The UK arm of a Gatsby Foundation programme to innovate Parkinson’s care. Run from @bristoluni by @dremhenderson and team in collaboration with @radboudrmc

Bristol, UK
Joined September 2018
PRIME Parkinson retweeted
Meet Ben. He's 47 and lives with Parkinson's. Small things like moving slower or standing for long periods can be an issue for him when travelling. But he trialled our new badge in collaboration with @thetrainline, and this is his story.
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Please join us in saying a huge 'good luck' to Dr Katie Lloyd as she enters her PhD Viva this afternoon where she'll be defending her thesis which is based on the @PdPrime trial !
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PRIME Parkinson retweeted
So proud to share the results of the @PdPrime RCT at the #MDSCongress in Honolulu, which represents a huge @AMRG_Bristol team effort in delivering this complex trial. Next stop publication 🔜
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An overview and refresher on what’s involved in the @PdPrime trial which is entering the final few weeks of follow up and data collection! 🥳
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Volunteers needed! 📣 We're looking for adult volunteers to help us shape and develop our smart clothing within the VIVO Hub Project. See the flyer for more information!!! If you can't scan the QR code you can register here: forms.office.com/e/crd8A6NVq… @ageuk @AgeUKGlos
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In 2024, we ran 7 sessions on Patient and Public Involvement and Engagement! From our PPIE showcase and helping to share knowledge amongst researchers, to in person PPIE sessions to help shape our research, we're committed to keeping people at the center of our research #PPIE
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PRIME Parkinson retweeted
Session ⁦@GeriSoc⁩ #bgsconference on movement disorders, reminds me of importance of admin of time critical meds as highlighted by ⁦@RCEMpresident⁩ recently ⁦@Louise1401⁩
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Do you need some high protein, nutrient dense snack ideas? Protein intake is vital for everyone to build and maintain muscle mass and strength. Or perhaps you have been told to try and have more small snacks between meals to help maintain your weight! Here are a few ideas:
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Are you a gym member ready to challenge your trainers and support Parkinson’s awareness? Sign up for the Challenge the Trainer campaign this April! Get your gym to take part in three amazing challenges inspired by Parkinson’s statistics. Find out more: buff.ly/oLXnHeq
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A fantastic day meeting participants to hear their feedback on our #Parkinson’s trial. When asked if they'd take part again, we were so pleased to see a resounding ‘Yes’! We remain committed to PPIE, ensuring our research is shaped by those it’s designed to help.
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How can goal setting be used in clinical trials as an outcome measure, to help focus on what matters most to the people your research is trying to help! This AMRG paper describes how we used goal-setting as our primary outcome in @PdPrime - read it here sciencedirect.com/science/ar…
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New paper from @katieelloyd @DrEmHenderson & colleagues describes an embedded process evaluation for the PRIME-UK @PdPrime randomised controlled trial; Refinement of the intervention & support future scaling of the PRIME-#Parkinsons model of care bmjopen.bmj.com/content/15/1…
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We’re delighted to present this new publication by @katieelloyd in @BMJ_Open on how we designed the embedded process evaluation for @PdPrime trial, given the complexity of this novel intervention. Read it here: bmjopen.bmj.com/content/15/1…
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Being based at @BristolUni we were so delighted to read that in the recently published @timeshighered world university rankings, Bristol Medical School has been ranked first for achieving the highest score globally for research quality in clinical subjects! Congratulations!
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Day 3 ! This paper on the trajectory of change in BMI in people with Parkinson's is a fantastic read for anyone interested in Parkinson's with solid recommendations on how to adapt clinical care accordingly. Read it online here: sciencedirect.com/science/ar…
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Day 2 is this paper from AMRG lead Professor @DrEmHenderson and member Professor Ben-Shlomo in @BioMedCentral which uses Parkinson's as an example to reflect on and learn from the Covid-19 pandemic. Read it here: bmcneurol.biomedcentral.com/…
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It's day 1 of the 12 Papers of AMRG Christmas! We're staring with this incredible paper by @EmmaTenison et al which focuses on how they enhanced recruitment to the PRIME Cross-Sectional study, championing inclusive research with adequate representation across the study population
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With the festive season firmly here, at AMRG we're going to be sharing 12 papers published by AMRG from Friday all the way through until Christmas Eve ! Please follow us across our social accounts to keep up to date ! bsky.app/profile/amrg-bristo…
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A fantastic talk yesterday from the incredible @EmmaTenison , who’s working tirelessly to champion #inclusiveresearch and help others design representative and inclusive studies. We’re so proud to have her on team AMRG #ResearchForAll #accessibility
Such an inspiring day at the @BristolUni Clinical Academic Training School @CATUoB1 research showcase with a super theme and programme #ResearchForAllByAll. Delighted to have the opportunity to share our work on #inclusivity and recruiting frail, older adults within @PdPrime
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PRIME Parkinson retweeted
Great day sharing all things @PdPrime @chiefpd2 @AMRG_Bristol with the @Arsenal walking football team ⚽️
Day out 📍⚽️ Our team loved speaking to members of the Parkinson’s Walking Football group at Arsenal today! More updates to follow soon… ⚽️🏆
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