may12th (@May12th) profile picture
Joined September 2009
Photo by may12th (@May12th)Photo by may12th (@May12th)
Join Mariposa's award-winning artists for our 10th annual Benefit + Awareness event - all month, all online & all for charity! Enjoy music, videos, art, shopping and a $3,500 prize giveaway, all in support of the #ChronicIllness community & @mefmbc: benefit.operamariposa.com/
1
3
1
5
Join us Sat May 1st at 2pm ET for a webinar with Dr Alain Moreau #MyalgicE, #mecfs, #may12th, #MyalgicEncephalomyelitis #ICanCME
3
9
First tweet for ICanCME Research Network! Government of Canada invests $1.4M in biomedical research to improve the quality of life of people living with #MyalgicEncephalomyelitis canada.ca/en/institutes-heal…
8
29
5
65
may12th retweeted
Myalgic encephalomyelitis ― commonly known as chronic fatigue syndrome ― is a poorly understood multi-system disease that affects approximately 580,000 Canadians of all ages cbc.ca/1.5330712 @VikCBC
4
30
7
80
New research network brings fresh energy to fight against ME | Faculty of Medicine & Dentistry shar.es/a3n86v
5
12
To any clinical colleagues who may be in doubt...please validate patients’ experience when they come to you with clinical features of ME. Don’t slap patient in face with your disbelief. ME is recognized as real by peak health bodies world over. Validating is easy & authentic.
The #ME Strengthening Workshop is Underway Today Advocates from across Canada were invited to participate. Some were unable to travel. Agenda includes Presentations by Ian Lipkin, David Patrick & Alain Moreau Special thanks to @KarimKhan_IMHA #MyalgicEncephalomyelitis
9
70
16
177
Family of girl killed by ME reveal how they were told by doctors it was all in her head, before it robbed her of everything thesun.co.uk/fabulous/623517… #MillionsMissing @MEActNetAu #PWME #@NIH @NIHDirector @CDCgov @MEActNet @JanetDafoe @jenbrea
6
51
2
63
Nova Southeastern University is one of the few medical schools in America that has begun teaching ME/CFS. Here is medical student Sarah Deal presenting ME/CFS research. Visit our study page, consider joining our research. #MEAssociation #MEAction #MECFS nova.edu/nim/research/mecfs-…
3
40
9
93
Nova Southeastern University is one of the few medical schools in America that has begun teaching ME/CFS. Here is medical student Sarah Deal presenting ME/CFS research. Visit our study page, consider joining our research. #MEAssociation #MEAction #MECFS nova.edu/nim/research/mecfs-…
1
2
6
The dutch team is not just protesting but also participates in the challenge of @May12th to LightUpTheNight. We have 15 smashing locations on the list. Check out the events we dedicated to @MikesEUmaras @Invest_in_ME @DavidTuller @OpenMedF and many more! facebook.com/VerlichtME/
1
6
9
Like a real detective @davidtuller1 investigated flawed research, was intimidated as a journalist but exposed the truth. We #LightUpTheNight, in honour of our very own inspector Tuller. The police in Rotterdam gladly supports ME awarenessday ! Thank you all! @May12th xitter.gq/Politie_Rdam/status/99…
Vandaag vragen ME-patiënten wereldwijd aandacht voor deze ziekte, oa door gebouwen blauw uit te lichten Zo'n verzoek kunnen wij niet weigeren. Zoals altijd staat ons bureau langs #A20 #Rdam vanavond in blauwe spotlights, maar nu speciaal voor hen @MMissingHolland #WereldMEDag
12
13
#MECFS is a devastating illness that afflicts ~2,600,000 Americans Like the entire pop. of #Chicago being incapacitated by illness @AmmesAdmin @meadvocacy_org @OpenMedF @MEAssociation @MEActNet @Invest_in_ME @May12th #MEAwarenessDay #MyalgicE #pwME #MEAction #MillionsMissing
1
17
1
33
And @DOT is lighted up for ME awareness in support of @SteungroepME , an org. that has been fighting for basic social jurical rights for over 20 years . Yes, #pwME 20 years, that is right! @May12th pls RT
2
2
, @May12th Rotterdam (The Netherlands) colored Blue yesterdag for ME #VerlichtME #LightUpTheNight #may12th #MECFS #MECVS
1
6
7
Replying to @RareDiseaseGh
@RareDiseaseGh Africa we so proud to have worked together to make this happen #Fibromyalgia @May12th
1
3
4
After a meet & greet w. the #MillionsMissing in @Rotterdam we watched the city turn on the lights. This is teh @Euromast . Blu ein honour of the work of @Invest_in_ME and @MikesEUmaras #LightUpTheNight @May12th bit.ly/2wzpgqg – at Rotterdam, The Netherlands
2
16
35
※病気の症状や痛みの感じ方は個人差があります※みんな全く同じではないです #ステージもそれぞれです 多くの方に知って欲しいです 難病なのに難病指定にならず 悔しさ辛さがあります #5月21日は啓発デーです #線維筋痛症FMS #慢性疲労症候群CFS #筋痛性脳脊随炎ME #化学物質過敏症 MCS #拡散希望
12 mei is gestart in Rotterdam. Wereld ME dag is begonnen. Wereldwijd aandacht voor de ziekte ME! #LightUpTheNight #MECVS #WereldMEdag #May12th @May12th @hugodejonge
2
6
2
25
Today is #MECFS awareness day #MECFS in is a devastating illness that afflicts an estimated 200,000 Australians For more information go to: buff.ly/2Iz5tfB @EmergeAus @MEActNetAu @Change4MEAu @May12th @meadvocacy_org #MEAwarenessDay #MyalgicE #pwME #MillionsMissing
10
15
I have just started DOING HARM by @mayadusenbery and holy crap this is the reference book I’ve wanted for YEARS.
2
4
1
43