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Post Covid vaccine long hauler, now a chronic illness warrior💪

Joined May 2011
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We have lost loved ones, been left disabled and even diagnosed with cancer after taking the Covid vaccine - but no one will take our heartbreaking experiences seriously trib.al/yLcrIWt
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The Hidden Link Between Hypermobility and Vaccine Injuries How ligamentous laxity predisposes sensitive patients to vaccine induced microstrokes. midwesterndoctor.com/p/the-h…
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You can follow UKCVFamily on most social platforms 💜 Help us be SEEN and HEARD 💜 hopp.bio/ukcvfamily
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If you want some help navigating the evidence in the #longcovid #postvac and related #chronicillness space, I aim to help you sift through the evidence and not be alone on that journey Book an appointment here: lc-sc.co.uk/book-an-appointm… #POTS #MCAS #MECFS #teamclots
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Let's say it louder for the people in the back... #LongCOVID, and conditions that go with it like #POTS and #MECFS, are not "functional neurologic disorders", the rebranded new name for conversion disorder. statnews.com/2024/07/15/long… statnews.com/2024/07/15/long…
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RT @ukcvfamily: Please email your MP today and show your support for UKCVFamily's call for reform of the vaccine damage payment scheme. You…
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While the vaccinations are safe for most people, those who have heart palpitations, high heart rate at rest, hypermobile #EDS, #asthma or #autoimmune disorders are more likely to develop #POTS after the #COVID vaccine than the general population, according to this study. #SUTP
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UKCVFamily, supporting and advocating for those adversely affected by Covid-19 vaccination in the UK #covid #vaccineinjured #vaccinebereaved #support #charity #pleaseshare #donate #kindness
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Wow😲 1k views in 2 days! I hope that means folk found the paper interesting & more importantly that its an much needed piece of work! Thanks again to all involved in making it happen, participants & collaborators alike💛 #postvac #vaccineinjuries @Charletukcvfam @dylanarmbruste3
I'm very excited to announce that our survey data have now been published on a preprint: Characterising long COVID-like COVID-19 vaccine reactions zenodo.org/records/10582006 I've already summarised key findings in the thread below 👇🏻 #postvac #vaccineinjuries #medtwitter
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MCAS activated by Long COVID or MIS-C & MCAS activated by V-x or Post-V-x: CRITERIA FOR CLINICAL DIAGNOSIS researchgate.net/publication… Also for ME/CFS, Fibromyalgia, MCS POTS, Dysautonomia, Ehlers-Danlos Small Fiber Neuropathy(SNF) Anxiety, Depression, Panic Arthritis, Autoimmune Dis
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'Vaccine victims' left with life-changing injuries from the Oxford-AstraZeneca Covid jab say they've been censored online when speaking out trib.al/htScy0z
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October is Vaccine Injury Awareness Month. Join us as we raise awareness all month long to support everyone who has been affected by vaccine injury and Long Covid. Visit react19.org/purple-out to make a customized profile picture or simply turn your profile photo purple.
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Covid vax injuries finally being acknowledged. Are they so rare? “You see 1 or 2 & wonder if it’s a coincidence,” says Dr. Oaklander, a neurologist/researcher at Harvard Med School. “But by the time you’ve seen 10, 20….Where there’s smoke, there’s fire.” science.org/content/article/…
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In today's @Daily_Express ❤️🫂❤️
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Please share, someone needs to hear this today ❤️🫂❤️ @React19org @irish_cv_clan @Alex27740737 @scottish_vig @DrBuckland
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I get asked why I took the fucking thing. This was the world I lived in two years ago. Same as the vast majority of the world. No one in my world knew anything else because we weren't looking at anything else 24/7 but this. "This was my world today" youtu.be/faLE76p41dg
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