~Since 2012, a community of parents sharing strength, support, information, and resources as parents who have children with POTS or other forms of dysautonomia.
Joined May 2014
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*Not intended as legal or medical advice. Verify all information for yourself, and always check with your doctor before making any changes.
Medication recall! Does your kiddo take generic Zyrtec? Check to see if your brand has been recalled. #Dysautonomia #POTS #POTSparents
⚠️ RECALL ALERT: Unique Pharmaceutical Laboratories is voluntarily recalling 4 lots of Cetirizine HCl Tablets USP 5mg (Zyrtec generic, NDC 16571-401-10) due to possible cross-contamination with ranitidine. This is a risk for anyone allergic to ranitidine. Check your bottles.
Details: fda.gov/safety/recalls-marke…
#DrugRecall
More studies from different groups are coming out suggesting that #POTS may be a neuroimmune disorder with downstream effects on cardiovascular, GI and other manifestations. My comment on the topic.
heartrhythmopen.com/article/…
Are you or your kiddo on Cymbalta/duloxetine? If so, check with your pharmacist about this safety recall. #Dysautonomia #POTS #LongCovid #POTSparents
Are you taking duloxetine (generic for Cymbalta)? There is an FDA recall of this drug so please check with your pharmacist.
abcnews.com/GMA/Wellness/ant…
POTSibilitiesParents retweeted
Glad to be a part of the consensus-2 diagnostic criteria for mast cell activation syndrome #MCAS and this new review. MCAS is comorbid with #dysautonomia and #EDS, and the most frequent comorbidity of MCAS is #POTS (from our prior study).
degruyterbrill.com/document/…
POTSibilitiesParents retweeted
An antiviral pill has, for the first time, been shown to prevent COVID-19 in people exposed to the SARS-CoV-2 virus
go.nature.com/4nAMi6g
PCOS has a new name! It’s being changed to more accurately reflect the condition’s multisystem and diverse features. The new name is polyendocrine metabolic ovarian syndrome (PMOS). #Dysautonomia #POTS #LongCovidKids #POTSparents #PCOS
thelancet.com/journals/lance…
Wishing a lovely Mother’s Day for all the moms and people in mom roles, who love deeply and fight fiercely. 💗🌸 #POTS #POTSparents #LongCovidKids
Did your kiddo have a heart monitor between July 2022 and July 2024? Check with your doctor about the software issue that caused these heart monitors to be recalled. #Dysautonomia #POTS #POTSparents #LongCovidKids
medtechdive.com/news/philips…
Very honored to have been invited to join the Neurological Agents Working Group for the NIH RECOVER-Treating Long COVID initiative. Looking forward to discussing and reviewing potential therapies for #LongCovid.
@AANmember @Jacobs_Med_UB @DrABrashear
For Americans who get their health insurance through the Marketplace (Obamacare/ACA), open enrollment ends December 15. #Dysautonomia #POTS #POTSparents #LongCovidKids #healthcare
Learn from pediatric POTS expert, Dr. Jeffrey Boris, in this upcoming, free webinar from @Dysautonomia ! #Dysautonomia #POTS #POTSparents #LongCovidKids
Join Dysautonomia International on Nov. 12th for a free webinar with Dr. Jeffrey Boris to discuss his new research findings from his survey on long term outcomes in pediatric #POTS. Register at bit.ly/DysWebinar_Nov12
ALT Turquoise graphic with Dysautonomia International logo. Free Webinar - Nov 12, 2024, 7pm Eastern. Research Update: Long Term POTS Outcomes. Speaker: Dr. Jeffrey Boris, Pediatric Autonomic Specialist, Jeffrey Boris LLC
POTSibilitiesParents retweeted
Suffering through years of diagnostic delay and misdiagnosis is not acceptable! Help us reduce diagnostic delays in #POTS and other forms of dysautonomia by making a contribution to support our clinician education programs at CureDys.org. #DysautonomiaAwarenessMonth
ALT Comic graphic showing illustration of row of doctors. "POTS patients see an average of seven doctors and wait for years before receiving a POTS diagnosis."
Pediatric POTS expert Dr. Jeffrey Boris, speaking on his research on long term outcomes in pediatric POTS! #Dysautonomia #POTS #POTSparents #LongCovidKids
Join Dysautonomia International on Nov. 12th for a free webinar with Dr. Jeffrey Boris to discuss his new research findings from his survey on long term outcomes in pediatric #POTS. Register at bit.ly/DysWebinar_Nov12
ALT Turquoise graphic with Dysautonomia International logo. Free Webinar - Nov 12, 2024, 7pm Eastern. Research Update: Long Term POTS Outcomes. Speaker: Dr. Jeffrey Boris, Pediatric Autonomic Specialist, Jeffrey Boris LLC
POTS families, a great opportunity to support Dysautonomia International while getting yummy food! #Dysautonomia #POTS #POTSparents #LongCovidKids
Friday, Oct. 18th, Panda Express will hold a virtual fundraiser during #DysautonomiaAwarenessMonth to benefit Dysautonomia International. All US locations will be participating during open hours (10:30am-9:30pm, varies by location). Learn more at bit.ly/DysPanda
ALT Graphic with Dysautonomia International logo and photo of Panda Express food.
