#standwithlewis #Translarna Lewis and his family on TV tonight asking for medicine that is available in 22 European countries. tv3.ie/news_sub_page.php?vid…
Replying to @theSNP
@theSNP @MikeMattersDMD Michael Young (age11) is still walking and living life to the full after the SNP ensured he got Translarna, a life enhancing medicine. #SNP17
Please sign this petition. Little Lewis Harte is being denied Translarna. He is five years old and desperately needs this life enhancing medicine as quickly as possible. change.org/p/simon-harris-pl…
Managed Access Programme announced for Exondys51 by Sarepta Therapeutics. Suitable for deletions amenable to exon 51
investorrelations.sarepta.co…
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Cross Party meeting for Muscular Dystrophy on Wednesday focused on Adult Services @markichapman @h0pefulmummy @ActionDuchenne @jackiebmsp
Please support Duchenne families in Ireland
Here’s the link:
change.org/p/hse-ireland-ple…
A big Thank You to Fiona Fitzpatrick and Susan Dickson who, with help from Lloyd's Bank, raised £630 today for Mike Matters. WOW!!
Delighted that Michael won Pride of Forth Valley 'Young Person of the Year Award' for all his campaigning for Translarna.
Replying to @NicolaSturgeon
@NicolaSturgeon Big congratulations from me and all my team. Looking forward to seeing you again with mum and dad x
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Replying to @MathesonMichael
@MathesonMichael congratulations and thank you for the awesome support. See you soon x
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Replying to @jackiebmsp
@jackiebaillie16 we are delighted for you and appreciate all you do for MD. look forward to battling on with your amazing support.
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@JimEadieSNP very disappointed for you and thank you for everything you have done for Duchenne. We hope to keep working with you in future.
We cannot believe Craig is making his year so itchy for Duchenne! xitter.gq/gillespie_fiona/status…
Not shaving for a whole year ! What a challenge ...#duchene #mikematters @MikeMattersDMD justgiving.com/growwild
Uncle Martin is making a muddy splash!
justgiving.com/MikesMudders2…
This could be SMC or FDA, different countries, same story... #makeduchennehistory xitter.gq/theracetoyes/status/72…
Pat Furlong: @ParentProjectMD urges for flexibility for rare disease assessments. #MakeDuchenneHistory
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Austin tells us "I can now feed myself". This isn't about breaking records, just living life. #MakeDuchenneHistory




