Primary Palliative Care Research group: Usher Institute, University of Edinburgh. Palliative and anticipatory care research in primary care.
Edinburgh, UK
Joined May 2010
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PPCRG retweeted
What evidence is needed for better end of life experiences? What questions should research address? Our blog is now live - highlighting what happened since 2015 with the @PeolcPSP top 10 and our new project to refresh the research priorities #peolcpsp.
blogs.bmj.com/spcare/2023/09…
Interested in #ACP (care planning) in Scotland? Our project 4ACP ed.ac.uk/usher/primary-palli… is looking for a couple more primary care practices to test AnticiPal. (in GGC, Lothian, Highland, Forth Valley). Give us a shout if this might be you. #palliativecare
Useful contribution to the issue of operationalising palliative care for people living in rural communities with issues around how specialist and primary palliative care can work together.
The key elements which signal improved care outcomes are: care coordination; care planning; digital health; and using methods to prepare, inform and motivate patients and families. #hpm #hapc buff.ly/3QuGhcG
This is emblematic of the fact that planning needs to be a constant dialogue. Absolutely central to implementing primary palliative care.
Fluctuating decision making about aging-in-place/long term care planning among older adults. #geriatrics agsjournals.onlinelibrary.wi…
PPCRG retweeted
Fluctuating decision making about aging-in-place/long term care planning among older adults. #geriatrics agsjournals.onlinelibrary.wi…
PPCRG retweeted
No tweeting from me (@drpoco) yesterday due to a busy clinical day.
A significant part of my role as a GP is offering patients and their loved ones the opportunity to plan for their future care. We call this Advance Care Planning (ACP).
PPCRG retweeted
Continuing my (@drpoco) PELiCam takeover, let's talk about primary palliative care...
Did you know that most people in the UK die at home or in a care home? GPs provide much of this care, along with Community Nurses.
This is a really clear and concise explanation of the fundamentally different roles of primary and secondary care. Massively important in palliative care because of the skill primary care teams have in tolerating and managing uncertainty.
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PPCRG retweeted
More on @mariecurieuk’s campaign to let dying people access their State Pension - and prevent 1 in 4 dying in poverty - here.
This really isn’t something that should have to be asked for - we urge the government to listen to campaigners’ voices and act.
Terminally ill people urge UK government to pay pensions early theguardian.com/money/2023/j…
PPCRG retweeted
Congratulations on this rigorous work, and all the best getting the SPICT spict.org.uk into clinical practice and GP training in Germany? @aieye @DanMundayNG @MetteNeergaard @kirstyedinpall @taniaxpastrana @EAPCvzw @TheSPICT @PPCRG @
That all said, there are many other factors at play and massive issues around loneliness, depression/low mood, poverty, anxiety and perception of available help. Dying, like living, is unequal and magnifies that inequality in multiple cruel and demeaning ways. 6/6
There is a massive, and difficult, tension between "getting on with life" as best as possible while being aware that death and dying is present in your life. Most seem to manage this through minimising the amount of time thinking about death and dying while not denying it. 5/6
People are often reluctant to talk about death and dying: not so much due to 'taboos' (though people will semi-seriously refer to "not wanting to jinx" things) but because it is upsetting, depressing to think of and so on.4/6
But people we speak to are usually open to preparing to deal with emergencies as well as 'being dead' in advance for others. As authors state "planning was considered most appropriate in relation to wills and funerals" 3/6
In our own work we find people are sceptical about "planning" for death and dying due to uncertainty about both processes and practicalities. 2/6
This is a fantastic contribution to the field of primary palliative care. Theme 1 in particular. "The difference between talking about death as an abstract concept and confronting the certainty of death" 1/6
Talking about death and dying: Findings from deliberative discussion groups with members of the public. some thoughts from us below tandfonline.com/doi/full/10.…
