Ask R U OK today and any day, because a conversation could change a life. We have created a fact sheet to help you ask, ‘Are you OK?’ and meaningfully connect with the people in your world. #RUOK @ruokanyday 🔗Read our fact sheet here: neuroendocrine.org.au/resour…

From 1 September, pembrolizumab, sold as Keytruda, will have expanded PBS access for eligible patients with advanced or metastatic immunotherapy-sensitive cancers. This includes bile duct, ovarian and the rare skin cancer, Merkel cell cancer. Read more: ow.ly/KrRk50ZHwLe

NECA welcomes the PBS listing of Selpercatinib (Retevmo) for eligible Australians living with advanced or metastatic medullary thyroid cancer (MTC) with RET mutation effective from 1 August 2026. Read more: ow.ly/i7o050ZyleV

9+ years to diagnosis. 60%+ diagnosed after it's already spread. That's the reality PLANETARI was built to change. $3M in new national funding, co-designed with NECA, for neuroendocrine cancer patients. Read more: ow.ly/v9Rn50ZoabP

This year, NeuroEndocrine Cancer Australia continued to expand our reach and impact thanks to the incredible support of our community. Read the 2026/2027 Impact Report here: neuroendocrine.org.au/about/…

📢 SCAN 2025 is open! Share your voice to improve NET patient care. Take the survey: neuroendocrine.org.au/advoca… #NETs #INCA #SCAN

Ask R U OK today and any day, because a conversation could change a life. We have created a fact sheet to help you ask, ‘Are you OK?’ and meaningfully connect with the people in your world. #RUOK @RUOKAnyDay 🔗Read our fact sheet here: ow.ly/7EFa50WTC5b

We welcome the Government’s response to the Senate Inquiry into equitable access to diagnosis and treatment for rare and less common cancers including neuroendocrine cancer. We'll soon share what this means for neuroendocrine cancer patients, families & carers across Australia.

Meredith Cummins CEO of NECA and Cathy Bouvier CEO of Neuroendocrine Cancer UK invite you to a special free educational event designed for nurses, by leaders in neuroendocrine cancer care on 17 Sept. 🔗 Register now: ow.ly/uTwy50WypXW

Rare cancers are often misdiagnosed for years. NECA CEO Meredith Cummins has spent 40+ years supporting patients and helped lead a campaign to reduce a life-saving drug from $12,000/month to just over $30 on the PBS. Listen to the ABC Radio National I/V ow.ly/UAxU50WiNkq

Join us for the Will Norman Nurse Online Webinar on Neuroendocrine Cancer, a free 1.5 hour education session and .5 hour live round table for questions and discussions to follow. 🔗Register now: ow.ly/mg2v50VYYbP

We're pleased to see Mark Butler MP continuing as Minister for Health and Aged Care. It has been a pleasure to work with Minister Butler in recent years. His understanding of NETs has made a real difference to our community. 📷: MarkButlerMP

This rare genetic, and in some case not genetic, condition can cause complex cancers including certain types of #NETs. #VHL affects around 1 in 36,000 people worldwide and can lead to the development of tumours in multiple organs. To read more go to: ow.ly/iAJK50VNoIw

NECA is seeking corporate sponsors to help fund vital projects like March4NETs, Patient Forums, NET Nurses and printed resources so we can create more support, more awareness, and better outcomes for everyone living with NETs. For further information: ow.ly/ZlVG50VNn9z

📣 Registrations are now open for the Adelaide NET Patient Forum This is a fantastic opportunity to hear directly from leading NET clinicians, ask questions, and learn more about the latest treatments and Clinical Trials. 🔗 To register, go to ow.ly/Y5FH50VF8M0

Omico’s recent ‘Cancer and Genomics Webinar’ saw 80+ participants join on 6 February 2025 to explore how precision oncology and comprehensive genomic profiling (CGP) can help match patients to targeted treatments and clinical trials. Watch here 👉🏽ow.ly/jStr50VjEju

Today is #WorldCancerDay. United in our message, unique in our stories. Let's come together to rewrite the future of cancer care - one where the needs of people and communities come first.

This #WorldCancerDay on Tuesday 4th February, let's come together to rewrite the future of cancer care - one where the needs of people and communities come first. #UnitedByUnique worldcancerday.org/

🎄NECA will be closed 24/12/24 to 3/1/25👉🏽During our closure time if you need support, you can contact the Cancer Council on 13 11 20. 💙We wish everyone a safe, happy and healthy holiday season.

🎥 It’s here! If you missed our recent Melbourne NET Patient Forum, you can now watch it on demand! ow.ly/LSAy50UqnnK #NETs #LetsTalkAboutNETs