Thank you to @RepAuchincloss for co-sponsoring the PASTEUR Act! We had a great meeting with Legislative Aide Hailey Reed, talking about the urgency of bacterial resistant antibiotics. #cfadvocacy @CFF_MassRI @CF_Foundation
Jenica Leo retweeted
Until It’s Done — that means we celebrate this amazing news today, and we’re back to work tomorrow. Until everyone with #cysticfibrosis has a highly effective modulator. Until “CF” stands for “Cure Found.” #UntilItsDone #CFadvocacy
Today, the U.S. FDA approved the triple-combination modulator elexacaftor/ivacaftor/tezacaftor (Trikafta™) for people with #cysticfibrosis 12 years and older who have at least one F508del mutation. on.cff.org/31vq0a9
Friends, for nearly 15 years you have been loving on our girl in so many ways ... you have joined us as walkers, cyclers, hikers, runners, prayers, concert-goers, and check writers. And… instagram.com/p/B35f2ItBdTnW…
Jenica Leo retweeted
"We’ve always encouraged Ellie to dream big--college, career, family, travel, and more. With all the exciting advances that have resulted from so much research, we’re more confident than ever that Ellie will make her dreams a reality." -Jonathan Leo, parent to a child with CF
Thank you so much to Nikki Hurt at the office of @SenMarkey for taking the time to talk with us about the specialized care and concerns patients with cystic fibrosis require and face every day! #CFadvocacy @CF_Foundation @CFF_MassRI
Thank you Drea Shropshire from the office @RepMcGovern for taking the time to talk with us about the specialized care and concerns patients with cystic fibrosis require and face every day. #CFadvocacy @CF_Foundation @CFF_MassRI
Wonderful meeting with @RepJoeKennedy talking about the specialized care and concerns patients with cystic fibrosis require and face every day. #CFadvocacy @CF_Foundation @CFF_MassRI
The term #65Roses has been used by kids of all ages to describe #cysticfibrosis. But, making it easier to say doesn't make CF easier to live with.
On 65 Roses Day, you can help change that by joining the 65 Roses Club. 🌹 on.cff.org/65RosesClub
Ellie couldn’t stop talking about how sweet and adorable (and funny) all the kids were! 💜💜💜
Tomorrow is PURPLE DAY!! 💜 Today we got to meet ELLIE!!! We spent our gym class with her and even got her autograph!!! These firsties were SO excited! Thanks Ellie! #NPScelebrity #NPSpride #littleschoolbigheart
I could not love our Norton schools more!! 💜💜💜
My students and I had the great honor of hanging out with Ellie this morning!! She was an amazing guest and she taught us so much! #cfawareness #littleschoolbigheart #purpleday2019
@catherineluke49 @jcteachfirsties @MrsLyonsNPS @FalveyFriends @JLLeo8 @JerushaBjork
Abby Leo and Billboard award winning artist, Krisanthi Pappas are hosting a concert to benefit cystic fibrosis research ... only 50 tickets left!
Jenica Leo retweeted
It’s commonly understood by those who closely associate with me; that my inclination is leaning toward and to directly utilize methods such as this in my style of communication.
“I do this” – at Braintree, MA
Jenica Leo retweeted
Honored to be inducted into @Athletics Inaugural Hall of Fame Class with Rickey, Reggie, Rollie, Stew, Catfish and Charlie O.
