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nf2

@NFtwee

#NF2:a rare incurable disease.Diagnosed at age 9, my daughter Hellen died at age 21,after numerous operations and radiation therapy.Please find a cure. #EndNf

Joined July 2015
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Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)Photo by nf2 (@NFtwee)
NF affects approximately 128,000 in the US alone and 3,000,000 worldwide. #NFfactfriday
Image from NF Hope Concert (@NFHopeConcert)
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A True Scottish Hero #HelpLuke Raise #DIPG Awareness #DIPGTAC @tracybarnes26 @carvotta_wendy @jonathanagin @ISF_PA @irnbru @CahonasScotland xitter.gq/HelpLukeStewart/status…
#HelpLuke (@HelpLukeStewart) profile picture#HelpLuke@HelpLukeStewart15 Jun 2017
Please RT to raise awareness of Luke, DIPG and the pioneering treatment in Mexico #HelpLuke
Image from #HelpLuke (@HelpLukeStewart)
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Dergelijke programma,s zijn kerntaak publieke omroep. Echt een verkeerde ontwikkeling dit. @NPORadio1 . RT aub als u t hiermee eens bent xitter.gq/volkskrant/status/8752…
de Volkskrant (@volkskrant) profile picturede Volkskrant@volkskrant15 Jun 2017
Halvering zendtijd dreigt voor onderzoeksprogramma's Argos en Reporter volkskrant.nl/media/halverin…
Image from de Volkskrant (@volkskrant)
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A simple expiation. #NEUROFIBROMATOSIS #NFawareness #NF1 #NF2 #Xchwannomatosis #endNF fb.me/2UOadBfnl
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Despite losing her leg at 11 due to complications from NF, @savannapageau defines #courage. She is #NFStrong! #NFStrongTuesdays
Image from NF Hope Concert (@NFHopeConcert)
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Naar Raad van State om vakantieresort Brouwerseiland in het Grevelingenmeer ad.nl/zeeland/naar-raad-van-…
Naar Raad van State om vakantieresort Brouwerseiland in het Grevelingenmeer

Naar Raad van State om vakantieresort Brouwerseiland in het Grevelingenmeer

ZIERIKZEE - Verschillende organisaties, waaronder de Zeeuwse Milieufederatie (ZMF), stappen naar de Raad van State om te voorkomen dat wordt begonnen met de aanleg van Brouwerseiland. Dat bleek...

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Please retweet. Please support me during my speech about pediatric cancer and DIPG. facebook.com/events/13561020… – at California, USA
Image from #KatherineTheBrave (@Katie_The_Brave)
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Vanavond openbare raadscommissie over #Brouwerseiland. Ook Kustbeschermers welkom. 19.30 u Gemeentehuis in Zierikzee
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Team St. Semmy heeft ongeschonden de finish bereikt van @LimburgsMooiste. Meteen genieten van @Gulpener biertje @youpvanthek @LakdoorTijn
Image from Stichting Semmy (@Stichting_Semmy)
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2017 von Recklinghausen Award goes to Karen Cichowski, PhD, for years of commitment to research @BrighamWomens #EndNF
Image from Children's Tumor Fdn (@ChildrensTumor)
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Congratulations @allawayr, @Sagebio, and Synodos for NF2 for receiving the 2017 excellence in team science award from @ChildrensTumor #ENDNF
Image from Sanchez Lab (@SanchezLab_D)
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From process to progress, Team Moss thanks you for bringing the world's best together to #endNF for the 2017 NF Conference @ChildrensTumor
Image from Renie Moss (@RenieMoss)
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World’s Largest Gathering of NF Experts To Be Held June 10-13 in Washington, D.C. ctf.org/news/worlds-largest-… #EndNF #pressrelease #wdc #news
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WOW! Amazing, really goes to show being deaf can't stop you from doing what you want. #deafkidsrock #deafculture xitter.gq/agt/status/87227129950…
America’s Got Talent (@AGT) profile pictureAmerica’s Got Talent
@AGT7 Jun 2017
Need proof that you should never give up on your dream? This is @mandyharvey. #AGT xitter.gq/AGT/status/87227129950…
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#lakdoortijn @youpvanthek @Wendy_Ushi @Stichting_Semmy @DannisVV. Maak een selfie met Tijn op kanaal Ziggo. Ziggo doneert 5 euro per selfie!
Image from Haaikneuter (@haaikneuter)
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#GOOD_LAK to #NailDIPG xitter.gq/dannisvv/status/870417…
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Less than 20% of brain tumour patients survive beyond 5 years. This needs to change. Please RT and raise awareness. braintumourresearch.org/camp…
Image from Brain Tumour Research (@braintumourrsch)
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Vannacht is onze #rolstoelbus #gestolen #losers Dit was de enige manier om onze dochter te vervoeren. #GetALife Gespot? Stuur een DM.
Image from Erwin Sprengers (@SprengersErwin)
Image from Erwin Sprengers (@SprengersErwin)
Image from Erwin Sprengers (@SprengersErwin)
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“We were pretty much told that unless a clinical trial comes up, there’s nothing else they could do for us." #DIPG wncn.com/2017/05/25/child-wi…
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May is Neurofibromatosis Awareness Month, #knowledge is key 🗝 #educate #EndNF #medical – at Brampton, Ontario
Image from Neurofibromatosis ON (@nfontario)
Image from Neurofibromatosis ON (@nfontario)
Image from Neurofibromatosis ON (@nfontario)
Image from Neurofibromatosis ON (@nfontario)
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