Writing up my #PhD a realist evaluation of coach learning & development programme @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS

York, uk
Joined November 2010
NickyProctor retweeted
Gisteren verscheen er een stukje in Men's Health @MensHealthMag over ons onderzoek, en waarom ook profatleten long covid kunnen ontwikkelen (en hoe je het kunt onderscheiden van overtraining/gewone vermoeidheid): menshealth.nl/nieuws/wat-is-… #coverboy :)
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NickyProctor retweeted
On 29 October, ME Research UK is one of the beneficiaries of BED for Severe M.E., an annual awareness day created by ME Foggy Dog and Stripy Lightbulb CIC. It supports organisations working to improve the lives of people affected by ME/CFS. meresearch.org.uk/me-foggy-d…
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#DearAndy We've written to @andyburnham about Olympic sprinter @BethDobbin recent outreach to him. Features: Dickens, Monbiot, disease prestige & twiglets! 🖇️ 👇 Link below
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NickyProctor retweeted
We’re really pleased that our MP email template has been supported by wider ME organisations via Forward ME 🫶 If you have the energy, you can help support @BethDobbin’s call for ME research funding by writing to your MP. More here 👇
Olympian @BethDobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - and to make things easier, we have a template for you.👇
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NickyProctor retweeted
Olympian @BethDobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - and to make things easier, we have a template for you.👇
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17 new job vacancies in York. Includes Social Workers (£50k), Information Officer (£31k), Family Hub Coordinator (£28k), Support Workers (£31k), Housing Projects Coordinator (£34k) and several school-based teaching and support posts westfieldnewsfocus.wordpress…
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NickyProctor retweeted
This interview with Guardian columnist George Monbiot about the poor treatment of people with ME/CFS has been viewed 32,000+ times!! youtube.com/watch?v=MaaeQ7cr…
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NickyProctor retweeted
Full segment (7 mins) BBC Radio 5 Live: Olympic sprinter Beth Dobbin on living with ME/CFS and interview with Dr Binita Kane youtu.be/niUp0z3NrW0?is=TabS…
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NickyProctor retweeted
“I’ve gone from training five hours a day to being bedbound 22 and a half hours a day.” Former GB sprinter Beth Dobbin describes how #ME has changed her life. #MECFS
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NickyProctor retweeted
bbc.co.uk/sport/athletics/ar… Brilliant interview/article by @BethDobbin & @KatieFalkingham “Beth Dobbin is so determined to raise awareness of the illness that has decimated her life that she is speaking out, despite knowing it could trigger a brutal deterioration in her health.”
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NickyProctor retweeted
1/3 Huge thanks to Olympic athlete Beth Dobbin for using her limited energy to share her story & raise awareness of the severely debilitating effects of ME & the lack of clear NHS pathways. We hear of situations like this all too often. What exists in terms of “specialist care”
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NickyProctor retweeted
"There is nothing out there. There is nowhere to go. You go to the GP and there's nowhere for them to send you to. It's really at the back of the queue as far as research, knowledge, expertise, funding." Thank you for talking so honestly about #ME Beth. I’m so sorry 🫂
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NickyProctor retweeted
This article is spot on. No psych nonsense. Factual. Well described. Well done @BethDobbin Thank you for your honesty and insight. It means so much to everyone battling this neglected and misunderstood illness.
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NickyProctor retweeted
Replying to @DeanEggitt
Have you read Raina McIntyres recent publication? SARS-2 found in 80% of A&E air samples, despite meeting standard ventilation requirements. NHS Wales data shows a significant %SARS2 in pts is hospital acquired. We really need to clean the air and have mask mandates in A&E
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NickyProctor retweeted
I wanted to film the sunset for any ME/CFS people, long covid people, fibro people, or anyone with an illness that keeps them inside or in bed. It’s there waiting for you, I hope, I pray you feel better soon.
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NickyProctor retweeted
Replying to @bmj_latest
A major way to ensure a patient with disabling fatigue (like this author) feels supported is for clinicians to familiarize themselves with fatiguing illnesses like ME & POTS, and to push for these IACIs to actually be taught in #MedEd. Why isn't ME even mentioned in this article?
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NickyProctor retweeted
4/8 Der Vorgang wirft dabei fundamentale Fragen auf. Üblicherweise erhalten Autoren vor Veröffentlichung einen Korrekturabzug zur Freigabe. Wie konnte hier also eine inhaltlich veränderte Fassung ohne erneute Zustimmung veröffentlicht werden?
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A handbook chapter claiming that people with ME are "aggressive" and "hypochondriacs" has been amended, with the publisher claiming that these assertions did not originate from the authors. Who then did they originate from?
1/8 In einem Verhaltenstherapie-Handbuch der Springer-Verlag GmbH wurden Aussagen über #MECFS veröffentlicht, die nun laut Verlag gar nicht von den beiden Kapitelautoren stammen. Ein offizielles Erratum legt sich fest: Die veröffentlichte Fassung war nicht autorisiert.
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