
Bedridden PoGM #SevereME #POTS #MCAS #hEDS #ChronicPain. There is no liberation without disability justice. #CovidIsAirborne
Joined November 2021
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If covid magically disappeared today, we’d still have to contend with the trauma that our loved ones are fine with killing and (further) disabling us just as long as they weren’t inconvenienced. And I don’t know how I’m supposed to heal from that.
I seriously can’t understand how can I be in so much pain and exhaustion and still live. I’m not exaggerating the pain I’m in is 10/10 feeling like on fire and acid is tearing apart my insides 24/7. And this is just ONE of the symptoms. #severeme #pwme #chronicpain
Just Looking retweeted
There’s an update on Savannah.
She's still in the hospital where they don't take her #severeME seriously and don't follow NICE guidelines. Full update in fundraiser.
Please share or donate if you're able.
gofundme.com/f/severemergenc…
Just Looking retweeted
This "study" is dangerous and misleading. Here's why:
They compared people who tested positive for COVID early in the pandemic (2020–21) with people who tested negative, then followed both groups for two years.
The problem: the people who tested negative didn't stay uninfected. Follow-up ran through Delta and Omicron. The authors themselves report 20% of controls had a positive PCR within two years, and that only counts recorded tests. By Feb 2022, CDC blood surveys estimated ~58% of Americans had been infected.
So by year two, they're comparing people infected early with people infected later. Of course the difference shrinks toward zero. That's control group catching up, not long COVID resolving.
The obvious check is to compare against similar people in the years before the pandemic. They had the data: everyone in the study needed claims from 2019, and they used four years of prior medical history. They didn't run it.
Not sure if this guy is just really stupid, or actively evil.
Just Looking retweeted
Freezing no heater.ripped out by abuser
Lung damage pain breathing cold air
Dysautonomia can’t regulate body temperature
Just Looking retweeted
The NBA injury thing speaks to a larger issue around now Long COVID is defined and talked about.
You have a player - Porzingis - who is clearly suffering from some sort of severe manifestation of Long COVID. His career appears to have been ended by it, and his health has impacted the teams depending on him.
But then, at the same time, you can see other players across the league who don't seem to have the same symptoms, aren't maybe stuck in bed, but nevertheless are removed from play by ruptured Achilles and other injuries which may not have happened had they not been infected with COVID. This is the bigger, more sinister version of Long COVID - the gradual destruction of people's bodies from repeat infections.
The power in society has defined the language of Long COVID in such a way as to effectively make the second group invisible, even though it may be as impactful or more so than the first group.
Illness has messed up my appearance so badly that I’m afraid of people seeing me. I don’t believe I can have or make friends looking the way I do on top of all my physical + cognitive limitations and the way the cognitive shit has eroded my personality.
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Just Looking retweeted
my deepest darkest kinkiest most fucked up fantasy is that there’s a hospital with all the doctors I need in one spot and they all communicate and are truly invested in me and work together and figure it out and I get better. and its $35
Just Looking retweeted
I still receive many requests asking for the noise at the air purifier’s highest setting to be lower. Although I’ve said this several times, I need to repeat it so that more people can see it:
1. If you want the maximum-speed CADR without the maximum-speed noise, it’s simple: use multiple units. For example, running one unit at 100% gives 379 CFM at 53 dB. Running two 5Pros at 50% gives 388 CFM at 45 dB. Running three 5Pros at 35% gives 387 CFM at 39 dB.
2. It may sound counterintuitive, but room air purifiers should be loud at maximum speed. This is because some people, at certain times, need the high CADR that comes with that high noise level. A good air purifier should offer a wide range of fan speeds so consumers can choose the speed that suits them. Even if the fan itself is very quiet, we still have to push its maximum speed to the point where it is noticeably loud, so that its operating range is wide enough to suit different people and scenarios.
air-fanta.com/blogs/all/is-t…
Yea I shouldn’t feel this way. Internalized ableism, desirability politics, blah blah blah. How do I not feel this way when almost every interaction of my life has been shaped by this?
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I literally forget I used to be funny, witty, intelligent, insightful, etc until someone randomly brings it up. That’s how bad brain fog can be.
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Just Looking retweeted
Short list of athletes who've developed blood clots since 2020:
NBA
Victory Wembanyama
Damian Lillard
Ausar Thompson
Brandon Ingram
Christian Koloko
NFL
Jalen Hurts
Chris Olave
Christian Barmore
Billy Price
NHL
Frederik Andersen
Brock Boeser
MLB
Merrill Kelly
Scott Oberg
Just Looking retweeted
You be serious. AIDS didn't kill anyone right away. It was a slow decline over years. That's very similar to what we're seeing with long covid. In another 10 years the comparison will likely be even clearer as more and more people are showing symptoms.
Replying to @starryeyedfemme
long covid is not causing widespread deaths like aids. be so fucking serious
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i don’t know anything about the lesbian bar, i didn’t read the article, i do not care. there is literally nothing in the entire world that could justify how people are talking about the disabled community right now
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Neither did HIV for several years.
We are very fucking serious.
Replying to @starryeyedfemme
long covid is not causing widespread deaths like aids. be so fucking serious
Just Looking retweeted
Working thread of published research on COVID 19. Every claim links to a real study. Published, peer-reviewed research from journals like Nature, The Lancet, BMJ, and Nature Medicine. Not speculation, this is what the mainstream science says. Please take it seriously.
Just Looking retweeted
Before I developed Long Covid, after one ‘mild’ infection, I had had one migraine, one bout of heartburn, one bee sting & one fractured rib.
I was not in ‘vulnerable’ group.
It still managed to disable me to the point where I lost my home, my job, my friends & my future.
#MaskUp
Just Looking retweeted
The disconnect between the millions of dollars being thrown at biosecurity / biodefense right now and the simultaneous mocking of people wearing masks is so painfully, tragically stark. A respirator is a tool, just like a biosensor or a biological countermeasure.
Just Looking retweeted
imma just have to ignore the mask hostility online. every year i see more and more people in my workplace put that mask back on during surges likely bc a few of us normalized every day use.
plus i get so many compliments on my lil mask charm ☺️



















