Mission: to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.
Canada
Joined January 2017
- Tweets752
- Following228
- Followers644
- Likes1.8K
PSC Partners Canada retweeted
20 Years International Research Experience in PSC: What Have We Learn?
👉International Collaborations matters & make the difference
@ipscsg @CcaEns
👉Patient Associations play a central role @PSCPartners @PSCSupportUK
@tomhemmingk at the stage, who better than him! 👏
PSC Partners Canada retweeted
Community-driven research is critical to advance scientific discovery
Science in Society meeting attendees share posters on their work to push for treatments or cures in their rare disease areas, emphasizing the critical role that patients & communities play in driving discovery
ALT Person standing in front of poster smiling
ALT Person standing in front of poster smiling
ALT Person standing in front of poster smiling
PSC Partners Canada retweeted
People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. buff.ly/3Ut2DeQ @PSCPartners
PSC Partners Canada retweeted
Tonight, the @TourCNTower will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Remember to check that you’re a registered organ and tissue donor at BeADonor.ca
PSC Partners Canada retweeted
Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience and voice at the heart of the whole process.
uhn.ca/corporate/news/pages/…
PSC Partners Canada retweeted
Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention!
Do you know what PSC is? It's a rare condition that affects the bile ducts, causing scarring and narrowing. This can lead to liver damage and impact digestion.
#LiverCancerAwarenessMonth #PSCDay
PSC Partners Canada retweeted
Thanks to everyone who joined us for our 2023 #ScienceInSocietyMtg! It was a great opportunity to gather + hear from patient leaders, researchers & clinicians & other stakeholders about their incredible work toward finding treatments + cures for #RareDisease
PSC Partners Canada retweeted
@TVASurg (@UHNTransplant ‘s Albert Fung) showcasing innovative learning tools to study liver anatomy with virtual reality at @PSCPartners @PSCPartnersCa patient and caregiver research meeting #pscaware @cziscience @CIHR_IRSC
PSC Partners Canada retweeted
Such an inspiring meeting partnering patients and researchers with a common goal! Exciting times for PSC patients and researchers! @PSCPartnersCa @UHN_Research @uhnfoundation @SickKidsNews @amandaricciuto @garybader1 @AutoImmuneLiver @DrAliyaMD @DianaNakib @CIHR_IRSC @cziscience
“SHARING moves the science forward FASTER!” @MacparlandSonya presenting at the @PSCPartners ICRNetwork working groups. #PSCAware @cziscience
PSC Partners Canada retweeted
Looking for a living kidney or liver donor? Supporting someone's search?
Join me and co-hosts online or in-person (Ottawa, Halifax, Toronto) for a Finding a Living Donor session.
➡️ eventbrite.ca/cc/living-dona…
@UHNTransplant @OttawaRenal @annlbugeja @NaziaSelzner @CynthiaTsien
PSC Partners Canada retweeted
NAFLD no longer - get to know MASLD and MASH
The nomenclature for metabolic liver disease has been changed. See below for the family tree of steatotic liver disease
Link: journals.lww.com/hep/10.1097…
#medtwitter #livertwitter
PSC Partners Canada retweeted
#LiverTwitter: Did you know the new #NAFLDNomenclature is now #MASLDNomenclature (pronunciation: Ma-zuld)? Read all about it in the joint publication from @alehlatam @AASLDtweets @EASLnews in @Hep_Journal: bit.ly/3XvnXSb
PSC Partners Canada retweeted
Thoughtful elaboration on vitamin B6 in PSC. Clinical trials next? Congratulations to @hov_jer @BraadlandR on a very elegant paper in @JHepatology journal-of-hepatology.eu/art…
PSC Partners Canada retweeted
Learn more about this amazing program.
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PSC Partners Canada retweeted
People with #cirrhosis and portal hypertension often have poor QOL, poor sleep, and want relief
Is it hepatic encephalopathy? Will Lactulose help?
The MiKristal trial showed that at 28 days, the answer is: possibly!
pubmed.ncbi.nlm.nih.gov/3706… #LiverTwitter #DDW2023
PSC Partners Canada retweeted
Join the Movement for Life: 5th annual #GreenShirtDay in honour of Humboldt Broncos defenceman Logan Boulet's legacy.
This day was established to remember the victims & families of that fatal crash & to create organ donation awareness
greenshirtday.ca/news-and-ev…
#LoganBouletEffect
PSC Partners Canada retweeted
Green is the official colour of organ donation, symbolizing the hope organ donors provide to patients in need.
On April 7th #LightUpGreenCanada #LoganBouletEffect #GreenShirtDay
PSC Partners Canada retweeted
Meet 4 patient-led #RareDisease organizations that are:
✨ Breaking down research silos
✨ Creating disease registries
✨ Advancing science to find treatments
#RareAsOne czi.co/3kGSuxj
PSC Partners Canada retweeted
“Trust yourself. Your power to facilitate + expedite research & push it toward new treatments & a cure is enormous.”
Advice from patient-led org @PSCPartners on patient advocacy in #RareDisease research #RareAsOne
PSC Partners Canada retweeted
What an opportunity to hear wonderful speakers from FDA! Please share with other #RareDisease communities. This webinar is for everyone dealing with #Rare. #RareAsOne @RareDiseases @GeneticAlliance @rarediseasediv1 @PSCPartners @PSCPartnersCa @curecc @livinlavidalopo @NECsociety
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