweeted
We, at End Our Pain, are very grateful to Baroness @MeacherMolly for attending our event yesterday and speaking with affected families and individuals. We are even more grateful to her for raising the issues families face in the House of Lords. #forgottenchildren #medicalcannabis
Intractable Epilepsy retweeted
It was a privilege to host @End_Our_Pain and @IntractableUK at Westminster today. We handed in a petition to 10 Downing Street calling for the provision of medical cannabis through the NHS, throughout the UK, for those suffering from intractable epilepsy.
Intractable Epilepsy retweeted
🌿✨ Mark your calendars for 6th November 2023, and get ready to embark on a journey of discovery during Medical Cannabis Awareness Week!
📍 Location: South West Academic Health Science Network (Vantage Point, Pynes Hill, Exeter EX2 5FD)
Join us between 9 AM and 5 PM at this prestigious venue for a day of enlightenment and exploration. Here's what you can expect:
🎤 Engaging Speakers: Immerse yourself in thought-provoking discussions led by industry experts and medical professionals. Gain deep insights into the world of medical cannabis and its potential to transform healthcare.
🌱 Virtual Option: Can't make it in person? No problem! We're offering a virtual attendance option, so you can join the event from the comfort of your own space.
🗣️ Interactive Sessions: Participate in interactive sessions that encourage open dialogue and knowledge-sharing. Ask questions, share your thoughts, and engage with like-minded individuals.
🌿 Breakout Workshops: Dive into our educational workshops, designed to help you understand the therapeutic benefits of medical cannabis. Explore topics like terpenes, dosing, and patient experiences.
💬 Community Connection: Connect with a diverse community of individuals who are passionate about the potential of medical cannabis. Share stories, learn from one another, and expand your network.
This event is your opportunity to be part of a growing movement dedicated to empowering patients and healthcare professionals through knowledge and collaboration.
Whether you're a healthcare provider, researcher, patient, or simply curious about the world of medical cannabis, this event is for you.
FREE in-person and virtual tickets available here: eventbrite.co.uk/e/medical-c…
Don't miss out on this unique experience! Save the date for November 6th and join us at the South West Academic Health Science Network. Together, let's work towards a healthier, more informed future. 🌱💚 #1MillionPatients #MedicalCannabisAwarenessWeek
Intractable Epilepsy retweeted
Fabulous day at @Product_EarthUK supporting @IntractableUK
Lovely to see everyone 🥰
@BenBoisterous @IamBuddyMary
Intractable Epilepsy retweeted
The long awaited NHS workforce plan will be published in full today. We will be reviewing it closely, looking for:
🧠 Neuro workforce reflected and considered
📈Long term projections
👏 Support for *everyone* involved in neuro care, including nurses and AHPs
💵Funding
Intractable Epilepsy retweeted
If you are part of the LGBTQIA+ community and have a neuro condition, please help us make sure you and your friends and family are represented in our neuro community portrait. Send in your photos now. Learn more: follow the link in our profile bit.ly/41XuaaZ #PicsF ...
Intractable Epilepsy retweeted
Can anyone help me get these golf clubs and bags to the @IntractableUK golf event? 🙏🙏🙏 I’m in East Yorkshire and they need to get to Hartsbourne Country Club for the 25th May 🙏🙏🙏
Intractable Epilepsy retweeted
Minister @willquince - that is why research is absolutely essential.
End Our Pain are calling on the government to meet with us and the charity @IntractableUK to discuss trials and a way forward for children with severe treatment resistant epilepsy.
hansard.parliament.uk/Common…
Intractable Epilepsy retweeted
Delays to lifechanging treatment and care. A lack of mental health
support for people with neuro conditions. #BackThe1in6 and join our call to set up a Neuro Taskforce to deliver real change.
Share the petition now: tinyurl.com/BackThe1in6
Intractable Epilepsy retweeted
Parent carers of children with SEND - we'd like to hear
from you.
Your feedback can help us make mental health support better for #parentcarers.
Link to our survey ➡️ bit.ly/spaceparentcarer
@Peninsula_ARC @NIHRSPCR @contactfamilies @CDC_tweets
Intractable Epilepsy retweeted
Happy Mothers Day to all the mums who fight everyday for their child’s health and their right to access medicinal cannabis on an NHS prescription.
You are all truly amazing.
#WeStandTogether #CrulleydeniedNHSaccess
Intractable Epilepsy retweeted
It angers me so much to see Epileptic children DENIED a medication that can DRASTICALLY IMPROVE their Quality of Life & their Health.
I've had Epilepsy since childhood. I was also undiagnosed for 12 years.
Had I had Cannabis back then, my life wouldve been very different.
Very.
Epilepsy and Medicinal Cannabis Awareness
Leading up to Purple Day on 26th March, we will be sharing patient stories and real life experiences.
Please watch Musa's short film, made by his family.
intractable.org.uk/epilepsy-…
Intractable Epilepsy retweeted
🇪🇺 New EU drugs policy provides platform for cannabis reform
🇨🇭 Europe’s first adult-use cannabis trial to launch in January
🇬🇧 UK charity supports child whose access to cannabis is under threat
This and more in Issue 278 of International Cannabis Weekly: prohibitionpartners.com/inte…
Intractable Epilepsy retweeted
💰Win £1,000 for Christmas💰
🎟 Tickets £5 each - here: intractable.org.uk/lottery
(Registered Charity no. 1199192)
Winning number will be drawn live at 2pm on Friday 23rd December 2022 - here: facebook.com/intractablechar…
#intractable #medicinalcannabis #epilepsyawareness #lottery – at Edinburgh, Scotland
