The leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD).

United States
Joined May 2012
Join us on Nov. 17 at noon ET for “Beyond Stages: Making Sense of Change in Lewy Body Dementia.” We will discuss why #Lewybodydementia progression is better understood as a pattern of changing needs rather than a step-by-step stage model. Register today: ow.ly/yOy35101bF8
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There is always more to learn about #Lewybodydementia, and the Lewy Body Dementia Association is here to help you keep going. Find these resources and more: ow.ly/lsnU5100OkF #LBDAwarenessMonth #UnderstandingChangesEverything
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This #LBDAwarenessMonth, deepen your understanding of LBD with free, on-demand Professional Education courses from the Lewy Learning Center. They offer resources and tools to better manage symptoms and help patients achieve a better quality of life. 🔗: ow.ly/tgMu5100Mle
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Before “Uncle Lewy” (as Todd Doty often calls #Lewybodydementia) entered his life, he was a jet-setting IBM executive and father of three. “The biggest thing was finding people who understood what I was going through,” he says. Read his story & give now: ow.ly/fRHM5100IEv
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Looking for answers, support, or a way to make a difference? This #LBDAwarenessMonth, you will find all three, and more. Learn about #Lewybodydementia, connect with others who understand, and find ways to take action, all in one place: ow.ly/mS485100lco
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The LBDA Research Centers of Excellence program is a collaboration between LBDA and the top experts in #Lewybodydementia at 27 medical academic institutions across the U.S., connecting the LBD community with highly-specialized physicians. Learn more: ow.ly/AR0t50ZZT6Y
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Now available on LBDAtv: “Diagnosing Dementia Beyond Alzheimer’s: Biomarkers, Clinical Insight and Lived Experience,” featuring Dr.Torres-Yaghi, who explores the diagnostic complexity of dementia syndromes with a special focus on #Lewybodydementia. 🔗: ow.ly/KZGp50ZZvT8
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Join the #Lewybodydementia (LBD) community on November 7 in Jupiter, FL, for the Memory Forward Glow Run 5K and 1-Mile Fun Run/Walk, a student-led evening of movement, hope and support for families affected by LBD. Register today: ow.ly/w6it50ZZ8Qc
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Help start conversations about #Lewybodydementia in your community, long after #LBDAwarenessMonth ends. Your free sticker pack includes LBDA and Understanding Changes Everything stickers. Packs are available while supplies last. Request yours today: ow.ly/VPiy50ZZ8xt
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Explaining #Lewybodydementia to someone new is not always easy, but a simple card can help start the conversation. LBDA's free “I Have LBD” Awareness Cards offer options for people living with Lewy and one for care partners. 👉 Download and print yours: ow.ly/yLff50ZYMPu
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Parkinson’s IQ + You is presented by The Michael J. Fox Foundation for Parkinson's Research and designed to empower you to manage the disease, learn about the latest research and connect with local resources. Register today at ow.ly/n27250ZYJo2
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Should participants in research studies be offered the option to receive their individual test results? For people with Parkinson's disease or dementia with Lewy bodies, that question has rarely been studied. Learn about a survey aiming to change that. 🔗 ow.ly/KSwI50ZYJcw
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One moment of understanding can change lives. This month, join us in moving beyond awareness toward real understanding of #Lewybodydementia. This #LBDAwarenessMonth, find trusted education, connect with support, and request your free sticker pack: ow.ly/r8T550ZYC9m
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With presentations from clinicians, researchers and experts from LBDA, @ClevelandClinic, and LBDA Research Centers of Excellence at the @UF and @UW, this conference focuses on advancing your understanding of #Lewybodydementia. 🔗: ow.ly/Rhk850ZYh7G
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Your generous donation to LBDA accelerates awareness, advances research for early diagnosis and improved care, and provides comprehensive education and support. LBDA connects and inspires people across the LBD community. Read their stories and give today: ow.ly/viqH50ZXQKW
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In “Diagnosing Dementia Beyond Alzheimer’s” on Oct. 15, Dr. Torres-Yaghi will explore the diagnostic complexity of dementia syndromes, focusing on #Lewybodydementia. He will be joined by those living with Lewy who will share their diagnostic journeys. 🔗 ow.ly/XojR50ZX0i3
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In complement to the comprehensive U.S. Based DIAMOND Lewy™ Management Toolkit, the DIAMOND Lewy ™ Trifold is a convenient, pocket-sized resource designed to support communication and awareness in everyday healthcare settings. Download the brochure: ow.ly/etac50ZWomO
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Join us in-person or online for the final conference in LBDA’s 2026 Community Conference Series, “Living Well with Lewy: A Day of Learning, Connection and Hope,” on Saturday, November 7 in Las Vegas, NV. Register now: ow.ly/kIVu50ZWozF #LBDAwarenessMonth #LBDACC2026
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#Lewybodydementia (LBD) can affect more than memory and movement. Hallucinations and delusions are common with LBD; and researchers are studying new ways to address them. Learn more about the ILLUMERA Study and see if participation may be an option: ow.ly/KQKH50ZW41y
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Understanding grows when we learn together. This #LBDAwarenessMonth, join us for webinars, conferences, community events, and more. Save the dates and register early, because space for some events is limited. Explore the full calendar: lbda.org/events
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