MayRo (@MRoseRoberts) header
MayRo (@MRoseRoberts) profile picture

Chief Operating Officer @RareBeacon 🔥 | Diet Coke Addict🥤 | West Wing Aficionado📺 | Eurovision Fanatic🎤 | Keele Grad 2014🎓 | Views Are Mine 🗣

Cambridge, England
Joined June 2016
Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)
Excited to be in #Newcastle today with the @RareBeacon team, hosting the Final Conference on behalf of MCDS Therapy! Really interesting to hear from everyone who has been involved in delivering this project and clinical trial over the past 5 years. 💊
It’s almost time for the MCDS-Therapy Final Conference!! Lights, camera…almost action 😜 Get here safely! #McdsTherapy
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Already seen over 170 turn up for todays #RareShowcase23! Our biggest in-person turnout ever!! Looking forward to what promises to be an amazing day 😁
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
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Absolutely loved meeting Christine! 😄
One of the best parts of this year’s #WODC has been meeting @cmutena in person! 🧡 Christine runs Rare Disorders Kenya and has been part of our Patient Group Engagement Committee for the last 2 years - so pleased we could finally meet outside of a computer screen!
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Come say hello to me and my team! 👋
Come find us on stand 123 at #WODC! We’ve been told we’ve got some of the best swag of the conference! 👀🌟
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Heading to London bright and early for @RareBeacon’s #RareWorkshop on #DigitalFundraising! 💸 Looking forward to seeing some real life faces today!😄 #Tired #5amAlarm
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309 days to go
Welcome back to Malmö! 🇸🇪 Malmö will host #Eurovision for the third time on 7, 9, and 11 May 2024 🥳 All the details here ➡️ eurovision.tv/story/malmo-wi…
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What a showcase! Thank you so much for such a memorable night 🧡 #RareShowcase23
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Only went and lived my life dream of attending a grand final of #Eurovision LIVE at the weekend didn’t I 😱😱😱 Oh, and what’s more? I WAS ON THE TV!!! 👀👀 What. A. Night. CHA CHA CHA CHA CHA CHA CHA 💚💚💚
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Who voted Albania through to the #eurovision final, c’mon own up.
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Australia has me LIVING 🙌🏼🙌🏼🙌🏼 100% qualifying and I CANNOT WAIT to see it live on Saturday night. That is all.
Promise me it's gonna be all-ROIIIIGGHHHT 🇦🇺 #Eurovision
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Seriously, what do I wear to #Eurovision??
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Wow, look at what this person said. They are so wise. Listen to them and apply for one of @RareBeacon's job vacancies today! We're recruiting for a new Projects Officer and Communications Officer. Could it be you? 👀👀
Why join Beacon? Funny you should ask 🤭 We asked our COO, @MRoseRoberts the same question See what she said below and view our job openings! Apply to be our new Projects Officer or new Communications Officer by 9am on the 19th April! rarebeacon.org/recruitment/
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This song gives me LIFE and I cannot wait to see it live at the semi final! 💚💚 #eurovision #igottickets
We also need to be talking about Finland’s entry to #Eurovision this year.
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Excited to be at @camraredisease’s #RareFest this afternoon. Looking forward to catching up with familiar faces! 🦓
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Lovely to catch up with my rare friends 🥰🦓 @M4RareDiseases @RareRevolutionM @Ring20UK @SondraB_RareQoL @PittHopkinsUK @BehcetsUK
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Help @RareBeacon become charity of the year for Panther Taxis (our local taxi firm!). All you need to do is comment on their post and tag @RareBeacon. Simples! 👇👇👇
NOMINATE CHARITY OF THE YEAR 2023 We’re delighted to announce that following the success of our 2022 ‘Charity of the Year’ we are now seeking a Charity to support over 2023.
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Phil saying it louder for people at the back 🎤 Pay 👏🏻 Patient 👏🏻 Groups 👏🏻 For 👏🏻Their 👏🏻 Time 👏🏻 @RareBeacon
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Disappointing to see “patient centricity” speakers provide a complete non-answer to the Q on what industry can be doing to ensure patients & patient groups are appropriately supported & compensated for giving their time, expertise and experiences. #WODC
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No other experts in their field would be expected to contribute so much without receiving anything in return. Why is this seen as acceptable?
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My team is the best team 💕
Same venue, same conference, 2 years apart! Look how the family has grown 🥰 Thank YOU to every guest, speaker and sponsor for an amazing #DrugRepo22 Now if you excuse us we have a date with a nice restaurant to celebrate 🤗🥳
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