A 👶🏻🩵 | CSPD Primary Teacher | @TheMOGProject’s Australian Delegate & Medical Professional Outreach Specialist 📊| #OwnViews
Sydney, Australia
Joined August 2020
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#MOGAD US patient Summit 2026 you did not disappoint. Hot topics, research, patient perspectives, treatments, pregnancy, disease management & more with colleagues/friends near & far! All the way from Aus 🇦🇺🇺🇸👁️🧠🧬
@TheMOGProject @mlevy18 @ESotirchos Brenda Banwell @MyMyelitis – at Baltimore, MD
🤖 Made with AI
Jenny M Khazen retweeted
NEW results from our 2nd Propulsion Survey on life after a #MOGAD diagnosis are published in Neurology and Therapy. 261 patients/caregivers, 27 countries. Caregivers report far higher mental health impact than patients (92% vs 26%). doi.org/10.1007/s40120-026-0…
@Drjonsantoro @wearesrna @UCBUSA @JustJen_K
Jenny M Khazen retweeted
Our very own @JustJen_K , representing the interests of Australian #MOGAD patients all the way in 🇺🇸!
#MOGAD US patient Summit 2026 you did not disappoint. Hot topics, research, patient perspectives, treatments, pregnancy, disease management & more with colleagues/friends near & far! All the way from Aus 🇦🇺🇺🇸👁️🧠🧬
@TheMOGProject @mlevy18 @ESotirchos Brenda Banwell @MyMyelitis
Dr Brenda Banwell, an outstanding neurologist and an all time beautiful person discussing all things #MOGAD!
#MOGADUSSummit2026 @TheMOGProject @BrendaBanwell
Jenny M Khazen retweeted
Acute treatment in MOGAD
should be viewed as a disease-modifying intervention, where early, timely, and appropriately escalated therapy has the potential to alter long-term outcomes ! tandfonline.com/doi/full/10.… @EoinFlanagan14 @NeuroinmunUC @TheMOGProject
Jenny M Khazen retweeted
A historic moment for the MOGAD community!
Positive Phase III results from the METEOROID clinical trial mark the first successful MOGAD treatment study—made possible by the participants and their families.
As the pre-eminent global nonprofit for #MOGAD, The MOG Project calls this a “historic day” and applauds “Hoffmann-LaRoche/Genentech’s landmark achievement and their investment in finding new, safe, and effective treatments for MOGAD.”
Learn more: mogproject.org/meteoroid
Our school has done it again! 😃
On the news for the 100th time! Oliver Farag is my beautiful Y4 student, as well as my previous student, his sister Isabelle. Such a great school to be in. Go #SAPS! #PrimaryEducation @7NewsSydney
Jenny M Khazen retweeted
Vinod URGENTLY needs a STEM CELL TRANSPLANT DONOR for an aggressive form of cancer that will help give him the BEST CHANCE to come back home, hold his kids/wife & somewhat put this phase behind him & return back to normality. If you’re >18+ consider registering using the links below! @darshi_r #ThisIsBloodCancer #FightForACure #NoOneFightsALONE 🩸
International links for a current appeal
US - DKMS US: dkms.org/vinod
India - DKMS India: dkms-india.org/vinod
UK - DKMS UK: dkms.org.uk/vinod
Australia - Stem Cell Donor Australia stemcelldonors.org.au/appeal…
Jenny M Khazen retweeted
To support the cause most dear to me. Finding a stem cell transplant donor for someone from a minority ethnic group can be difficult as they are underrepresented on international World Marrow Donor Association registries. If you are >18 years old, consider registering:
Jenny M Khazen retweeted
Are you a woman >18 who is diagnosed with #MOGAD/#NMOSD? Help us understand family planing,🤰🏻& postpartum by taking this survey! docs.google.com/forms/d/e/1F…
🌏 team: @EthelScl, @mlevy18, @chenmayo, @EoinFlanagan14, @ESotirchos, @darshi_r, @dr_fiona_c, @JustJen_K, Julia & Bernardita
Transformed my 4 month old son’s hand & finger painting into a hot air balloon inspired by his favourite book ‘The World Needs Who YOU Were Made to Be!’ Combination of art, sensory & reading. 📖🎨🖌️
Jenny M Khazen retweeted
If you’re a woman >18 with #MOGAD or #NMOSD, we would like you to complete this survey to better understand family planning, pregnancy &/or postpartum in MOGAD & NMOSD!
Survey in English: docs.google.com/forms/d/e/1F…
Our international team: @EthelScl, @mlevy18, @chenmayo, @EoinFlanagan14, @ESotirchos, @darshi_r, @dr_fiona_c, @JustJen_K, Julia & Bernardita et al.. have combined to explore this HOT TOPIC & its importance.
Spanish: docs.google.com/forms/d/e/1F…
Jenny M Khazen retweeted
Only 1 week left to go until our FIRST ever ANZ #MOGAD patient Q&As support group meeting with our 3 experts; @darshi_r, @Benjamin_Trewin & @dr_fiona_c with hosts @JustJen_K & Kathy!
Rego link: us02web.zoom.us/meeting/regi…
October 14th, at 6pm AEST 🇦🇺🇳🇿👁️🧠
*This will not be recorded to protect patient privacy*
Jenny M Khazen retweeted
Delighted to share @andreuvilaseca7 et al study highlighting episodes of painful transient vision loss in #MOGAD ➡️ He came up with the interesting mixed Greek/Latin term of amaurosis fugax dolorosa ➡️ This may be an early clue to #MOGAD diagnosis 👇neurology.org/doi/10.1212/NX…
Jenny M Khazen retweeted
Ts, how are you making sure you hear from all your Ss – even the quiet ones?
This discussion routine, from educator @XpatEducator, can set them ALL up for success:
ALT "Think, Pair, Share" graphic includes paragraphs about what the strategy is and why it's useful, plus a flow chart with instructions for each step.
Jenny M Khazen retweeted
We’re keen to see an international study which follows relapsing #MOGAD patient’s MRIs from disease onset to relapses so we can get a better understanding of what happens to these patients paired with MRIs. Do they have atrophy? Neuropathy? Lesions completely disappeared? Lesions still active? 🤷🏻♀️
Jenny M Khazen retweeted
Here we go Australia! A special ANZ #MOGAD Q&As session with experts @darshi_r, @dr_fiona_c & @Benjamin_Trewin with hosts @JustJen_K & Kathy! 🧠👁️🇦🇺
🗓 Date: Tuesday, October 14th
⏰ Time: 6:00 PM AEST (Australian Eastern Time Zone)
👉🏻 Registration link: bit.ly/AUSNZ-Special-…
*Please note: This session will not be recorded to protect patient privacy!*
Jenny M Khazen retweeted
We often talk about a dream team, but we’ve rarely seen one with a Dr & their patient. Until now.. Dr @darshi_r our #MOGAD expert & @JustJen_K our Aus Ambassador taking her son (a beautiful miracle) to meet her neurologist who changed her life! We are so honored to have these 2 & that they have found each other through the midst of Jen’s MOGAD diagnosis & challenging journey. 🩵💚
