We support individuals who are living with KAT6A and KAT6B syndromes around the world. 🧬 We advance research aimed at developing treatments.
Joined February 2019
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Listen in as the Arsenault-Hall family discusses their KAT6 diagnosis and therapy journey.
youtube.com/watch?v=_gL8dWXb…
Huge thanks to Connections Beyond Sight & Sound, Maryland/DC's DeafBlind Project, and Dr.@jenistepanek for hosting and allowing our families to share their story.
In this interview, KATwalk Co-Chair Katie shines a light on Team Benjamin's KATwalk, taking place Friday!
@SpecialOlympics Unified Champion school @slps_lakers caps off Inclusion Week with a KATwalk to raise funds, awareness and support the Bator family.
fox17online.com/news/local-n…
Join @camraredisease on Wednesday, October 7th for a packed program of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
📷 In person or online
📷 Program & tickets: camraredisease.org/raresummi…
KATwalk tees are available in the KAT6 shop!
Whether you're showing your support as you KATwalk ANYWHERE or didn't purchase a tee at registration, we've got you covered! Items can be purchased online and shipped straight to your home!
bonfire.com/store/kat6-found… @Bonfire
Available now - the new KAT6 Foundation Flyer!
Offering a brief overview of what the KAT6 Foundation is, how we support KAT6 families, and what KAT6A and KAT6B syndromes are, this flyer is a great resource for your next fundraising event.
PRINT it here: cdn.prod.website-files.com/6…
It’s KATwalk month! We're THRILLED to have nearly 30 teams fundraising to make a difference in the lives of KAT6 families 🫶🏼
Reaching our goal allows us to drive research, fund Empowered Grants and strengthen our community.
DONATE today! donate.kat6.org/katwalk2026
Back to school season is upon us and @BillyFootwear is offering 10% off your order when you shop our exclusive link - AND they'll donate 10% back to our foundation!
billyfootwear.com/?ref=KAT6_…
Who might you bump into at @camraredisease #RAREsummit26? Meet researchers, clinicians, innovators, patient groups and people with lived experience on October 7th in Cambridge and online!
raresummit26.eventbrite.co.u…
A friendly KATwalk reminder for all our KATwalk ANYWHERE and virtual fundraising participants: the @customink fundraiser to order your 2026 KATwalk tee ends tomorrow - August 14th. Order yours today!
customink.com/fundraising/ka…
Considering hosting a KATwalk but don't know where to start? Creating a KATwalk ANYWHERE team is easy and a great way to support our largest annual fundraiser!
Create your team today: donate.kat6.org/katwalk2026
We're thrilled to share that @PCMarcogliese is a CIHR grant recipient, supporting work on his KAT6 research in collaboration with Dr. Philippe Campeau.
Congratulations! We appreciate your dedication to moving the needle forward for the KAT6 community.
We're excited to share our July 2026 Impact Report, highlighting some of what your donations made possible! We hope you'll take a moment to look through and see what we've accomplished together and the impact you've helped create.
cdn.prod.website-files.com/6…
Order your 2026 KATwalk tee today!
Walking at an in-person KATwalk event? Select "KATwalk Admission with T-shirt" at registration and select size at checkout.
Fundraising VIRTUALLY? Order your tees from our @customink fundraiser now thru 8/14.
DETAILS: donate.kat6.org/katwalk2026
Printable Resource - KAT6 Medical Checklist
Our KAT6 Medical Checklist is now available as a printable one-sheet, making it easier to reference and share with your child's care team.
Get your copy here: cdn.prod.website-files.com/6…
"The Foundation and its support group gave us hope by providing resources and connection with families navigating this diagnosis." - Team Ani
We truly walk for a brighter tomorrow, raising funds & awareness that allow us to continue supporting families
donate.kat6a.org/katwalk2026
Join us for our 9th annual KATwalk! 👟
We're fundraising to make a difference in the lives of KAT6 families and invite you to join an in-person walk in a city near you - use promo code KAT6 and save $5 per ticket now through August 3rd.
Learn more: donate.kat6.org/katwalk2026
Emma's Entourage is back for their 3rd annual KATwalk!
We appreciate returning KATwalk hosts who continue to support our mission year after year, helping build community and raise awareness for our foundation.
Visit us at donate.kat6.org/katwalk2026 to learn more.
We're excited to share this brief video created to help explain KAT6 syndromes in a way that is both scientifically accurate and easy to understand.
Special thanks to Jeff Worden, Patrick Kennedy, and @jderekhoward for bringing this resource to life!
📽️ youtu.be/iznVOsJMZfA
KATwalk season is officially underway and we're closing in on the first $10,000 raised toward our $175,000 goal!
We extend a warm welcome to first-time KATwalk hosts Les Tannants, joining us from Montréal, Quebec!
Visit us at donate.kat6.org/katwalk2026 to learn more.
We're thrilled to announce we're partnering with @BillyFootwear - a longtime favorite within the KAT6 community! Shop now using our exclusive link and you'll receive 10% off your purchase and 10% will be donated back to the KAT6 Foundation!
Shop here: billyfootwear.com/?ref=KAT6_…
