Pinned Tweet
For years #LongCovid patients have been reporting that organized, malign actors were targeting them on social media with the goal of silencing them and erasing our disease. Many LC patient accounts have been targeted and subjected to mass reporting resulting in suspensions. /1
New On Topic: "Viral Persistence & Long Covid. Parallels with HIV/AIDS" now available.
longcovidland.com/viral-pers…
These are the words of #pwLC. #LongCovid patients and caregivers telling their stories in their own words, in their own way. Testimony provided bravely, generously, and honestly.
Share yours in text, audio, or video format at:
longcovidland.com
Long Covid Land retweeted
Free editable Letter template to your Doctor re: Long Covid and co morbidities
docs.google.com/document/d/1…?
Long Covid Land retweeted
As a person who has been chronically ill since Dec 07 & having been given the diagnosis of me/cfs via ruling out everything else, Beth needs to know, it's Long Covid.
It's way past time Long Covid was properly acknowledged.
We’ve been blown away by the response to my interview with @BBCSport & @KatieFalkingham , thank you so much to everyone who has taken the time to read and engage with it ❤️ millions of views across multiple platforms really is immense.
We have since written to @andyburnham , calling on the @UKLabour government to fund research into this horrific illness. I know there’s so much more we could say, but with limited capacity, we’ve tried to focus on the lack of funding, resources in the NHS and how much it’s actually costing the government.
As you can see on the slides, it has been drastically underfunded compared to other illnesses and it is currently costing the UK Government far more than it would cost to fund research. ME is most often a post-viral illness. Therefore, since the start of the Covid pandemic, we’ve seen cases increase drastically and they will continue to increase. We need funding into research urgently. With estimates of people with ME being around 1.35 million, this is a lot of lives destroyed.
I’ve had thousands of messages on multiple platforms since sharing my story so please bear with me ❤️
Thanks to @ThereForME_UK and @wecrunchme for the stats.
Long Covid Land retweeted
📹 Petite vidéo de Ouest-France Rennes, qui était sur place à l’action conjointe pour le #CovidLong devant l’ARS de Bretagne à Rennes. 🪧 🔥
Avec @apresj20 cléenfant et Covid Long 35
Long Covid Land retweeted
🗣️ Les malades atteints de #CovidLong veulent être entendus !
Long Covid Land retweeted
🪧 Des images de l’action d’hier ! 🔥
2 ans de discussions, et rien de concret. Nous avons conjointement demandé à l’ARS de cesser de faire perdre leur temps aux malades et d’engager immédiatement de véritables actions.
New On Topic: "LC On Topic: Mast Cells and Long Covid. What nobody ever talks about." now available.
longcovidland.com/mast-cells…
Long Covid Land retweeted
Join @Dave_it_up and I for a conversation with @dbdugger about viral persistence in long Covid and what parallels we can draw from HIV/AIDS.
Set a reminder for my upcoming Space! xitter.cf/i/spaces/1rGmqpyVggqGy
Long Covid Land retweeted
Join me over on my podcast account @LCPerspectives to discuss👇
Tonight: Saturday 17th Oct 6pm UK 🇬🇧
xitter.cf/i/spaces/1qKVmyqybvAxB
Long Covid Land retweeted
Join @cb_grl for a discussion on Long Covid & Mast Cell Activation Syndrome
xitter.cf/i/spaces/1oKMvNAOapDGQ
Long Covid Land retweeted
How wonderful would it be if people would finally connect the dots!
Sadly though...
"brain damage was forewarned by those in the know"
and
"delusion is comforting when the whole world agrees, but the dots still line up for those willing to see"...
Lyrics in 2nd post.
Long Covid Land retweeted
Living with Long COVID, I’m tired of waiting for care, research and answers. I started Long COVID Action Canada to share evidence, gather patient experiences and hold decision-makers accountable. Check it out! All welcome! Please share! @LongCOVIDActCA #LCAC
longcovidaction.ca
Long Covid Land retweeted
Please sign and share my petition 👇Anyone can sign ✍️
c.org/FKF2TMLPHS sign here
CTA: To Develop and fund a national long covid strategy to protect patients and society.
I’ve started a campaign calling on the UK Prime Minister @andyburnham and his Government ~ to listen to people living with #Longcovid and take meaningful action
This campaign is UK-focused, but Long COVID is affecting people globally
c.org/qCSSyY5WMv
Cont 👇
Long Covid Land retweeted
On Topic is back from our hiatus to attend to health needs.
Join @Dave_it_up, @DarainChains and I for a conversation about mast cells, MCAS and all the stuff people struggle with but nobody ever wants to talk about…the embarrassing questions you always wanted to ask.
It’s not just about antihistamines and a low histamine diet. We dive into all the ways mast cells impact your body.
Set a reminder for my upcoming Space! xitter.cf/i/spaces/1oKMvNA…
These are the words of #pwLC. #LongCovid patients and caregivers telling their stories in their own voices. Testimony provided bravely, generously, and honestly. Share yours in text, audio, or video format at:
longcovidland.com
Long Covid Land retweeted
🧠 What happens when the person trying to understand you… doesn’t understand #LongCovid ?
In the latest episode of Long Covid Perspectives, I’m joined by Psychologist Päivi Montgomery, who knows the healthcare system from both sides.
🎧 Listen to E5
🔗 linktr.ee/longcovidperspecti…
Long Covid Land retweeted
Listen to Long Covid Perspectives Podcast here:
linktr.ee/longcovidperspecti…
We are now also streaming on YouTube
Long Covid Land retweeted
🎉 #509PPM : l'émotion est toujours là ! Après un peu de repos, on partage quelques photos supplémentaires d'ambiance, en attendant les captations. Nous commencerons à les publier à partir de la fin du WE, au fil de l'eau.
1/3
Long Covid Land retweeted
#509PPM Une semaine après le début de notre festival, retour en quelques images sur un week-end rempli de moments d'échanges, de soin communautaire et de musique 🔥1/3


























