Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. ALS'ing since Feb. 2017.
Oklahoma City, OK
Joined July 2023
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What have I learned since having ALS? 1) Continuously need to adapt to your new body. 2) Caregivers are incredible. 3) Patience is a virtue. 4) Never trust a fart.
I've questioned religion. I've debated politics. I've challenged people's worldviews.
But nothing enrages people or causes more emotional devastation than me saying "Buc-ee's is overrated and just a gas station".
I'm convinced the beaver has a better PR team than Jesus.
Michael Wilson retweeted
Imagine being created without your consent, given a test you didn't ask for, judged by rules you didn't choose, and punished eternally for failing.
Then being told it's “love.”
Michael Wilson retweeted
I challenged Ken Paxton to a debate 85 days ago, but no one has heard from him.
People are getting worried.
I’ve received credible reports he's suffering from a rare condition that causes clinical levels of cowardice.
@KenPaxtonTX: I am asking for proof of ability to debate.
Checkmate, NYC! You really thought you could radicalize a credit card machine!? Fortunately, one of the President's most influential “advisers” was on the case. They almost got away with the screensaver. 🤣
Really great Everything ALS webinar with Dr. David Taylor and his Top 10 Exciting Things in ALS Research.
youtu.be/UpPDKX6XEN4?si=-ZX8…
Lol
Trump Pledges That If Voters Defeat Socialism In November, They Will Each Get An Equal Redistribution Of Wealth From The Government buff.ly/kRXF5x9
Can someone smarter than me explain how personally making billions while president is for the U.S.A.?
Oh, and I seem to remember a whole lot of outrage about politicians getting rich while in office. Where all my "Pelosi made millions while in Congress" peeps at?
This raises an important point about the harms of overpromising in #ALS research. Appreciate them addressing the consequences of how we communicate science. Hope, access, and urgency matter. But so does being honest about what we know...and what we don't.
neurology.org/doi/10.1212/WN…
...A terminal diagnosis creates a uniquely susceptible state amenable to hopeful misinterpretation of trial outcomes, a rational response to overstated results, particularly when they come from respected key opinion leaders and public communications...
Michael Wilson retweeted
Join us for the final North Star ALS ILLUMINATE: Precision Medicine webinar, Thursday, 9/3.
RSVP to hear from our Associate Director of Clinical Research, Laura Dugom, & a panel of experts as they discuss drug development, new data, and more #ALSResearch: northstarals.app.neoncrm.com…
Michael Wilson retweeted
Tomorrow, Target ALS VP of Scientific Programs, Amy Easton, PhD, will discuss the ALS treatment pipeline and breakthroughs as part of North Star ALS's Illuminate: Precision Medicine series.
📅 August 20, 2026
🕐 1:00 PM PST / 4:00 PM EST
Register here: ow.ly/KNsQ50ZBvZp
I agree with much of the this, but given the complexities of ALS trial design, biomarkers, heterogeneity, clinical meaningfulness:
What does the “right” expertise look like for an adcomm?
Does the composition of adcomm meaningfully change how we should view its conclusions?
Adcomms deserve the best and the brightest. realclearhealth.com/articles…
Honored to be part of this panel of amazing people. Hope you can join us!
northstarals.app.neoncrm.com…
Trump not being a conspiracy theorist on Lindsay Graham's death is making me a conspiracy theorist on Lindsay Graham's death.
cbsnews.com/news/trump-fbi-l…