U.S. 501(c)(3) non-profit supporting those with Long COVID & others affected by the pandemic. Advocates for those with chronic SARS-CoV-2 & Ongoing-COVID.

Joined September 2023
The Long COVID Foundation has put together The Danger Dozen. 12 important papers that show the long term harm of a SARS-CoV-2 Infection & Long COVID. You don't want this virus & you don't want #LongCOVID. More below⏬ #pwLC #COVID #DangerDozen 🧵🧵🧵 longcfoundation.org/post/dan…
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Long COVID Foundation retweeted
If you haven't been tracking COVlD closely the past 8 weeks, it's important to know that the CDC has made sizable retroactive upward corrections over and over. What once looked like a small wave or wavelet has nearly doubled in height.
PMC COVlD Update, Oct 17, 2026 (U.S.) Early Release COVlD levels have rebounded into a secondary peak, as the CDC continues to retroactively correct levels upward. Outbreaks span 44 states (see Alt). Levels are falling in TX, still high out west, & up in the Northeast. 🧵1/3
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Long COVID Foundation retweeted
NYT Today: Any SARS-CoV-2 infection can trigger Long COVlD. Getting reinfected in perpetuity is like playing "Russian Roulette."
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Long COVID Foundation retweeted
Ventilation at @newyorkcomiccon is super insufficient for the crowd this year. COVID and other pathogens are spreading. We need safer #IndoorAir. Take precautions. @MsJulieSLam at #NYCC #MaskTogetherAmerica
“Heroes who wear masks: I’m looking for you!” @MsJulieSLam #MaskTogetherAmerica is at 2026 @NewYorkComicCon. “I wear a mask because I don’t want to get COVID.”— CS (Nott the Brave) said it for all of us. A mask protects you from all the pathogens spreading in the air! #IAmNYCC
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Long COVID Foundation retweeted
The Covid wave in England is growing very fast, & the overall Covid risk level has been raised to High. As of 4 October, 1 in every 175 people were infected, up 34% on the previous week. We recommend that Covid-Cautious people take full precautions anywhere indoors. A thread 🧵
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Long COVID Foundation retweeted
We invite you to read “Long COVID Lungs” and explore studies that expose serious outcomes that follow SARS-CoV-2 including the risks of Pulmonary Fibrosis, #Cancer and #Asthma. instagram.com/p/DeLJpPKx42l/… facebook.com/share/p/1B52777… #CleanAir #MaskUp
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Long COVID Foundation retweeted
Long COVID disability isn’t a mystery. If someone can’t work, think, stand, walk or function like they did before, that is a real loss of function even when routine tests don’t show the whole picture. Why is this still so difficult to understand? 👇 longcovidjourney.com/long-co…
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Long COVID Foundation retweeted
I see people running LC trials saying they can't meet basic standards of COVlD safety that exceed local norms. That's not how any of this works. A research study has the ethical obligation to minimize harm, especially with vulnerable populations, even where others fail.
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Long COVID Foundation retweeted
WastewaterSCAN data suggest an apparent national peak on the 13th US COVlD wave between Sep 8-13. Substantial transmission persists on the back end of waves. Mask up and get boosted. 💉💪😷 #DescentNeglect
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Long COVID Foundation retweeted
Could some #LongCOVID symptoms be driven by antibodies that turn against the nervous system? ➡️ Researchers found autoantibodies targeting proteins in the central and peripheral nervous systems in a subgroup of people with LongCOVID, particularly those with neurocognitive symptoms. ➡️ Remarkably, their IgG antibodies reacted with human brain regions and peripheral nerves, and some antibody levels correlated with neurological symptoms. 1/
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There doesn’t seem to be a specific SARS-CoV-2 viral & parts persistence biomarker RECOVER-TLC are going to analyze. How is that possible?! It makes no sense! These biomarkers aren’t specific enough. This has always been the issue with unsolved unresolved chronic pathogens & disease. Even if they found a unique pattern with these markers for Long COVID it still very likely won’t tell us what we need to know & probably won’t be useful as an actual diagnostic, which we desperately need. It’s 7 years now, demand better from the NIH because this isn’t it! #LongCOVID #pwLC #LCBiomarkersNow
RECOVER-TLC has published a list of 82 blood biomarkers to be measured in its Long COVID treatment trials. It's not a diagnostic test, and it won't change anything in the clinic for now. But it's worth looking at what's on the list, and especially what isn't🧵
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Long COVID Foundation retweeted
BREAKING: NYC COVID hospitalizations have passed the peak of the 2025 summer wave.
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Long COVID Foundation retweeted
Our animation highlighting the key results from @ERASE_LC
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Long COVID Foundation retweeted
Meanwhile, COVlD burns through California, and it's all crickets chirping.
🚨Breaking: California Governor Gavin Newsom has declared a state of emergency as a record breaking El Niño season develops across the world. abc7.com/post/california-dec…
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Long COVID Foundation retweeted
Long Covid is severely underreported
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Long COVID Foundation retweeted
BREAKING: NYS Covid cases continue to rapidly rise and even appear to be going straight up on the chart. 765 cases at a time, when most either do at home test or do not test at all.
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We can’t stress the importance enough of the need for tests and biomarkers for chronic SARS-CoV-2, Long COVID, and other unsolved unresolved chronic diseases and illnesses. Specific tests and biomarkers can transform “invisible,” poorly understand suffering and disease into measurable biological data. Data that explains the suffering and can be targeted by treatments. Without good tests and good biomarkers, chronic pathogens, diseases, or illnesses can always be dismissed and shrouded in vagueness, in many different ways. Take Chronic Lyme for instance. It’s called Chronic Lyme by the patients, because they understand that Borrelia and tickborne pathogens persist. It’s called Post-Treatment Lyme Disease Syndrome by the government and health agencies conversely. Good tests and biomarkers (and treatments) would clear up this discrepancy in understanding the patients have from the position the government and health agencies have decided to take. Decades after the IDSA’s “creation” of the term PTLDS, patients are still in the same position they were with their Chronic Lyme, with poor tests, biomarkers, and treatments. With good tests and biomarkers, which chronic pathogens like HIV and Hepatitis C have, the situation would be quite different no doubt. Patients need to know the root cause. We need to know so our trials function better. We need to know to spur drug development. We need to know what effectively treats our disease. It will be incredibly hard to solve Long COVID without approved specific biomarkers or diagnostic tests. Without them scientists and doctors are essentially trying to solve a puzzle in the dark. Heterogenous presentation matters not. HIV is heterogenous in presentation too. People sick with Long COVID still need and deserve test and biomarkers to identify their root cause(s) problem driving their symptoms. Demand tests and biomarkers from every org that advocates for Long COVID, government official, health agency official, etc. that you speak with. We sure will continue to because there is no universe where specific biomarkers and tests aren’t important to the outcomes of people suffering from Long COVID. #LongCOVID #pwLC #LC #BiomarkersNow
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Long COVID Foundation retweeted
Long COVID: Voices of Resilience Oct 9 | 5PM – 7PM ET 3 Q&A Sessions Featuring 💛Candace Taylor @CRPSConqueror 💚Peace Waters 🧡Marc Redding @aseatatthe2025 💙Co-sponsored by @PubHealthAction Register to join: masktogetheramerica.org/blog…  Hosts: @DrMarjorieRobe1 @MsJulieSLam
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Long COVID Foundation retweeted
Unchecked COVID spread remains the greatest assault on workers' rights in history. Happy Labor Day!
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